posted
To all who have had Lyme disease for a year or more (now CLD-T), do symptoms come back in the same way or pattern?
My tick exposure was 4/15/16. I had vague symptoms 2 weeks after that but ACUTE and severe back pain that wrapped around my right side and then being unable to walk 5/6/16.
Then of course 50 thousand other neuro symptoms. I always have ok hours to hours where I have a variety of symptoms throughout the day but this past week the back pain started again just as severe as in the beginning along with the sensitivity to sound and light.
My husband brought up the question to see if this is common or not.
Posts: 86 | From LA | Registered: Jul 2016
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posted
They almost always come back. Sadly that is just reality for the time being. There are absolutely seasonal components so I could see how it could feel like it comes back annually. But the truth is it was never gone, you just knocked out a whole lot of it from active state during your last round of antibiotics. The more time that passes, the more symptoms gradually increase till its back up to where it was before. This is partially why I believe long term continuous antibiotic therapy is the way to go. If you start and stop, you never win.
Posts: 173 | From USA | Registered: Aug 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
etb, for the first 5 years I had lyme disease, it was episodic. So, I could have a few months of terrible, scary symptoms and then a few months of being totally normal.
Eventually, it because 7 months of being ill and then 5 months of being normal. It was as if a switch was turned on and off!
Then, after 5 years of that, I just was sick all of the time for another 5 years. Finally, a doctor figured out that I had lyme disease.
I have talked with many people who said their fibro or lyme was episodic at first. So, you are not crazy, believe me.
One day I would be my normal self, climbing 7-story Mayan ruins in Guatamala, and the next day, I didn't have the strength to stand for more than a minute, hold a phone to my head for 30 seconds, or hold my mouth open to have my teeth cleaned.
It was bizarre. Lyme is bizarre!
Posts: 9931 | From Maryland | Registered: Dec 2007
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