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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone else...no relief from detoxing? (Page 2)

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Author Topic: Anyone else...no relief from detoxing?
carolync
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Thanks for understanding Keebler. Keeping it simple sounds good.


Oh yes...I keep my phone out of the bedroom and turn it on airplane mode anyway at night in the house. We turn our wifi off at night for me, I'm SUPER sensitive to EMF's even my laptop...I have all kinds of protective gear to keep the vibes down on my laptop, wear protective grounded gloves, etc.


Through some of these few-month-long crashes in the past couple years when I'm REALLY bad and overly-disabled I haven't been able to touch my computer or phone for months...had my mom taking care of all my work emails, etc. Got a stylus recently so I can "touch" my phone here and there.


Just got a new pendant that supposedly keeps like 95% of the radiation/EMF's away from me. Wear that around the clock now.


Just curious... what other gentle ways have you supported your liver when you decided to switch from "detoxing" to just gentle liver support?


My genetic guy gave me a supplement called Antronex when he suspected my liver is having trouble, i think it's some bovine liver fat extract. He said it will gently 'support' your liver and in the past I did feel clearer after taking it sometimes but I suspect it might also throw me into more "detoxing" when I'm in these more fragile spots. Might try adding it back again after this long break from things....


It's the only thing else I can think of for my future "liver support plans" other than a castor oil rub here & there and some dandelion root tea. Any other ideas? I'd like to rotate things in the future when I get back to a couple supportive supplements for my liver.

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Keebler
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Bovine or porcine glandulars made me much worse. Too stimulating for me. I tried many different kinds of Standard Process formulas and just could not tolerate any with glandular / animal ingredients.

Although I do fine with NatureThroid / WP thyroid which is porcine thyroid glandular my ND supplies to me. Amour is really hard for me, though - never again - though some do better with that. It's an individual thing.

And the synthetic pharmaceutical thyroid Rx were terrible for me.


Milk Thistle is the most basic liver support. Dandelion is said by some to be a bit easier.

[This is not just regarding you / your posts.] In general, I hate to talk about all I've done as it's just exhausting.

I do not do well with long explanations or conversation dialogue usually. I speak in LINKS SETS. So when I post links, you can usually find the answers in a links set.

The key is not to pile everything on at once, too. One thing at a time. Lots of study goes before any decision, though.

Be sure to get books about lyme / coinfections by Stephen H. Buhner, a very much LL master herbalist.

and check out ILADS website for books by LLMDs. The "How to find a LL ND" thread also has books, etc. Always check for any newer editions or works, though as I don't keep my links set always up to date. Just search the author's name, etc.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
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Keebler
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Check out all the tabs here - and doctor referrals, too, for both organizations: .

www.ilads.org

ILADS


www.lymedisease.org

Lyme Disease.org


https://www.lymedisease.org/lymesci-jhu-persistent-lyme/

LYME SCI: Seeking better treatments for persistent Lyme disease

April 2019

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MannaMe
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I'm wondering if charcoal would be a good binder that doesn't otherwise cause 'detoxing'?

My husband uses charcoal & pysllium husk as a binder. He sets them out so when he wakes to go to the bathroom, he can just swallow his capsules and go right back to bed.

Taking it during the bight avoids binding any of the good stuff / meds he takes during the day.

Another thing, he's working at weaning off his anti anxiety medication. The withdrawal symptoms can be really awful. He found using cbd oil (NO THC) has been really, really helpful.

So keep that in mind for when you try getting off the klonopin.

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Brussels
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Carolyn, sorry for late response.

Yellow color = bilirubin.

How can doctors say your liver is fine if it can't even detox dead red blood cells? Same as for a friend of mine: ended up yellow-green, his eyes were so yellow, poor man.

A couple of days in hospital, the doctor tells him his liver is fine again. Tests went fine in a couple of days, how can this be possible?

I guess, we can't rely on tests....

Every person with hyper sensibility is a liver sufferer, has a burdened liver that accumulated problems since birth (even before birth, as it gets charged with the mother's toxins).

How can a couple of days, a couple of medicines / herbs / treatments deal with a life long liver problem?

Just think how many people with lyme (or other diseases) suffer from multiple allergies, extreme sensitivities, electrosmog sensitivities etc?

Many.

Think of how many people go to doctors, like you, and they tell them they have NEVER seen someone react the way you do.

Same for me. Same for my daughter. How can you react with one capsule of zinc per week in the way you do? 'I never heard about that.' Practitioners with DECADES of experience, never heard that.

This friend that got yellow is exactly the same: he's been to dozens of practitioners, they tell him the same thing: I've never seen people react like you.

I tested him energetically, he's ABSOLUTELY telling the truth, as his body practically can accept next to nothing (food-wise). A small smell of gas/ petrol can cause him a chain of bad reactions such as awful migraines, neuro problems...

I heard that so many times, that practitioners are lost, that they never heard patients like this or that.

You are certainly not alone.

Now what to do?

I don't have the whole answers either. I'm still treating myself. Fortunately all my food allergies disappeared, I think. This is for me a good sign, that I'm going somewhere ELSE than falling in a hole.

Another hint I'm going right: the last 10 years after lyme went dormant, I kept loosing weight, slowly but SURELY. I could not gain any gram, nothing, only I could keep losing weight.

Guess what? I'm almost back to my pre-lyme weight now. Only 6 months in this diet of high fruits, high veggies, high hydration, LOW FAT, LOW PROTEIN, no gluten, no eggs, no dairy, no GMO, no corn, no soya.

I can only tell you this has been a very big surprise to me. I'm still with digestive problems, but the fact that things are turning to the good side is giving me hopes I can live longer again (which was not the case until October last year).

If I kept losing weight DESPITE eating the way I was eating, I don't think I would survive more 10 years (as I was already super thin).

I think liposomal Vitamin C helped me a lot initially. I'm still on it. Then diet was the KEY changing point for me.

I don't even consider myself electro-hyper-sensitive like I have been for more than a decade!

Even that seems to be disappearing.

Since lyme, I could not sleep in one bedroom, it made me feel so sick there. It's been about 10 years I can't sleep there. Now I'm back there.

Give your liver a break. Lots of lemon, celery juice (start slow with that), cucumber juice, mango, sweet fruits, raw food (if you can). Lots of good water, coconut water.

My policy is no oil or as little as possible. Where do cows and any herbivores get their oils? From greens!

I know I'm not the majority here (as most are keto-paleo, high in fats and proteins), but sincerely, high fat and high protein is not what the liver wants.

Nor your stomach.

The best book I read in the last years is Liver Rescue. Anthony explains exactly what the liver does, how it does, how it gets blocked, how to unblock it, how to nourish it etc.

The preface is written by a medical doctor, who thanked him, because she got a better understanding of the functioning of the liver.

No MD would write a preface and stain his/her name in a book giving medical advice, if there were too many mistakes there.

Just taking the right amount of good water, lemon juice, apple juice, celery juice or even cucumber can be a great start.

My friend who was yellow did not want to follow the diet, but now is having no more option, unfortunately. He's getting problem after another, headaches, nerve pains, muscle pains, joint pains, all sorts of painful rash on his skin, problems to sleep....

I told him to try, let's see if he'll get better. His liver is perfect according to medical doctors. He's still super sensitive to foods, but working on that slowly.

I hope this gives you some hope, Carolyn.

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SSB
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I agree, you are just recirculating the toxins, you are not eliminating them (think of a snow globe). Also, if your treatment is making you herx continuously, maybe your protocol is too tough for your body right now.

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SSB

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terv
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Alka seltzer gold works great for both my son and myself. He will even ask for it..

Need the "gold". I get it on amazon.

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lightfoot
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Three gentle at home detox methods to consider: coffee enemas, oil pulling and far infra red sauna.

So sorry for your situation. Don't give up!! Hang in there!

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Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

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daisys
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I am a long ways from reading this entire thread, but did want to comment.

I have 2 blockages in my detox system. One is in the methylation part, and I take Methyl Guard for it.

The other is in the sulfuric part. The only thing I know about that is if I get a glutithione push, they put in a tiny amount of molybdenum.

What happens to me is toxins are collected into fat cells, which is what's supposed to happen. But the fat cells are not escorted into the intestines. So, I look very pregnant, and if I do anything to detox, it just adds to it.

Years ago, I was on cholestryamine twice and really lost all the fat to the point of being underweight. Now, when I try that on an empty stomach, it does nothing. Many of the protocols mentioned in this thread I have tried.

I got a rife machine recently, and am trying to find out what frequency would help with detox.

So, I just want you to know, you're not the only one wondering how to successfully detox. I will continue to read this thread, and try what I haven't tried yet. Hopefully, I'll have some good news to report back here with.

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LisaK
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I started getting (more) better after I started the infra red sauna. I have only gone a few times- 1 hour each visit- and I can tell a marked difference in my toxicity.

I believe that and at the same time I started a better diet (getting rid of oxcalates) and using Biocidin. ALSO, at the same time I have ramped up my home-made MOLD BUSTER, which is a crock pot in the basement filled with water and a large amount of tea tree oil.

That crock pot has really helped with our house mold.

I see yo ulive in NJ? I am in PA. I am giong to PM you about your dr.

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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carolync
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Thanks everyone for the encouragement and replies. Doing my best to believe in a new Lyme Dr, that she can help me crack this code. The idea of getting relief would’ve amazing.


Still waiting for my first in-person appointment. I KNOW there is something, probably multiple things affecting my detoxing...maybe mold, genetics, etc. New Dr is looking into all that but she is suspecting MCAS as a possible reason I can barely handle any treatment, detoxing, supplements, etc. She said she’s worked with people like me before and she was able to help them treat and heal.


We will see how that goes when I begin working on that with her later in the summer. I have found a few others online that had violent herxing and could not tolerate anything and had to give up treating and then learned MCAS was one reason. Sooo...hoping it could be ‘part’ of my puzzle.

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LSG Scott
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this time of year a hot attic is a great free way to detox

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LSG Scott

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Lymetoo
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Carol .. I rarely did any detoxing either. I suspect it is because I also have MCAS.

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--Lymetutu--
Opinions, not medical advice!

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carolync
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Anyone else discover their incredibly horrible time detoxing was due to MCAS?
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