Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< LymeNet Family and Our Researchers >>>>>,
Got some lab tests today from a test done last Monday for UTI problems[ it was from the lab via e-mail].
I had been previously DX'ed with Klebsiella Pneumoniea UTI [several times since Dec. 2015], literally all my test said was' Multiple organisms' detected 10,000-50,000.
It said nothing else, hoping ID Drs. folk will call and explain. I have a follow up test in about 2 wks. Wish I could get them to do the Lyme Urine Antigen test but it's an ID doc'...sooo that's doubtful.
Before this I've only showed the K'P' bacteria, in LabCorp or Quest.
So any ideas on what the multiple organisms is/are ??? Such as E-coli etc.[per example, TxC' ,stage 3 kidney disease, tends to get E-coli UTI's].
Thanks for any tho'ts or ideas, will try to catch up thru TxC's laptop,mine is going to the shop for clean-up repairs, for awhile.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< LymeNet Family and Researchers >>>>>,
Was really hoping someone may have had,and posted some tho'ts or ideas.
Personally, I figure it is the Lyme and Co's, and they don't know what they are looking at. I'm sure the KP was still there, but not sure what else in the 'multiple organisms'.
A colony of 10,000 to 50,000 is not supposedly that bad. But I'd like to know what is causing it. Aside from the generalized and mysterious ' Bacteriuria '[sp.?], that the ID Dr. tho't could be a possibility.
My thot's and questions are what is causing this Multiple organism soup ???
Can Bartonella and Babesia get into our Urinary tract, kidneys an so on? I figure probably?!? so many things I still don't know...
Jus' Silverwolfi hopeful of stopping whatever this mess is....
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
In medical reasoning when they look for these organisms they'll look for pathogens and then the rest of the bacteria they find they'll call "normal flora".
It's like your gut. As long as the microbiome in your bladder is balanced and they can't find any pathogens they'll just say "multiple organisms."
If e coli was there in excessive amounts they would note that on the report. Klebsiella is normal too unless there's too much of it.
Obviously this has drawbacks. Obviously they don't test for Lyme or Bartonella or protozoans. A lot of what causes "interstitial cystitis" are bugs that are too small to find in significant numbers.
Silverwolf there's a probiotic you can take for your bladder that works exactly like the ones for your gut. Here's one example:
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Jordana >>>>>,
Thanks for the tho'ts,info link and ideas, it is harder to look up thing, as I am not on my own laptop [it's in for repairs].
I have to be careful about Cranberry, but wondering if,I could take a probiotic similar to those. I have one but am taking it about 3:00 a.m. to keep it far away from all the ABX,as well as an anti-yeast formula.
Am checking in w/ the stores we usually frequent for supplements, hoping to find something inexpensive that will answer the
I've been hoping the ID docs people will call, I'd like to get off of having to take the 2000 mgs of generic Keflex. But I want this mess gone.
Am hoping that it as as you said, the mess is gone,and it is normal organisms, but I wish they'd explain it for certain.
Thanks again for your input, I do hope you are feeling better.
The ABX may be hitting more LD and Co'sfor me too. My joints are achy-er than usual. And had a freeze up yesterday, got dizzy, grabbed the door post, and couldn't let go, move or talk for a couple minutes.
It has been awhile since the freeze ups happened, i was glad TxCoord was here, to help.
Thanks again, I'll check back in later.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
It probably is.
Pretty much every circulating microbe we have in our bodies is filtered through the bladder. Lyme colonizes the bladder and dead Lyme is processed through there also causing irritation.
The Keflex is hitting the Klebsiella but definitely also the Lyme so you could still be feeling irritation because of the dieoff. You might not even have klebsiella anymore.
An old trick for a touchy bladder is baking soda and benedryl.
Posts: 2057 | From Florida | Registered: Feb 2015
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Jordana >>>>>,
You Know, I used Baking soda awhile back to calm the burning and stinging... and i take Children's Benadryl to help combat issues w/ ABX.
I think that's a great idea!!! Thank You!!!
Sometimes I feel numb and dumb, I know it is the LD and Co's, combined w/ grieving, family and friends keep dying on us.
But it makes thinking clearly difficult, everything is swirling, kinda like the mess in my bladder right now.
I think I'll try the baking soda again in a bit w/ Benadryl , couldn't hurt!
I'll check back later, TxC' was running an errand, when he gets home, we may be off to the VA ER. They want him to do the EKG test, easier to get it there than at clinic... so they said go out later and get it checked.
His shoulder and arm get sore, shoulder locks up, but now his chest keeps feeling too tight. So they said better safe than sorry, I am hoping it is just stress. But it would be best to find out what's up.
I'll try to get back in then later, hopefully we'll go and get his EKG done...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Are you drinking enough water? I was having some issues awhile back. I already drink a lot of water, but I upped it and just that alone really helped more than anything.
Posts: 116 | From Upstate NY | Registered: Apr 2014
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Pebbles >>>>>,
I do drink quite a bit of water, and have had to up it even more. So I know what you mean.
If I don't drink enough water ,I know it as the issues all get worse. Between, supplements, ABX 4x's a day, and allergy meds,I have to keep up my water intake.
Good tho't to remember tho'. TxCoords Aunty used to get really bad UTI's, she figured if she drank less she wouldn't have to go to the restroom as much. It backfired of course. She is passed on now,as so many in our family are.
I found out that it is good to keep water by the bedside at night too.
Well better go for now but thanks for the tho't. I'll check back in tomorrow if I have a chance, Hubby [TxCoord is in Hopsital].
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Praying for hubby!! You guys have had the roughest time lately. I'm so sorry!!
I do hope they can help your infection.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello again <<<<< Lymetoo >>>>>,
Thank you, I was just checking back before taking a break...
Yes, it has been difficult, I am hoping that this infection leaves soon.
I am suspicious,that if they would do a LUAT, they'd find Lyme and Co's wandering in the soup of 'Multiple Organisms. I don't think they will tho.
Don't know what to do,other than keep praying...
Taking a break for a bit...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Cranberry juice / fruit: I know a lady that swears by it. Multiple UTI. She said she takes it very often, and then her multiple UTIs stopped to come (at least, not that often).
I also take a bit of cranberry juice (not sweet) when I start to feel funny (like an UTI is going to come).
I feel it helps a bit.
Another thing I feel helps my urine to clear is green tea (I take Sencha). It is known to clean kidneys too. Too much of sencha will make my stomach ache, so I only take 2 cups a day, maximum.
What stopped many times a 'coming' UTI for me was bear garlic tincture. Dr. K uses that to bind heavy metals through the urine.
When I feel it's about to come, I take both chlorella in powder with bear garlic tincture. So far, that is for me the best treatment (and easiest).
In my case, there is a combination of toxins in urine and the starting of UTIs.
When nothing helps, I take Bactrim (but it's been more than 5 years I don't need abx any longer for that).
UTI sucks... I get very high values (bacterial count) in a few hours.
Like, if I start to get symptoms in the morning, by the end of the afternoon the infection is widespread. I get feverish, in very much pain, and become home bound.
ER drs never believe until they do the lab tests.
I do think in my case, there is a DIRECT relation between UTIs and toxins, specially heavy metals (because if I take binders, the UTI stops or doesn't develop).
Very hot baths, saunas also help.
I wouldn't be too worried about killers. If you get chronic UTI, killers will not solve the problem for good. Or you need them forever, like quite an increasingly number of women today...
When infection is though well established and you get full symptoms, there is no way out: you got to take killers. Such ideas above is more to help relieve the symptoms or to avoid a next attack!
I hope you already feel somewhat better now!
Posts: 6200 | From Brussels | Registered: Oct 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Brussels >>>>>,
Thanks for the thot's and info', I take the Cranberry -D-mannose faithfully, as regular cranberry is too acid now.
I'll have to look up the Sencha green tea. Sorry for the dumb seeming question,but are the 'killers' the ABX??? My brain has been super fried or something.
UT area is somewhat better, but the bronchitis has been rearing it's head again. I am really hoping this all resolves soon.
At least I have my TxCoord bear back now, or TrekCoord as it has changed to... don't like not knowing if he is okay. We are both hanging in there...so to speak. And he is somewhat better,still some minor issues.
I think some of the stresses and heart issues may be from grief, family keeps passing on us.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Jus' Silverwolfi Bumping this back up,for info'. So I can find it... for the time being.
Have started a follow up post, since I heard back from the Lab..still don't know much more than I did... 'Infection-Multiple Organism' still in my system... AAAArghhh,,,AowooooWoooo...
Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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