posted
Notice when I get off couch or awaken in am and start moving my neuro symptoms increase?
Posts: 157 | From Tampa | Registered: Jul 2013
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This was the first thing that happened when I went to physical therapy and fortunately made them look for something neurological rather than an orthopedic problem.
When the physical therapist did the initial eval and challenged my muscle groups my foot, leg and hand started moving on its own like they were possessed
Posts: 86 | From LA | Registered: Jul 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
TCoach,
Q: "when I get off couch or awaken in am and start moving my neuro symptoms increase?" (end quote
Likely, it's that pressure is put on the body tissue and demand on body function.
If the nerves are irritated, if tissue is inflamed, some kinds of movement will cause more symptoms.
Some kinds of gentle movements, on the other hands - such as gently stretchy - really gently - BEFORE you get up might be of help. Let your body know - in advance - that you are going to soon put it into gear.
Being sure to get water in you as soon as you get up, too, so tissues can be hydrated.
While there can be various matters involved,
Are you still taking levaquin? And tindamax?
Even after stopping, levaquin can still cause some of the issues you describe. Just in case you did not see this, some of the detail here might be of help.
A week ago, June 5, you said:
You say you are taking levaquin daily. Levaquin (levofloxacin) is a fluoroquinolone antibiotic. MAJOR neurological cautions and potential damage with this classification of drug.
ALL of these issues you report can be caused by this drug: ". . . Feet, legs, arms burn and twitch. Weakness in legs at times."
I cannot emphasize enough the importance of this information:
. . . Tell your doctor if you experience serious side effects of Tindamax including fever, chills, body aches, flu symptoms, numbness, burning pain, tingly feeling . . . -
[ 06-12-2017, 05:01 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- etb,
you say: "something neurological rather than an orthopedic problem.
When the physical therapist did the initial eval and challenged my muscle groups my foot, leg and hand started moving on its own like they were possessed" (end quote)
This makes perfect sense and is very common with lyme, actually. Though it can be very frightening and off-putting.
There are just so many reasons for this from possible magnesium deficiency to just the way Bb or other infections infect the actual nerve fibers - &/or cause inflammation. It's a chain reaction and
in a way, sort of a seizure-like activity. Not seizures but if you think of how seizures work, when neuro acitivity is too much for one place, other places will spark or spasm.
If you still see a physical therapist, be certain -- absolutely certain - that they are indeed as lyme literate as possible.
Also be sure to ask your LLMD about this as there may be various explanations for your specific situation. And be sure that all tick borne infections are considered and attended to, too.
As when infection is in the nerves, electrical storms can be eratic.
Massage might be of help to lessen stress on trigger points that are "electrical" junctions to nerve pathways.
But, be sure that your LLMD suggests ANYONE who is going to work with you. Always. This matters so very much.
And, be sure that your LLMD is adequate. Are they assessing all possible tick borne infections? And with combination and rotation for long enough?
If you do other things be sure of what has direct and assertive action against each infection
and what is just support.
Be sure your magnesium is a proper KIND and dose. There are some that are better with nerves.
EMERGEN-C ELECTRO MIX Lemon-Lime -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Check all food / beverages for any "natural flavors" and be sure there is NO added glutamate / glutamic acid in anything you consume. That's neuro-exicito-toxic to those with lyme.
Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
I'm going to make two guesses here as to aspects that could be involved - for example, if you were to try taking more magnesium, you could see whether those symptoms diminish. Muscles need magnesium to function and might be stressed when you start to put a load on them.
Another suggestion - if you can locate or get a PEMF machine- that's pulsed electromagnetic frequency machine - it will increase the electromagnetic energy in all cells in your body and possibly improve your functioning.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I have those twitches when my Lyme is most uncontrolled. Used to have them all the time before treatment. My theory is that its a 100% neuro lyme symptom. Your brain is misfiring messages to your muscles. As to why it happens when you stand, my guess is takes some brain activity to get all those muscles moving at once for you to rise, so thats a likely time. Also blood flow to and from your brain changes dramatically from a lying state to a standing state
Posts: 173 | From USA | Registered: Aug 2015
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