lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
I’m taking this now and having lots of swelling. Wondering if the swelling will go down when I’m off it.
Posts: 1032 | From North Carolina | Registered: Aug 2003
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi Lymewreck36:
I hope the swelling was just temporary and good luck with the Dapsone protocol. Keep us posted on how your doing with this.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
Want to bump up this post - just heard about dapsone - are you still having swelling? Anyone else with anything to report about it?
Posts: 13116 | From San Francisco | Registered: May 2006
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi Robin:
Besides Dr. Y's research with the Daptomycin, Ceftriaxone and doxycycline I believe this was the medicine protocol used by the LLMD in Hyde Park.
Daptomycin is not inexpensive.
I know my daughter has been on Doxy and Ceftriaxone (Rocephin) in the past.
I see Doxy has come back down in price from a spike a few years back.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I'm so eager to here about other people's results with Dapsone. I was so excited when I heard Dr. H speak on his successes and am hopeful that other LLMD's will follow in his path to trying it.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
Anyone else???
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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posted
I used dapsone for many months along with cef and mino. It did not help.
If Lyme is truly chimeric, it might help explain why abx helps in some, and does not in others.
That's highly speculative, though. That the dapsone protocol failed in me is not.
Interestingly, what the treatment did seem to do was convert me from IgG positive to IgM positive, so maybe it was heading in the right direction. When I stopped, I resumed being IgG positive.
Posts: 228 | From Unitied States | Registered: Jul 2015
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quote:Originally posted by lymewreck36: I’m taking this now and having lots of swelling. Wondering if the swelling will go down when I’m off it.
My anecdotal experience.
I felt great, within hours of my first dose. My head was clear my eyesight crisper.
But that was also a problem. It appears to be a potent anti inflammatory, and that inflammation, while it made me feel worse, was also keeping the illness in check.
Within a week my Babesia symptoms were much worse.
Posts: 146 | From Virginia | Registered: Mar 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Dapsone was hands down the worst drug I’ve ever taken.
I’d rather be hospitalized again for serotonin syndrome or anaphylaxis!
I’m sorry, I would not want my friends or family to try that protocol.
Also, Dapsone isn’t proven to be effective in treating Lyme. If people get better they likely had another infection, like a missing piece of the puzzle for some people.
Posts: 5237 | From here | Registered: Nov 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, why was it the worst drug?
Posts: 4681 | Registered: Oct 2000
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
From my readings I thought Dapsone is not only for the cyst form of Lyme but also for Bartonella.
We still haven't tried this for our daughter but its on the radar.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
Also, Dapsone blocks folate metabolism, according to this same author. (pg. 54)
His dapsone protocol can be found on pg. 55.
This book is well worth it's price -- only $9.99 in electronic format -- because it is very detailed and authoritative by an experienced LLMD. It covers all of the successful combination antibiotic protocols plus many herbal protocols and various combinations of both antibiotic and herbal protocols.
He also holds weekly live Q&A webinars to supplement his book. A real bargain indeed.
Posts: 4563 | From TX | Registered: Sep 2002
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