posted
Having incresed pain in arms, hands with numbnes and cognitive issues still a problem. I take lyrica for pain it doesn't seem to be helping at all anymore I refuse to take narcotics. My LLMD is great-and we have tried so many regimes in past 3 yrs including treating for coinfections- I'm
exhausted discouaged and have plateaued-I see my LLMD this week and I feel like he is even at a loss-would he just drop me as a patient??
many regimes in the
past 3 including treating for co-
infectionst it seems like I have plateaued and I've been doing everything right and I see my LLMD this week and I'm so discouraged- Will he just up on me
Posts: 22 | From Massachusetts | Registered: Sep 2012
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
When a patient has plateaued (meaning, is no longer improving), or getting worse symptoms (increasing pain and numbness), these are indicators of an inadequate treatment plan or that your case is beyond your doctor's expertise.
Since you even get the impression that your doctor is at a loss for what to do, that is another indicator that it is likely time to move on to a better doctor.
Have you considered finding a doctor with a different approach or more expertise?
Have you compared your treatment to the Burrascano Guidelines? That means your dosages are the high dosages that Burrascano recommends and you are taking combinations of antibiotics to to attack lyme in at least 2 forms (spirochete and cyst).
It really pays to compare your treatment to Burrascano. Perhaps you will be able to suggest something to your doctor once you do this comparison. But, still, if the patient is having to suggest treatment to the doctor, that is an indicator that it is time to move on.
Perhaps once you study Burrascano you will have some suggestions for your doctor this week. And, at the same time, try to find a better doctor.
Do NOT leave your current doctor until you have had one appointment with a new lyme doctor and are satisfied that the new one is better (has more expertise) than your current doctor.
You never want to be in a situation where you have no lyme doctor.
If your brain is currently not working well enough to compare your treatment to Burrascano, you can write to me privately and I will do it for you. Name the antibiotic and the dosage you are taking.
I finally got rid of lyme and cos once I switched to my third lyme doctor--one who followed the Burrascano Guidelines.
I had had lyme for at least 10 years undiagnosed, and I had received lousy lyme treatment for 2 years. Then, I switched and everything turned around.
I know it can be scary to think of changing doctors, but it was the best decision I ever made in my life. In 8 months, I was symptom-free!
So, start looking into better doctors. See what the wait is to see someone better.
Let us know how we can help you. Everything can turn around when you do something different.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
So sorry you are in a lot of pain. Hope soon it will be better for you.
"Twenty one patients with severe chronic Lyme Disease unresponsive to oral and parenteral antibiotics were prescribed vancomycin. A pulsed dosing schedule was used, in which the antibiotic was given every twelve hours for two consecutive days each week. Treatment was continued until a clinically defined stable endpoint was achieved."
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Since the pain is focused on a specific area, might want to check this link below, then scroll down and click on the Chiropractic Neurology link.
posted
No idea at all whether this would help - I take turmeric powder and it relieves pain for me. I get it in bulk at the health food store and dip 00-size empty capsules into it. I take a couple a day. It works fairly quickly. You'll know right away if it helps or not.
Posts: 13171 | From San Francisco | Registered: May 2006
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Have you tried treating parasites yet? Mold? Heavy metals?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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