Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Noise and lights and stress are greatly exaggerated in severity and frequency.
Any kind of stimuli causes an extreme fight or flight mode.
A plane going over causes my heart to skip a beat. A car horn reverberates in my brain for 5 minutes. A phone ringing makes me want to crawl out of my skin.
T.V. has to be on low. Lights have to be on low. Going into any store is especially frightening with all the noise, crowds, lighting, stimuli. . . sends me into panic mode.
Vagus nerve into my stomach is always on full alert. Numerous muscle knots throughout back. Head never stops RINGING!
I live a very quiet life. Very quiet. And I think I am dealing with a chronic illness reasonable well.
I know it's the Neuro Lyme attacking my nervous system. Xanax has helped tremendously but I hate being so vulnerable to life s everyday stressors.
Posts: 3221 | From Florida | Registered: Nov 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry to hear you've been hit with some of the most typical - and hardest - realities of lyme / TBD (tick borne disease). Many do report this neuro - adrenal - sensory issue often resolves with proper treatment against the infections AND with proper liver & adrenal supports / behaviors.
Along with very specific treatment with an ILADS educated LLMD &/or LL ND (naturopathic doctor)
Sadly, Xanax can make it worse over time as it's a very ototoxic Rx. There are other ways that can help, though, so just hold on and see detail below.
1. Assess all Rx / OTC that may be ototoxic. Work with your LLMD or LL ND to eliminate all that are not specific / essential to lyme / TBD treatment or essential to your health.
Ototoxic agents are the worst offenders. Where they are required, Liver Support is more vital than ever. More detail about the damage from ototoxicity in the Tinnitus thread. Also other key actions to take for ear protections.
2. Avoid all big box stores as much as possible. Avoid all places that are too stimulating - find other ways to obtain goods or services. An hour in such a store could cost you a month of damage. Really.
Topic: NATURAL SLEEP & ADRENAL SUPPORT -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Did you also have hyperacusis before lyme ?
If so, see the links in the Tinnitus thread for SCD - Superior Canal Dehiscence. It's a break or hole in the actual bone structure of the ear. Lyme can make this much worse yet if you have this, too, you likely had symptoms before lyme. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Avoid all fluorescent lights. Go through your home and banish them. At least, then, at home, you don't have that neuro irritant.
More detail in the Tinnitus thread as to why. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
This is what I mean when I say I need a doctor on speed dial.
Everyday, no let up of physical and mental abnormalities.
Treat the infections and take a nap.
Off work 7 months now.
Vertigo, face numb, and tinnitus were 1st symptoms. So scary.
I incorporate handful of cilantro and parsley in a ginger, apple, garlic, and blueberry smoothie every morning. To keep blood clean.
I also take 1000 mg milk thistle seed extract 2x a day for liver support.
Also, take chlorella 400 mg 3x daily. Epsom salt bath when able.
Posts: 3221 | From Florida | Registered: Nov 2016
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posted
[QUOTE]Originally posted by tulips: [QB] With Lyme, I have never been able to tolerate anything like Xanax even though other people can take it. I can't
take any of that stuff. I tried four or five psychological meds and they all made me feel worse. They gave me neuropathy and made me shake all the time.
I had to get myself off of it. It made me feel like I was in Hell anyway so I went cold turkey and had the shakes for three days.
If you aren't on abx and you need something to help you get better. How about herbs? Everybody's different but they haven't hurt me. They are powerful healers and they have helped my Lyme.
I was really in bad shape a few years ago and had given up. That is until I realized that dying with Lyme means being eaten alive from the inside out.
I was so sick and weak all I could manage to do was struggle out of bed and take one Cats Claw capsule a day but in a few weeks, I was better enough to get up from bed
and get out my herbs and made a plan to wage an assault on Lyme and now I'm well enough now to function pretty well very day. Re tinnitus - Ginkgo stops my tinnitus. I take one a day. I read about it in Tinnitis Today.
It took four days of Ginko to stop the ringing. But you have to not give up hope and actually take one a day.
With all herbs, I start off cutting the pill in quarters or halves and take a small quantity for the first few days.
I follow, as close as I can, the Buhner protocol. Good luck with Lyme. I've had neuropathy Lyme as bad as anyone and I've got it licked in so many ways now. I'm so much better and hope you will be too.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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I have extreme hypersensitivity to all stimulation too -- is there even a word for this beyond hyperacusis? Like hyper-everything-is?
Posts: 30 | From Massachusetts | Registered: Jan 2017
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posted
I drink mangosteen juice to stop my Lyme eye symptoms.
Also, PEMF treatment stopped the tinnitus for awhile. I spoke with an LLMD who said it quieted down the nerves.
Posts: 13171 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Many interactions here with various infections in many ways. Some include:
The coating around the nerve fibers can be affected with lyme (demyelination). This can cause all kinds of neuro / sensory / exhaustion effects.
Some of the tick borne infections cause a sharp anemia. With such, the body / brain just can't handle even an "ordinary" sensory load.
In the Tinnitus thread, there is discussion about this "going beyond hyperacusis"
Magnesium deficiency is one connection to all this as is
the HPA-axis [see description in the Adrenal thread] . . . when the HPA is so shattered / tattered as it is with lyme, this causes so many endocrine / adrenal issues.
This is key, the adrenals are in dire distress and when so -- ANY stimuli can be enormously hard / painful. Even the slightest sounds / light / action / energy output can be too much.
Even watching someone blink used to put me on the ground - it was too much. If this is true for you, too, the INNER EAR is also likely involved. See Tinnitus thread.
A dark, quiet room can be a literal requirement for when any / all of this becomes too much - and best if BEFORE the "alert" alarms sounds so to speak.
Rest becomes a requirement - planned rest better than trying to scrap oneself off the floor after a burnout. Of course, along with direct and assertive attention to infection with LLMD / LL ND.
Avoid places known to stress any body such as big box stores, etc. Plan a way to reduce damage.
In addition is the brain inflammation that goes with lyme. Such swelling could be to a level of Encephalopathy in some cases or the more chronic less acute form: Myalgic encephalomyelitis (ME / CFS that some with lyme are first diagnosed with before the infection connection is found).
Support for INFLAMMATION revolves around key antioxidants. For instance, milk thistle is the foundation of that.
This is where the liver support can help - as can some other specifics support measures. Antioxidants can help reduce inflammation while address directly the underlying infections with other measures with one's LLMD / LL ND. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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