posted
I'm not sure if my daughter is autistic, has Lyme, bartonella, or PAN(DA)S, but I'm in the process of being diagnosed with Lyme and/or bartonella.
I gave her Culturelle (kids version) yesterday and she was okay. Right after I gave her a second dose today, she took a nap (hasn't done that in 3 years, she's almost 7). Now her throat is killing, her head hurts, one ear hurts, and her hand is numb. She's just lying on the couch, which NEVER happens. She is very sick.
Took her to urgent care, they did a strep test and it came back negative but they said it may have been contaminated. They decided, based on symptoms, that she has strep and prescribed an antibiotic.
I've called doctors...one says take the antibiotic and keep taking the probiotic. The other one says don't take either. We don't yet have a doctor who we trust with regards to these matters.
I'm scared and don't want to do the wrong thing here.
Posts: 4 | From Massachusetts | Registered: Feb 2018
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posted
What a confusing situation!! I would report it to the company when you have time to do so.
Then, buy a different brand of probiotic for her. Then .. decide whether or not to give her the antibiotic. You'll know soon on that one.
I hope she feels better soon!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- First, check the Culturelle to be certain it's not counterfeit.
Second, it's very doubtful the protibotic caused your daughter's sudden symptoms.
It does sound like strep. And strep requires very specific antibiotics. Strep can turn very dangerous, very fast.
Strep tests often fail, especially the "instant" on-site tests.
Be sure not to give her tylenol / acetaminophen for that could make it worse and make her body more likely to go into septic shock (which can happen with strep).
Acetaminophen blocks glutathione in the liver and in all the cells. Each cell, and the liver especially must be able to "breathe" so to speak, to let in nutrients and let out metabolic waste.
During some infections, the toxins from the infections drive up the CYTOKINES and can create a cytokine storm. This happens with sepsis / septic shock and can be very dangerous. Immediate hospitalization would be needed.
[Though hospitals pass out tylenol like candy and, IMO, this could be a problem. However, if you feel she might need to go to E.R. at any point, get her there and take detail from the second link below with you.]
I had strep at her age that went into scarlet fever but I don't recall much other than being packed at home with ice to get my fever down. Ice seems harsh but a cool compress and some icy clothes under the armpits might help if she has a fever.
Be sure not to give aspirin to a child for any reason. Same for Willow Bark in any herbal supplement. It can trigger Reye(s?) syndrome in kids and some adults who are ill.
The point is, though, with all empathy, I strongly urge the use of the antibiotic for strongly suspected strep, along with good nutrition that will support her liver, kidneys (ibuprofen can be very hard on kidneys) . . . . water, gentle massage and other nurturing methods might be of help.
If this is not strep, the antibiotic may not be wonderful and would need anti-candida backup but it's worth that because
if this is strep and antibiotic is not taken, this could turn very dangerous. I would sooner risk taking the antibiotic.
After the full round of the antibiotics, then a different probiotic should be explored. I never did well with Culturelle so I know it's not for everyone. Even if it has a special kind of probiotic, that may not be right for everyone. -
[ 02-24-2018, 06:55 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What anyone dealing with strep also has to know about, just in case strep turns into danger:
Doctor Turns Up Possible Treatment For Deadly Sepsis
by Richard Harris NPR | March 24, 2017 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm sorry to hear you are dealing with ill health and complexities of tick-borne "soup" . . . and, of course, that your daughter is also in such a medical fog / soup / mystery.
You say "not sure if my daughter is autistic, has Lyme, bartonella, or PAN(DA)S"
You likely already know that strep can cause PANDAS.
As you say you have no doctor up to the task at this time, might there be some parents groups near you - or on the web - who might offer more specific detail?
Best of luck. Take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
TOUCHED BY LYME: Unraveling the Lyme-autism connection
By Dorothy Kupcha Leland - March 15, 2012 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Katherine,
I imagine you are rather busy / overwhelmed. Just checking in to see if, hopefully, your daughter (any yourself) are finding the days a bit easier. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I think she could be reacting to something in the probiotic. I am very sensitive and cannot take something like culterelle bc it is a standard product with all sorts of junk in it. I would try Klaire probiotics...or something hypoallergenic
Posts: 114 | From North East | Registered: Mar 2011
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
The only probiotics that don’t make me sick are Align, VSL3, & Florastor. Generic brands are not same, can only take these brands.
Many of the other brands use some kind of prebiotic or starch. These are supposed to feed the bacteria in hopes that it will be hardier & more effective once inside your gut.
Posts: 5237 | From here | Registered: Nov 2007
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