posted
DGL helped me tremendously with air hunger and heart palpitations, just keep a watch on your potassium levels. Also, two days of being on NB Protocol put a stop to both issues (I'm now on day #8).
Hope that helps, J
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
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I am still have no seizure like activity upon lying down. No weird feelings like I am dying.. and no head crashes.
Arginine can help neurotransmitors, and I wonder if that's why it stabilized my odd brain symptoms?
I quite the mild hyperbaric, and seemed to improve even more!
My sickening head problem I have had for six years is even better!
I still take seven grams of l-arginine along with three grams of turmeric, clindamycin, mepron, azithromycin, coartem, and cryptolepis!
I feel like I am winning for now!!! I am SO excited and HOPE, HOPE it continues to HOLD! pleeeeeease?
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Yay! Yes amino acids play a big role above everything else, alongside minerals and lipids as the building blocks of what we are. Here's a small aminos cheat sheet:
Aspartic Acid Makes aspartate; found in peanuts, potatoes, eggs & grains.
Choline Makes acetylcholine; found in eggs, liver & soybeans.
Glutamic Acid Makes glutamate; found in flour & potatoes.
Phenylalanine Makes dopamine; found in beets, soybeans, almonds, eggs, meat & grains.
Tryptophan Makes serotonin; found in eggs, meat, skim milk, bananas, yogurt, milk & cheese.
Tyrosine Makes norepinephrine; found in milk, meat, fish & legumes.
posted
I am sorry, Troy, I can't really remember. I am thinking it was three grams in the a.m. and three in the eve... making a total of six.
I feel though that I may have started too fast, as I had a headache for a good week till my body adjusted.
I think I would start with two and add on a pill till you got up to seven to ten grams...OH and make sure some of it is Citrulline!!!!
I have stayed at seven with good results, but still think about going up to ten.
I will say, my air hunger worsened and still is hanging around. My Dr. doesn't know why this would be.
It IS better by times but still worse than before the arginine I would say. Don't know If it is die-off or provoking something.
Stephen Buhner in his book says arginine is so powerfully against babesia, that it alone can eradicate the infection in studies!!
Not sure I believe this, but I do think it is powerful against it and the effects of bartonella.
Best wishes Johnny_broadway! Keep us posted!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I have been reading this thread with great interest because I would give anything to have my head feel normal again. I recently read an article that explained how for some, L-arginine might make things worse.
This article is worth reading and discussing with your doctor.
posted
Thanks dbpei!! In my research I did stumble across that article.
I don't know why he says this though... from what my feeble brain understands, maybe the protein from certain foods can aggravate hyperammonemia, but NOT l arginine.
(btw, I would not recommend his diet! at least NOT long term. that sounds very unhealthy. Protein is VERY important!)
The articles I read including Wikipedia say that they give intravenous l-arginine to people with hyperammonemia!
I don't think my Dr. will know the answer, but I can try asking him. He doesn't know much about it and seems too busy to be VERY interested. (although he keeps pretending like he is!)
The best I can find on the subject is in Stephen Buner's book Natural Treatments for Lyme Coinfections.
I would suggest you get that book If you are interested in trying it and read the section about Nitric Oxide and its major role in Malaria and Babesia and Bartonella.
I don't think it is very hard to understand... and has helped me a LOT in knowing what to take for Babesia.
As I said before, I feel like I may be finally getting more on the winning side and it did seem to start with the L Arginine.
I am afraid If I get better I will be one of those people that won't be able to say what made them get better. It is either:
A. The L arginine which helped my seizure like night thingies.. (beyond awful)I did this first..
B. Quitting mild hyperbaric (I did this next, not quick improvement)
C. Adding in the Coartem on top of my other antimalarials (I had done Coartem before with no improvement just not in tandem with my other meds) Very suspicious this is the straw breaking the proverbial camel's back)
D. Turmeric taken a week after Coartem. (also suspicious this is helping the most too. Turmeric and Artimesinin together are pretty powerful against malaria)
Best wishes my dear head friend! I know how it feels! awful!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Thank you so much for all of this great info, foxyloxy. I am so happy for you that you are finally seeing some improvement!
I could never do that diet either. I eat so many of the things that are forbidden on it. I don't know how I would survive!
I have Buhner's book Healing Lyme Disease Coinfections. I think it must be same one? I will definitely look for section on nitric oxide and the part it plays... HOping my brain can absorb all of this.
All the best and please continue to keep us posted! Posts: 2387 | From New England | Registered: Aug 2011
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posted
So I took ~3g of L-arginine (with citrulline) last night before going to bed.
My first impression is... It totally knocked me down and out. I'm finding it hard to get out of bed this morning and my joints and muscles really hurt.
I'm not sure exactly why this is. Maybe I took too much, or maybe something else is going on. Time for more research...
Posts: 30 | From Las Vegas | Registered: Mar 2008
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posted
Yeah, you may have taken too much. Maybe start with one gram? I started off with three grams too, and I am sure this is too much. (.I.E. THE HEADACHE.)
Sorry about that! The only increase I felt was a headache for a few weeks... oh and air hunger, that I still have. I still don't know what to think about that one! :/
Maybe you are being hit with a bit of die off from the babesia dying from the nitric oxide? I do know my knees ached more on it for a while too.
Some people have bad reactions when they mess with babesia.
I wouldn't give up yet, but of course you know your body. If it doesn't help in a month, I would quit it.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
I haven't updated here in a while, figured I wouldn't share that I had to stop arginine. It made whatever infection I have worse. ):
I'm definitely going to try it again one day, my body really did love the arginine, but so did the infection. Maybe mycoplasma or protomyxzoa...
Posts: 748 | From Texas | Registered: Feb 2015
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I am very curious. What symptoms got worse for you? I would say my air hunger worsened...(and still is) This bothers me a bit, as I do hope I am hindering my infection not helping it!
So If you could say what you thought worsened, it may be helpful to me and others trying it.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Initially, it worsened my sinusitis and blurred vision. It also worsened my thrush, but I'm hoping it wasn't the actual arginine that did that. Maybe it was one of the other ingredients in the ProArgi.
Then, it eventually worsened my fatigue and such, even though it initially helped my fatigue quite a bit. I just started feeling more toxic on it. I'm absolutely going to try again one day though, those few days it helped were fabulous!
Posts: 748 | From Texas | Registered: Feb 2015
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posted
Yeah,the ProArgi has sugar in it...It also other things in it? Wow! quite a few other things.
If you try it again I would get Jarrow brand 1,000 mg caps and Jarrow (or NOW brand) 1,000 mg Citrulline and pop some of those big cruisers! It may give you clearer picture without all those other ingredients plus all that sweetener... (although they do use some stevia, good for them!)
Best wishes! Hang in there. I hope the Bicillin helps you. I have heard it can be quite powerful.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
I'm kinda using this as my health journal... Maybe it can be helpful to others.
I am still on 7 grams of Arginine/Citrulline, Taurine, l-theanine, 3 grams of Turmeric, Art,crypto, Coartem, Mepron, Azithromycin, Vinpocetine, Monolaurin. Recently added in Dan shen and Japanese knotweed, Tudca and Daraprim.
The Daraprim seems to be helping a bit. I will stay on it for a bit, but it depletes folic acid. I am takine Jarrow mthfr folate... 800mcg
I also am exploring the whole mthfr thing. I took Jigsaw's magnesium with methylated b vitamins and whoa! Lo and behold they gave me energy.
I am compound heterogeneous and I have been trying to load up on my b vitamins... they effect my sleep, so I am going slow. At first I thought I felt great on them. Now I seem to be in a head slump again... Maybe I am overdoing it.
I am weaning myself off Gabapentin. I feel my memory is being affected by it. I am down to 300 mg daily.
The gains I have made seem to be sticking! But my progress is slow and I feel a bit lately like I have plateaued. Time will tell!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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