posted
Hi all. Wondering if anyone has any info. or has even HAD Stem cell therapy? I've had Lyme since 1998 and have tried almost everything .... but I don't know enough about this to even have an opinion yet .
Thank you!
Posts: 8 | From Charlotte, NC (used to be NY) | Registered: May 2016
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My husband had a stem cell transplant and I swear it killed undiagnosed bart and Lyme. He feels better and has a better attitude despite chronic cancer.
I know a gal in Ohio who went to Mexico for stem cell transplant and came back well. I tried contacting her last month to see if she had lasting results and no reply.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
posted
I'd love to hear more about this as well. I think Kelly Ozborne did this in Germany I believe. My mom had one for amyloidosis(akin to multiple myeloma-a blood cancer) prior to me getting sick and it was a harrowing experience. Kt, my thoughts and prayers go out to your husband and family. I do not like the C word. Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
I've started to look into blood transfusions, ktkdommer do you know the name of where she went in Mexico?
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
| IP: Logged |
posted
The one good thing I did in my adult life was never carrying any debt. I would always pay for it in cash or pay off my credit cards in full every month.
Now that sickness has drained my savings I'm leaning on my credit card like I never have before. My rationale is that if I have to pay the minimum for years the bank still knows I'm good for it, and when I recover I'd clear it off as quick as I could. It's scary and hopeful at the same time.
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
| IP: Logged |
posted
Thanks HW88 and willbeatthis, I have a *great* doctor and am doing almost everything I am told to do, just waiting on several shipments of supplements now and will see about their effects. Would like to say thanks to MBNA and RBC for giving me the ability to do it
I'm still interested in a transfusion if I can find my way to one, I think my blood is full of critters and this would lessen the treatment time.
If anyone is a doctor, or has a reliable source to do this, please post or pm. I was told it was never done before, but that tickborne infection patients who did have transfusions (for unrelated conditions) were blessed with a great reduction in symptoms.
Maybe this is a thing? Pre-screened blood, trained LL/MDL docs to manage the process, and a package that could streamline it for people. I would love to open a hospital somewhere to do just this, among other equally important health services, I would be my first customer. Oh just thinking out loud..
Jory
ps: Today marks my first full week of treatment!
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Maybe puerto vallarta has it ..one can get ivig there im told
lemme know when you open your center i would love to contribute ...dream big ya
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
Will definitely keep you updated on this. When I get better I plan to be a real pain in the ass to my government about lyme and morgellons. This can't go on, nobody should ever have to go through what I've been through - it's criminal !
Big hugs to you.
Jory
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
| IP: Logged |
According to MyLymeData's Lorraine Johnson presentation, stats are showing that stem cell isn't very effective.
Posts: 705 | From WA state | Registered: Jul 2011
| IP: Logged |
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
$$$ stem cell therapy was not effective for 2 Florida COPD patients according to a pulmonologist I know.
C. Pneumoniae (EB = elementary body form) uses stem cell derived monocytes as "transportation" vehicles. It invades endothelial cells and triggers M2 macrophages where it prefers to camp out in.
Cpn is a common co-infection in lyme and MS and is latent in many persons (much like the mono virus, EBV) until the immune system is compromised.
Look closely at salicinium as a potential treatment to give the immune system a boost.
Orasal Liquid, single bottle - click on "more info" - read carefully.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Wink]](wink.gif)
. 
![[Smile]](smile.gif)
Printer-friendly view of this topic