posted
Rifampin make many other med. not effective.
I'm on several it would mess with and jerking body would come back if valium and muscle relaxer weren't working.
catch 22, after the herx from starting rifampin ,I notice a positive move to light/feeling going to make it. Yet when I get that slight opening or positive change,I try little things but often like, restroom more often or get up to get something.
then I just wear out fast...a set myself back to easily.
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
posted
anyone ??? what gets rid of Bart. which Abx.
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Baclofan may help twitching, chinese cast claw did for me ...you have other options ...bvt ,rife 2x day ,Houttunyia, cumanda ,but i think floxies maybbe onlynother option orally and they are chemo with risks..
Few people on healing well has been on all of abx and has not had much luck. How many mg are you on ? It may be a trade for a while . One is using iv vanco!
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
From p. 24 of Burrascano:
"The drug of choice to treat BLO is levofloxacin." (Levaquin)
I took Levaquin for 30 days. Then moved on to treat babesiosis with Bactrim DS. Bactrim also has some action against bart. So, that is how I got rid of bartonella and babesiosis over 10 years ago.
This page of a lyme book gives you more information:
Just know that Levaquin is a floroquinolone and some people fear taking these meds due to possible side effects.
If there are other meds that will work, then I choose not to take Levaquin. But, in the case of bart, I would take it if I had it today.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
We think my daughter has Bart and she started doxy, is supposed to start w/ he Rifampin next. She seems to HERX for many days after upping/changing doses, so I am really dreading starting the 2nd abx. She has been taking daily epsom baths, and doing some dry brushing. But she is sooooo achy in her bones, usually legs and or back. It is hard to watch, nothing seems to help it.
Posts: 62 | From VA | Registered: May 2016
| IP: Logged |
me
Frequent Contributor (1K+ posts)
Member # 45475
posted
For me, rifampin hit the Bart pretty well.
Posts: 1431 | From USA | Registered: Mar 2015
| IP: Logged |
posted
thank you.I've just been so week for several days.
the rifampin helped some but it also made pain and jitters worse because other meds a very limited and there was no way to make up for the help I got from them with other symptoms.
I also had a brain MRI it had several notes I don't understand. The CARDIOLOGIST that ordered it didn't either now I'm going to a Neuro doc. I felt just week , stopped the rifampin.
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
posted
bluelyme I'M pretty sure that most you mentioned I haven't heard or seen on lyme info before.
It's that or I'M just not recalling. By the grace of GOD the brain fog is not near as bad as four months agou.
I just want my body to get in gear. I used to be active, not meaning running, jumping etc.
Dancing, horses, swimming , now the water in pools make me fell creepy.
any more bart suggestions?
TF, your program that worked sounds great but dr. is iffy about me taling it I had so weird pulling in my heal once when on it. That was after I had taken that family of meds of and on for years.
Other ideas, Abart and Ababs gave me a herx with only two drops each. you'd think by now my body would herx hard.
Why would it?????????
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
posted
youd think that after all these years my body wouldn't herx as bad. It suprises Ld doctor also.
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
quote:Originally posted by makaka: again sorry about the mess ups on writing. I see the mistakes later.
- You are welcome to fix any posts that you make. Just click on the "pencil/pad" icon and go into the text and make changes.
When finished, hit "edit post" at the bottom.
Hope that helps!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Brietschwart, the man who runs Galaxy Labs presented on successful treatment with Gentamicin.
Where or how you're going to get that I have no idea.
Posts: 2057 | From Florida | Registered: Feb 2015
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Some body on here tecently tried iv gentimycin.? .has risks ...as does everything Bvt is bee venom therapy, many have reported success. rife is frequency specific controversial treatment .i think it may work on bugs with a cell wall to destroy ...idk
Houttunyia is a herb ,zhang has a good formula called hh or you can use whole herb. cumanda is cowden herbal product . if byron white was working maybe muscle through with those ?
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
posted
Finally worked up the courage to start her Rifampin this morning...I am sick to MY stomach w/ worrying about how awful she will feel. This is the pits.
Posts: 62 | From VA | Registered: May 2016
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic