posted
Low dose no. Pulsing yes. Not sure what low dose means in this context. To kill bacteria by antibiotics, the concentration usually needs to be above a minimum threshold. You wouldn't want the low dose to be below that.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I used low dose herbs and it worked well for me.
I would never use antibiotics long term, but that's me. Small or high doses, no way.
Posts: 6200 | From Brussels | Registered: Oct 2007
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quote:Originally posted by BobG: Low dose no. Pulsing yes. Not sure what low dose means in this context. To kill bacteria by antibiotics, the concentration usually needs to be above a minimum threshold. You wouldn't want the low dose to be below that.
I was juts on the phone with Dr. F from MD (recommended by many people on this forum). I was told that their approach is to treat with low antibiotic dosages, pulsing, and long term. In addition to herbals, vitamins, chelation, etc depending on individual bases. I have been with the same LLMD since 2009 (Dr. J from MD), no pulsing, and I’m trying the change LLMD.... Before I commit to a new approach and spend thousand of $$$ I’d like to make an “educated” change.
Posts: 13 | From MD | Registered: Nov 2009
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posted
Sounds like nonsense to me unless the doses are standard doses commonly prescribed for the antibiotics. What is a low dose exactly and what is the rationale? If they are at the low end of the range for standard doses, then that is fine. If it is below that, what data do they have to support it?
Posts: 360 | From Massachusetts | Registered: Dec 2012
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quote:Originally posted by BobG: Sounds like nonsense to me unless the doses are standard doses commonly prescribed for the antibiotics. What is a low dose exactly and what is the rationale? If they are at the low end of the range for standard doses, then that is fine. If it is below that, what data do they have to support it?
The adm. asst. or nurse (.?!?) from Dr. F’s from MD told me over the phone that Dr. F uses “low and slow” antibiotic approach and does not follow Burrscano. Dr. F has many positive feedbacks though.... I’m trying to get a good LLMD, but with those prices of >$700 for first visit, I cannot just give it a try... Where can I read LLMD feedbacks on drug approach? for example, pulsing or not, following burrascano or not, 3 or more abx at a time o not, success rate on long term, etc... I see a list of recommended Doctors in my area....but I’m still lost...
Posts: 13 | From MD | Registered: Nov 2009
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I would trust my gut more than drs...
If your gut feeling says: "yep, I ONLY suffer from bacterial infections that can be wiped off by antibiotics, go for it."
If Burrascano only approach worked for EVERY SINGLE PERSON in this planet, there wouldn't be other options people try.
High doses of abx destroy your gut flora (no matter what people say concerning a couple of probiotics they try to take).
I would pray I only suffer from bacterial infections if I go the abx approach (because everything else will go wild: candida / yeast and viruses).
If your gut feeling says: go for it, I would just plunge and try.
Most of the people in this forum (if not 100% of us) all tried abx at first, and only moved away from it when we saw it did not exactly worked for us all.
There's the problem of stomach pains, allergies to chemicals (abx included), and also the fact that even if you take cocktails of abx for YEARS (yes, you read it right: some people has been years on abx)...
it is still not sure you'll be off lyme disease and back to life.
Loads of books, websites, stories about that. You just have to read them.
Of course, some people still profit from abx.
it's like shooting in the dark: who knows you'll get a good shot?
I wouldn't risk because I know lyme is not only about bacteria.
It's about parasitism, candida and fungal infections all over (mouth, teeth, sinuses, gut, skin, sexual organs...), and viruses (brain and nerves).
In summary, an overall microbiome imbalance, caused by immune dysfunction, allowing all these opportunistic infections to thrive ...
Maybe the trigger to disease was Borrelia, I agree. But whatever developed after the trigger, looks like an overall immune system collapse that can't be fixed easily.
In my opinion, you don't fix a microbiome problem with chemical drugs, but only a holistic approach can help.
Posts: 6200 | From Brussels | Registered: Oct 2007
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posted
Brussells, I agree a holistic approach is needed with antibiotics. They are not without their side effects obviously, but one of the benefits of pulsing (besides research indicating this may be a good approach with persisters) is your body get a break to repair. I agree other things should be pursued to help with the immune system starting with gut flora if using antibiotics. If norri goes with the approach of this Dr., norri needs to understand what low dose means exactly. To me it sounds like have your cake and eat it too approach, but would like to understand what low dose means. Norri, I recommend pulsing, but in the dosage range for antibiotics (you can find these on drugs.com) and Brussels general philosophy of supporting your system under any treatment protocol. This is a great forum to support you on your journey. Yes, it is daunting, but you can fight back to normalcy.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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posted
My LLMD does what he calls "slow and steady" approach also. Mainly one anti-biotic at a time. However, they are bacteriocidal doses that are larger than IDSA guidelines.
So far, I have had great improvements. (knock on wood)
At some point I plan to move away from the antibiotics and start herbs.
Posts: 61 | From Lees Summit, MO | Registered: Jun 2017
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
norri
To get feedback on LLMD's, join your local Lyme support group. Members will share their experiences with you. Just remember, each Doctor / Patient experience is unique. My LLMD had a few bad reviews, but I just adore her. She saved my life !
Here are some different Doctor protocols to research. What works for some Lyme patients, doesn't work for others. But you have options to fight this horrible disease.
posted
Thanks, Bartenderbonnie. I agree with the statements that higher doses are needed for the antibiotics.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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posted
I agree with bartenderbonnie that each doctor/patient experience is unique. I’m hoping for a great “match”! 👍🏻
Posts: 13 | From MD | Registered: Nov 2009
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