posted
liver going south, allergic to most of my supps, including milk thistle; going to have to go off all infection-killing supps -- colloidal silver for lyme and cos., garlic for parasites, probtiotics for candida and c. diff
I've tried to go off infection-killing supps before; first day is great as toxins clear; second day, every time, infections snap back, and I go back on the infection killing stuff again. don't have the option of doing that this time body will be overwhelmed by inflammation from infections, but alternative is having liver go south
Good sleep meds tonight, will have energy tomorrow Down to about 10 safe foods, not enough
In aftermath of getting rid of c diff have fecal transplant scheduled soon; have heard great things about them, but 25 days from now had just as well be 25 years
Tincup, if you tell me to change my mindset, I'm going to tell you to spend a day in this body
Why can't I just be and be OK? Not since I was bitten in 2003 cleaning brush out of our backyard ditch.
GVS
Posts: 242 | From durham, nc | Registered: Oct 2016
| IP: Logged |
I had more or less the same thought about 10 minutes ago. I have Babesia duncani. I've been sick since 2010. Buhner herbs have helped me a lot, but I had to stop them recently due to sudden massive stomach problems, which may or may not be related to long-term use of alcoholic tinctures.
Without these tinctures, my Babs symptoms come back with a vengeance within days, and I'm afraid of dying. With tinctures, I double over due to stomach burning and GERD.
I don't know why we can't just "be and be and be okay". I won't tell you to change your mindset. I can't help you. I'm just writing to tell you that I understand the horrible situation you're in ...
-------------------- I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ... Posts: 235 | From Europe | Registered: Jul 2012
| IP: Logged |
posted
GVS .. I've been down to fewer than 10 foods for about 5 years and am still sensitive to just about everything: salicylates, histamine, oxalates, gluten, nightshades, you name it. I'm trying to hang on to some dairy, but you know....
Just keep on keeping on. Continue to search for answers. Can you take anti-histamines or something like Pepcid? I take the combo to help my body not react so hard to everything. It really helps.
Don't give up yet!
PS .. I also take cromolyn sodium, which has been a HUGE help.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Nula: "Why can't I just be and be OK?"
I had more or less the same thought about 10 minutes ago. I have Babesia duncani. I've been sick since 2010. Buhner herbs have helped me a lot, but I had to stop them recently due to sudden massive stomach problems, which may or may not be related to long-term use of alcoholic tinctures.
Without these tinctures, my Babs symptoms come back with a vengeance within days, and I'm afraid of dying. With tinctures, I double over due to stomach burning and GERD.
I don't know why we can't just "be and be and be okay". I won't tell you to change your mindset. I can't help you. I'm just writing to tell you that I understand the horrible situation you're in ...
Not to hijack this thread, but have you tried putting the tinctures in very hot water and letting the alcohol evaporate before using them? Surely you've tried it, but if not, it might help---if the alcohol is the problem, that is.
Posts: 3792 | From around | Registered: Mar 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/