posted
If your LLMD and/ or his/ her protocol isn't working for you, find a different LLMD. Its that simple. What aggravates a lot of us is you walking in here telling us what is or is not 'dangerous'. Reading your posts, quite frankly I can understand your LLMD getting annoyed with you, you have a lot bizarre unsupported causal leaps going on
Posts: 173 | From USA | Registered: Aug 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Christopher J makes excellent points to consider. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yeah, the intracranial pressure is no joke... and it can be impossible to distinguish an adverse antibiotic reaction from a herx in that regard.
I had to discontinue Rifampin for this very reason -- I was able to make it through the Doxy/Mino in pulsed doses, but I never could tolerate Rifampin (and I'm pretty sure I never got rid of the Bart that we suspect I have had for years.)
I've been hitting the Bart with herbs (also no joke... they can cause some serious herxing too!) -- and I think I am going to take another stab at Rifampin in a few months and see if I can tolerate it this time around, if my doc is amenable to that.
My current doc is a lot more conservative medically than my former one.... uses lower doses, fewer drugs, and more adjunct treatments (herbs, sauna, supplements, etc.)
I seem to be doing pretty well with the current regimen, but I am also nowhere NEAR as sick as I was when I went to see my first LLMD in 2005.... I believe she saved my ability to function, and very possibly my life.
At that point, I was willing to try anything at all if there was any chance it would help... I was so sick I had very little quality of life -- so I knowingly took some risks (such as going on Ketek, which was not a particularly safe drug, but it was incredibly effective for me.)
Sadly, there are no real hard-and-fast answers to how to heal us... so we make the best choices we can. Honestly, if Ketek were still available, I'd probably go on it again. The benefit outweighed the risk, in my case.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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