posted
One of the many ****ty nerve sensations I get. Anyone know what infection this is? Or something else entirely? Haven't seen it talked about much. My carnitine is also low (eg, mitochondial problems). Can be between minor and moderate, to moderate. In toes, knee, fingers, other places. Also is those considered 'neuro lyme'?
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
| IP: Logged |
posted
Early on in my lyme days, going back to early 90's, when I was real sick, one of my major symptoms was what I called the "electric chills". In fact my first lyme doctor diagnosed me with lyme definitively when the doctor heard that symptom. My doctor called them the "creepy crawlers".
So I would say definitely yes that is a symptom of lyme and neurological lyme.
This symptom by and large subsided, as did other major lyme symptoms as I was effectively treated.
All these years I still have lyme. But by taking my antibiotic regimens (naturals alone have never worked for me) and naturals, I am a lot better.
So keep working with your lyme doctor to arrive at effective protocols. Usually you will need three antibiotics at once for results. But what works for one lyme patient may not work for the next. And some lyme patients, I think I have read, get better on naturals alone.
Good luck. We're all with you.
Still Winning
Posts: 55 | From Maryland | Registered: Aug 2014
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Have you had your blood glucose tested recently? -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
I just dont seem like any of these sensations totally stop. I think they may stop, but come back.
I think 3 abx at once would ruin my gut.
Yes I think so. Fasting. It was ok. Genetically, I'm supposed to have higher than normal glucose.
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- 6Hyphone:
Your reply to my question about your glucose levels is:
"Yes I think so. Fasting. It was ok. Genetically, I'm supposed to have higher than normal glucose." (end quote)
Even if "genetically, supposed to have higher than normal glucose" which I never heard of but - even if or especially if your glucose is higher than normal - high glucose triggers insulin release.
Insulin in excess can damage nerve fibers.
That can cause the kinds of sensations you describe. And, if caused by higher insulin (due to higher glucose as it usually happens) there is a specific diet that may be very helpful to reverse.
Fasting glucose tests are not that good, actually for determining insulin release in response to carb consumption.
What's more important would be a test 2 hours after you finish a typical meal.
Just because one fastomg glucose test was okay, that does not mean that you might not have insulin overload. But it's very tricky to get tested accurately in the U.S. with insurance bucking the best tests.
This might be something to talk to an doctor very experienced with diabetes and metabolic syndrome / insulin resistance. The work of
Ivor Cummins (see lectures at YouTube) - he bases much of his work on the work of Dr. Joseph Kraft and his development of the best insulin assay. Cummins' lectures are excellent.
posted
Insulin has never been a concern with any. Of my docs, regular or alternative. I'm Supposed to see a mitochondrial specialist since I'm Blocked there. As well as a sfn punch test.
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/