Topic: Information on Urinary tract/Kidney Protective herbs Please!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< LymeNet Family,and Rearchers >>>>>,
Finally got the results back from the last culture test,with the latest infection, the last one was a definite positive [first two weren't].
This is the third time a bladder.UTI infection has flared up ,staring in Dec. 2015 to now.
I can't keep taking the heinously dangerous ABX products prescribed to stop these raging infections.
Altho' I have my Diabetes controlled thru dietary lifestyle, that w/ A damaged lung, makes any of the current use ABX ,really dangerous.
I take D-mannose, and a modified lower dose of Buhner herbal basics [I.E. Cat's Claw, Andrographis, and Resveratrol, as well as Curcumin, and good fish oils.]
I use several different herbs,and Vitamins that I have found helpful [Pretty well all recommended here on Lymenet,and/or by Buhner.].
It is out of pocket, except for low doses of two prescription meds,that we have checked for an cross reactions.
Except when I take a break and cut down to only 10 or 12 of the various meds/supplements etc. for several days, I swallow,over forty capsules/pills, and caplets. I wont try to mention them all right now.
It has been something, I've had to develop over a decade,so that nothing works counter cross wise to another meds'/supplement/and Vitamins.
Occasionally I take a day on, and a day off, of a liquid, version of one supplement, that can help with parasitic issues, and Babesia{that one is time carefully for a limited number of days}.
Somehow,I have to find more help for the whole Urinary tract health. The herbals are all out of pocket, on a very tight single income, that must stretch for TxC' and I for everything.
Anyone have any ideas of safer products I can use to help stop infections,and keep UT healthy??? Inexpensiveness is a must. This is not a plea for monies, but for information Please?!!
Thanks in advance for anything you may be able to think of.
Having LD and Co's and these other issues has worn me out,and I am not getting better. I need to find away,not to lose anymore ground.
Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say you are not taking any diabetic Rx right now and have a good diet,
For anyone else reading if taking any diabetic Rx, that needs to be considered by an naturopathic doctor (or similar) or, at the very least read all you can about any herb taken in regards to its effects on glucose / insulin / metabolic syndrome.
Even if you might not be able to afford an ND, you might find those in your area and ask if there is some kind of clinic session for lectures, etc. or a sliding fee scale. Connect and ask "if you - or another ND you might know - might just be in the position to help in any way"
and note if you / your spouse are a vet. There may be some programs for vets / spouses. Sometimes, there are discounts or even gifting of some products through certain grants.
And they would know far more about what is right for your body / at certain points in time. If you can't go see them, they also might be able to guide you to written works or phone chats.
D-Mannose is great. Glad you have that on board.
And the herbs you list are certainly an excellent combination that cover various aspects.
A wonderful aspect to many herbs is their help with glucose stability. Some are "adaptogenic" in that they can help bring down if high but will not take too low. Some, though, can bring too low for some people, especially if their meals / snacks are not frequent enough or out of balance.
Salvia miltiorrhiza is also called Dan Shen or Danshen. It can be very helpful for kidney support -- and also to help calm the adrenal and neuro hyper-stimulation that comes with lyme / TBD.
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say this is included in your life right now. You might want to read more about it. As I recall, it is very helpful for so many reasons. Especially the In-Depth-Review.
RIFE Machine - Reference LINKS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Keebler >>>>>,
Thanks so very much, I've been trying to find info' to supplement what I've been able to read so far.
Ihad to stop the GylcoX last summer,and have had to find a different berberine product. I probably need to slowly increase some of it.
I talked it over with TxCoord and we'll see if there are any slide fee Naturopaths, that might help. I don't know if we could get a break with TxC' being a vet,but it won't hurt to check.
Maybe we can figure out something, a good Naturopath,might even know if anyone is using rife in area and what we might could do.
After TxC's surgery next month,depending on how all goes, maybe some of this could benifit him too.
I am excited to read more about some of herbs, to with then collected more in one place like this. I've been looking stuff up, but sometimes I can't make sense of it all.
Really really weary,after these infections,lack of sleep pain, ABX effect and so on. And we have a serious family matter going on, all at this same time.
So it is a huge huge help, to have this info' here. I'll be reading a little at a time. The Buhner protocol, is something I don't go w/o for very long, I get miserable if I do. And some of the herbs in it, seem to be of help for Diabetics too.
There are no knowledgable LLMDs, or LLNDs,but as I said to TxC', I'd bet they could help me/us wade thru what will and wont help various issues facing us.
We both have UT issues, and Diabetes [tho' I am relieved to say we are controlling with diet,and our Drs. knowledge. TxCoord gives me info' from his Specialist Doctors at VA,and I share with my PCP,who is quite pleased as far as my weight and Diabetes is concerned.
Mostly this session Appt. with my Dr. next wee,k we'll be trying to see what we can do to get the infections to resolve.
I'm off to try and learn more,and I greatly appreciate this input!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Your area lyme groups may have some members who use rife machines. Sometimes, a group of folks will get together and do "group" sessions if they are dealing with the same matters.
When searching connections to specific issues,
One quick way to find a few key phrases would be to cross search the web (and use both Google and Bing as you will get different results sometimes)
author or doctor last name, comma,
herb name (may need to use common name and then, in a subsequent search the fancy herbal name) put in "Quotes" to keep words connected, comma
physical issue, diagnosis, condition, or organ
Then, sometimes, you can find sections that pertain to your search. Though, you might see a phrase in the search results, it can be hard to find it sometimes in the text of the link.
Be very careful here, though, as some search results will post phrases that are not at all connected to the author in question if the link is to a general site, not the direct author's site. Even then, always confirm from the original work.
Also check out "Google Scholar" although that sometimes limits searches to the more typical university study publications.
And no search will adequately find all we might need to know from a book. The books about lyme / TBD are so very valuable.
Good luck -- really, it's such a job to have to learn so much, take care of ourselves during all this, and try to limit ourselves to the very basics due to budget . . . and pretend all is just dandy.
May you have some sunshine and rainbows. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Keebler >>>>>,
Thanks again, I have to find out if Vegas has a Lyme Support group,we have another friend here, who could use it too.
And I'll share with them what I find out,as to the different things. Between us we might be able to make some sense out of what info' we can find.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Silver... are you SURE that these herbs are HELPING and not hurting you?
If you stop them, do you get worse or get an infection soon thereafter?
I'm not able to take ANY herbs... only 500mg of D-Mannose twice every day. That does the trick for me. That's not to say that it will do the trick for you .. but it sure would save you a lot of money and a lot of pain if it would work for you.
I'm really worried about the dangers of the antibiotics they are having to give you. They can really mess us up. I know they messed me up and that's why I take D-Mannose twice a day.
No infections whatsoever in the past 8 years.
I realize with your kidney issues, that you are going to have more trouble than I have. I hope and pray that you can get some relief very soon.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Check out bioimmersion.com
The cranberry pomegranate supplement has prevented utis/kidney infections. I tried EVERYTHING else. There is nothing better than this when it comes to preventing these infections. Best of luck!
Posts: 1885 | From here | Registered: Jul 2012
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
Not sure how much sense I am making,I know I can't spell right now.
The cranberry isn't an option right now, if i can find a non-sugared no acidic type juice? Might help.
Still trying to find out about allergy,Histamin intolerance MCAS/D. Unfortunely most of the Doctors here,think anyone who may have LD and co's is crazy,and looking for ABX and other drugs.
At least here on LymeNet,I can study , and research links, that can give some insights.
And I take these various herb supplements,vitamins and meds. to try to keep soem measure of energy.it is hte only weapon I have against,Chronic Neuro-Borreliosis, Babesia, and Bartonella.
Until last summer,with the Medicaid [which is mostly Catastrophic only,still shocked they helped w/ glasses and hearing aids].
We lost health insurance back in 2006,and suspiciously the LD "Specialist", I was seeing dropped me .Sadly it's hard to prove[tho' I was contacted by others privately who had similar issues].
I wont say more on that issue, but since early 2007, all our treatment has been thru Buhners books,and info' off of Lymenet.I have had to cautiously ,carefully, experiment,and still have to do more elimination testing, not only for foods,but needs to possibly change the various herbal components and such that I use.
Gotta go for now, have to talk more funeral prep and business with my brother who is trying t o handle things very much alone,after Dads passing. There is help available ,but it hard for him to trust anyone right now.
Jus' Silverwolfi,hoping a made sense, not meaning to sound snappish,cranky or anything either. Just weary, worn out, and trying to be gentle with me,and others while I grieve.
Silverwolfi OwoooWoooo
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
How often do you get UTIs? Do you get tests every time you feel like you have a UTIs, and if you do, do some come back negative?
I ask because I had debilitating Interstitial Cystitis for years and they felt like/mimic the most horrible UTIs. I actually had to get an interstim Implant.
Posts: 1431 | From USA | Registered: Mar 2015
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I just had one bad one, a double infection: both kidneys and my bladder. Badly infected, felt like dying.
I got rid of it with my own infected urine!
Meaning, I took ONE DROP of urine and made nosodes.
Nosodes are sort of vaccines, done through homeopathic succussions. It is very easy to do.
You may not want to ingest nosodes (even if it came from you), even if very diluted in water.
I did a C3 and C6, took it by LIGHT (infrared), so I did not need to ingest these nosodes.
Not that I have a problem with ingesting these nosodes, but they work better through light (than ingested).
The pain subsided in a couple of hours, same day. I needed no more herbs, etc.
That was about 3 days ago.
Since yesterday, I did another dilution, one drop of urine was necessary, in the 10M dilution. This time I am drinking it, just a few drops, couple of times a day.
Today I could go swimming, I spent 3 hours in the pool or around it. So really, it did solve the problem without drugs.
I don't know if this works for all UTIs, but for this specific one, it worked wonderfully well.
Before my first nosode, I was in bed for almost 48 hours, with shivers, so much pain on my kidneys and bladder, no more eating. I lost 4 pounds.
I took first nosode on this last Thursday, then on Friday was already roller skating, Sat / Sun went totally normal. Today, I drove for almost 2 hours to reach a Thermal bath: so 4 hours in the car.
A week ago, exactly, my UTI started, and skyrocketed very very fast!!
About 4 hours after my first nosode on Thru, I was walking outside again, after being unable to do anything for the last 48 hours (not even drive for 5 minutes).
I ate my first meal in almost 3 full days without eating, less than 4 hours after the first nosode 'intake'!!!
I know I wouldn't survive much long, if untreated. I hate UTIs. I know what you mean by fearing them.
I rarely take abx, but for UTIs, it was one of the fastest ways to get rid of. BUt if nosodes work, it is even faster than abx!!!
and they are TOTALLY harmless. They may not work, because I know nosodes work for some pathogens, and not for other pathogens.
You can google 'how to make homeopathic nosodes'. You need though to find out dilutions. Which one you actually need. And then work on these dilutions with the days that pass (diluting more and more).
If you are the type of person that does remedies on your own, I can suggest you which dilutions you may take.
Posts: 6199 | From Brussels | Registered: Oct 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi all <<<<< me, lymenotlite, and Brussels >>>>>,
So far all the tests have ended up positive. Late Dec.2015, found out i had a raging bladder infection,that Dr. suspects may have started summer 2015, April this year,it showed positive culture again,and then on The 11th of this month of June.
The first culture tests[from the 11th of June] didn't show up anything. But the last one which we didn't get the positive results of 'til Friday,the 17th sadly did.
So yesterday my PCP did another sample,as well as giving me the name of a Urologist ,thru our Medicaid group. To follow up with as soon as we are able after my Hubbies surgery [in July].
Will be getting a lower abdominal CT,1st, then the Urology Dr.,and then a Neuro',again, after Hubby gets out of Hospital and can drive.
Thanks for each of the Thot's,ideas, and suggestions.
Will try to update as I can... sorry I am pretty rattled,from My Dads passing away on Sunday, and some issues happening there [cannot explain right now ...].
As to the infections, I cannot do acidic type things right now, as to remedies. And I don't know much about Nosodes, and such tho' I have heard of them.
I tend to research and try, very carefully, some supplements. Looking for something other than harsh ABX,I like the D-mannose that was recommended here on Lymenet. And we are checking on other herbal supplements.
Not asking for funding, just to explain our state of being right now, we are living on my Husbands Soc. Sec. Disability,and have been fighting to get a VA disability compensation decision since late 2009/into 2010. It's an ongoing battle.
I will need to do an elimination diet challenge again soon, right now, trying to keep up energy for TxCoords[ my hubbys] surgery. And in case we have to travel out of state before that.
BBL, I hope I am making sense,since I feel about as clear as mud right now.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I honestly don't know if this would help with the symptoms, but I'm wondering if a low histamine diet could possibly help if you have mast cell issues. Some research shows it helps with interstitial cystitis, so I'm wondering if it could help with the inflammation and pain of bladder infections. Also, azo over the counter helped me with pain and urgency.
Although IC is not a bladder infection, the symptoms are very similar. For about three years, the ONLY thing I could drink was water. If I drank a soda, oh wow, I was in even more pain and urinating more often than I wasn't. Going gluten and casein free helped, too.
I wonder what a cystoscopy would show?
Just brainstorming here in hopes that it could spur some answers or thoughts for you or someone else who has ideas.
Right now, Silver, it sounds like you have your hands more than full. When my hands are more than full, I need a reminder to take care of my immediate needs and put everything else aside.
It helps me to make an "immediate needs" and "delayed needs" list. Although sometimes that can even be too overwhelming. It just depends on I have no idea what it depends on!
Sometimes I just need rest and distraction. A good distraction for me is a movie in bed. It takes my mind off things for a while and gives my mind the opportunity to rest and not think about everything going on.
Wishing for healing and comfort for you and txCoord.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi to you <<<<< me >>>>>,
I have a referral for a Urologist, from my PCP for, an at our convenience, because of TxC's upcoming surgery. And will be getting a CT, before anything more invasive is done.
I was Dx'ed in 1982, with triggernitis, which as it turned out much later,is an old name for IC. And have had frequent issues since then.The Bladder/UTI infections have suddenly got very frequent,and painful.
We keep AZO or Uristat[ same type product] around now. My PCP,and urgent care Doc' both,are concerned that this may be something I must deal with continually. Hence the forth coming CT scan.
My last Cystology work up,in 1982, gave me permanent White Coat Syndrome, basically a horrible PTSD type experience. So this is quite frightening for me.
I was in the middle of bone scans and x-rays, when they took me to cystology,for a cystoscopy,and what they termed a 'Cut and snip', after the Urologist did a Cystal stretchw/o ay numbing agent,[ I've ended up having like three and will refuse anymore].
My scan/X-ray techs were upset when I came back,dopey and bloody.Next day they took me for a major rib resection[taking out a problem extra rib].
And overdosed me on Anesthetic, while forgetting to put in a drain, for liquids and air build up in my chest. I literally almost died, when my lung collapsed.
Then they gave me Demoral,and a friend visiting noticed I'd vomit w/in 10 or so minutes of each shot. Back then it was in the hind end area,not the IV line. I vomited continuously ,until the friend caught on and called in the Head RN charge nurse.
They then changed my meds, but it was several really horrible nightmarish days and nights. I freak,even when they Catheterize me, for a surgery. So we always ask them to put me out first.
This is difficult for me to overcome, and with everything else going on right now, exceedingly difficult for me. I know I must do something before it worsens.
At the same time getting my husband surgery over with is important. And dealing with some issues, surrounding my father and his dying with no will,is very complicated.
So that is where I am at, and trying not to stress out, because it can bring on Myoclonus seizure like tremors for me. There is another Neuro Doc' visit coming for that as well.
I know what much of they Myoclonus issue is, the LD and co's but PCP and Labcorp do not understand or accept Sero-negative Neuro- borreliosis. I have Bartonella, and Babesia, as well.
At least I got the Diabetes under control so far with diet. But everything together is to much at once,so just doing the best I can. And trying not to be an 'Ostrich Wolfi' with my head and muzzle down in the sand.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Sorry jus' me again for a moment...
Have to have a moment of silliness here.
'I kanna do a thing ..., the Dilithium Crystals are kracked...' said Scotty to Cap'n Kirk.
Okeydokey, Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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