Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
I've got really bad bladder cramps that start in the morning and then go on all day.
I have test strips here that show no infection but a high specific gravity so going to get meds for an infection won't do much. But there has to be something I can do to stop the misery. My whole symptoms rampup during the day starts with my bladder, like the nerves and vessels are blocked and cramping.
D- Mannose will stop an infection but I don't think it will help with this.
Posts: 2057 | From Florida | Registered: Feb 2015
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posted
I have interstitial cystitis. Mine mostly feels like an infection when there isn't one. It was one of my first symptoms and was bad for awhile but got to where it would only flare up once or twice a year which I would drink a ton of water and I took Levsin (hyoscyamine sulfate) which would help with pain and spasms. It came back on a regular basis about 4 years ago after a really bad UTI and taking Pepcid (famotidine) which is an H2 blocker has worked miracles for the pain which was my main issue. I'm not sure if this is what's bothering you. I also have to avoid acidic drinks, including lemon water unfortunately because they are a huge trigger. I only drink water, green tea which I can handle a little lime and almond milk in smoothies. Hope you can figure it out.
-------------------- Ill since 1998 DX 2005 Posts: 93 | From tampa, fl, usa | Registered: Apr 2007
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posted
Also if I have even a twinge of pain I'll plop an Alka seltzer gold because the alkalinizing effect really helps. I think I just read that it could be connected to Bart which I think is really what's predominant with the relapse I've been suffering...GI issues, and mostly neuro. I don't think I adequately treated it in the past as I had a clinical dx for it but this go round actually got a positive test result for it. Hope this helps.
-------------------- Ill since 1998 DX 2005 Posts: 93 | From tampa, fl, usa | Registered: Apr 2007
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Amberlin when you have flares do you have constitutional symptoms like sweating or vertigo?
Posts: 2057 | From Florida | Registered: Feb 2015
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