posted
What does the pain feel like?
Posts: 764 | From Northwest | Registered: Sep 2014
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
My mother and neighbor came over to visit me over the weekend. Each of them said "you look horrible".
They begged me to go to E.R. The pain was beyond words. Unrelenting wide spread doubling over hell !
How do u explain to normal thinking loved ones that the medical community doesn't believe chronic Lyme exists ?
How do you explain that a medically educated fellow human being would allow another of gods creatures to suffer such misery ?
My go to pain reliever, besides going into the kitchen and hitting myself over the head with a frying pan, is a 20 minute Epsom salt bath ! Incredible ! Sorry for your suffering friend.
Posts: 2977 | From Florida | Registered: Nov 2016
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I just went to my 1 st LLMD today. She was Doctor number 19. My r.h.factor was a high number 15 but the rheum doc said I didn't have other markers so no treatment. Of coarse I opened my mouth and said I thought I have Lyme.
LLMD wanted to order me electrical conduction study. I said I had it done, brought u a copy. Wanted sexual disease blood panel. I said I had it done, brought u a copy. Wanted hormone panel done. Again, here s your copy. Hearing and vision tests, mri s of brain and neck,sonograms of upper and lower abdomen, urologist procedures, ear,nose and throat procedures,vertigo physical therapy notes.
Basically what every Lyme sufferer goes through. . .
But when she saw my western blot and the 3 bands that were reactive, she said they were specific to borrelia.
She ordered more blood work that would make Dracula proud.
When asked, she said in her personal opinion, that she thinks I have Lyme, co infection and ineffective immune system due to hypogammabullinanemia.
Damn, and it only took 3 years and 10,000.00 later for someone to tell me what I already knew.
The only Doctor I didn't go see was a psychologist but I should have had my head examined because this can't be reality ?
Posts: 2977 | From Florida | Registered: Nov 2016
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Yep same story here bonnie ..its like the friggin dark ages.meets twilight zone in a bad bad trip ....i went to see neuro and they said we dont have your med records and will need to do a biopsy if i wanna consider ivig ( not sure its worth it ).....
.bee venom has helped my hands open jars again...maybe its like slapping knee to relieve foot pain but it works ...of nerves are busy the line cant say beep beep
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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quote:...i went to see neuro and they said we dont have your med records and will need to do a biopsy if i wanna consider ivig ( not sure its worth it ).....
Get the biopsy done! However, a positive biopsy that won't be enough to qualify for IVIG. You need very specific diagnoses to get insurance to cover it.
Posts: 30 | From Wisconsin | Registered: Sep 2016
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posted
Re pain, I try anything just to lower its volume.
One idea that worked for me while I was waiting for better solutions for a hand problem once - one of my doctors suggested wrapping the most painful part in a 5% lidocaine patch - it's an Rx - they come 10cm by 14 cm and you can get a boxful of them.
It actually worked to lower the pain for me to sleep easier at the time.
Posts: 13116 | From San Francisco | Registered: May 2006
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