Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
This morning I woke up with a numb left foot. Got out of bed and gingerly applied weight to it to get circulation moving.
I felt pins and needles and hopped around saying ooh s and ozz s. Then I shook my foot from left to right and I literally felt tendons or ligaments or veins bouncing around . It was like rubberbands jiggling inside.
Unable to comprehend, I shook my foot again 5 minutes later, and still had bouncing rubberbands but no pain.
What fresh hell is this ? Is this real or is my mind thinking this is what I m feeling?
Also, I had 2 lumps on each side of my back and one in right side of abdomen that move around ???
Also, my heart has pain but I think that's because I have wide-spread neck, shoulder, and back pain and maybe it's a nerve or muscle radiating towards my heart muscle ?
I posted a few days ago how I felt 25% better. I must have upset the God s because they don't condone bragging about one s good fortunes. But I wasn't bragging, merely stating my status during treatment.
I know I have Neuro Lyme, but I also know this is what I m feeling. But is it real ???
Posts: 3217 | From Florida | Registered: Nov 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Lyme and coinfections do a myriad of really weird things to bodies, and one of the hallmark symptoms is that symptoms change and move around.
Although I don't know you, I've read your posts and Im fairly confident you're not crazy, so try to put your mind at rest. Lyme is just one weird, confounding illness.
I hope you feel better soon.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Me too, me.
Thank you.
Posts: 3217 | From Florida | Registered: Nov 2016
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Also, I forgot to mention, I woke up with puffy face, glassy and blood-shot eyes, cracked lips, and extreme thrist.
I have been pizza free for the past 6 months, at a great sacrifice.
Would it cause great turmoil if I was to go get 1 slice and savore every bite while I lick my wounds ?
I know the answer. . . Just feeling sorry for myself.
In order to get to heaven, you must prove great suffering here on earth.
Posts: 3217 | From Florida | Registered: Nov 2016
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posted
Regarding the lumps you're mentioning, can you describe further? Sometimes they turn out to be lipomas, which are benign fatty tissue tumors, that can spring up anywhere.
A doctor/researcher figured out how many patients can get rid of them, very simply - she advocated drinking noni juice and taking grapeseed extract capsules, which are anti-inflammatory.
I tried it and it worked - took the several lipomas I had down to nothing. Then I tested not taking the noni and grapeseed extract and the lipomas came back.
Best if you continue to describe symptoms here and people will respond. You don't need to doubt your sanity - these are real symptoms! And the trick is to find out more what they are, and also what remedies we respond to.
Posts: 13171 | From San Francisco | Registered: May 2006
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
When I awoke this morning in bed, I felt something float up to the top of the right side of abdomen. I was like "NOW WHAT?" So I pressed down on it and it was 1 inch in diameter and hard. When I sat up, it disappeared. Scary.
When I sit with my back pressed against the back of a chair, I can feel 2 soft squishy lumps on each side of my back. When I lay down, they disappear.
I ve really had it with this bull#### !!!!!!! Never a break. So sick.
If I m not crazy, I have every right to be.
Posts: 3217 | From Florida | Registered: Nov 2016
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
THANK GOD FOR ZANAXXXXXXXXXXXXXXXXXXXXXXX
Posts: 3217 | From Florida | Registered: Nov 2016
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Jordana
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Member # 45305
posted
I have the rubber band thing! It feels really dangerous and I've never gotten an answer from anyone about what it means.
Near as I can tell it's happening because the peripheral spinal nerves are swollen. What happens to me with my spine is pretty terrifying so I've looked into this kind of obsessively. The nerves swell up because they're infected, which makes them rub up against nerve roots and cause all kinds of weirdness. It should reverse with enough treatment. Mine hasn't done that in my feet in a while.
Posts: 2057 | From Florida | Registered: Feb 2015
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Yeah Jordana, if the rubberbands don't make you question your sanity, I don't know what will.
I used to have sharp, sudden, shooting pains all over my body. It felt like a red-hot ice pick jabbed clear to the bone.
Now my shooting pains go to point A and then travel maybe an inch and land in point B. It lasts less than a second and seems that they communicate with the pain electricity signal.
Try explaining this crap to a doctor. Posts: 3217 | From Florida | Registered: Nov 2016
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posted
Hi have you been tested for co-infections? I cannot remember which one but there is a co=infection that has subcutaneous nodules as a symptom.
I have one near my spine, my forearm and upper arm that are there sometimes then gone. I also have the ice pick pain.
Lastly I also have the puffy face (and hands), increased thirst, cracked corners of my mouth and dry lips. My doctor tested me for low MSH and low ADH which can also cause static electric shocks.
Hope this helps
Posts: 86 | From LA | Registered: Jul 2016
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Ya bartonella leaves cysts...bonnie i have just resolved that this is a nightmare i cannot wake from ...my flesh is doing weird weird zombie **** and i may not be able to stop it but bartonella is the one eating nerves and lyme eating the collagen
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I too, woke up this morning, and thought my life is unrecognizable.
My main goal, as are of others here, is to get well enough to return to work. Not 100%, just enough to lead a productive life
Too sick to make any decisions one way or another.
Posts: 3217 | From Florida | Registered: Nov 2016
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
I know exactly how you're feeling, love. I still believe I can get better but nothing prepares anyone to be sick in the huge time blocks Lyme requires. When we start out we don't realize that light at the end of the tunnel is far far away.
Posts: 2057 | From Florida | Registered: Feb 2015
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posted
I think the subcutaneous nodules are bart? Bartonella can cause granulomas as well, blobby deposits in organs, etc.
Posts: 30 | From Massachusetts | Registered: Jan 2017
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