posted
Is DNA connection reliable? I've been tested positive for the 3 big bs through it. I'm under the treatment of a well known Lyme doctor. I've been taken 4 strong abx for a month but don't have any reaction, good or bad. This makes me wonder if I really have Lyme. My main symptom is disabling joint pain. So confused.
Posts: 10 | From USA | Registered: Jan 2019
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posted
Yes. I've had Igenex and DNA Connexions. DNA Connexions tested and showed positive for Bartonella when Igenex didn't and I definitely have Bartonella from symptoms.
You can be one of those people who don't react or don't react right away. The way lyme and coinfections are confirmed is by a very competent lyme doctor who interviews you thoroughly. The tests can confirm but the llmd is the key.
Lyme is something that can take time as we all know. I'm sure your llmd will make changes if nothing is working.
Posts: 65 | From USA | Registered: Mar 2010
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posted
Thank you Kelly! I know it is too early to see any changes but just worries.
I tried a few abx one by one before I started this aggressive combo with this doctor, nothing did anything. That's why I'm confused. I was expecting herxing or something but nothing.
Plus I don't have much other symptom but severe joint issue so I wonder the three big Bs is really the culprit. It seems everybody test at DNA connection is positive.
Guess I need to be patient and positive
Posts: 10 | From USA | Registered: Jan 2019
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posted
My main complaint was joint pain in the knees. Besides antibiotics what helped me the most was acupuncture with electro. That really did the trick
Posts: 65 | From USA | Registered: Mar 2010
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posted
My joint pain started in knees now it's every joints. I've tried many things including acupuncture and many RA medicine with no avail that how it leads me to the Lyme test this year.
Is your knee pain resolved after Lyme treatment? What abx helped it most? I'm kind of losing my hope after so many failure.
Posts: 10 | From USA | Registered: Jan 2019
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
jzl, it started for me in my knees. It didn't take long for every joint/bone in my body to be effected.
I used to tell my doc, I feel every single bone in my hands. Everyone is different.
One month is too soon to tell if it's helping you. Not everyone has the so called horrible herxing. Could be that you are detoxing well and your liver is functioning well at removing toxic stuff.
How long have you been having knee pain? Has your doctor told you if you early, acute or chronic? You say you have no other symptoms from head to toe but joint pain?
I'm not sure how long your liver is going to be happy with taking 4 abx at one time.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Pam, thanks for sharing your experience. I see most people have neuro Lyme, not many have mainly joint pain.
I've had knee pain for a few years but suddenly it spreads to every joint a few months ago. Besides pain, there is strange tingling in the joints.
I don't have much other symptom but the all over joint pain is very severe and disabling. I know the risk of heavy abx but for me it's either to try or to die.
I know it's too soon but the no response makes me feel discouraged.
Posts: 10 | From USA | Registered: Jan 2019
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
jzl, most of the misery for folks treating this is from liver being stressed. So I highly recommend you do a search on this site and read Liver support supplements.
The second thing that makes us so ill is candida/yeast/fungi, which everyone that takes abx will have. You must treat the beast called yeast/fungi.
Detox is key. Again you can find thousands of threads from years past on here that has key info on how to detox. You seem to be detoxing now, but tomorrow everything can go downhill.
I didn't answer your question on DNA connection test. No test is 100%. But false positives is not possible here. There was DNA in you of Borrelia, Bart and Babesia (if I'm understanding your 3 Bs comment in your original post).
There are other ways to go after this besides abx. You might be one of those folks that Herbals would benefit.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Pam, that's valuable advise for liver and gut support and detoxing. I'm still leaning but try my best. Thanks again.
Posts: 10 | From USA | Registered: Jan 2019
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Do not assume that most with neuroborreliosis (or even with other tick-borne infections as well) do not also have joint pain. My neuro and joint stuff are about equal in importance. From the start.
Most people do not post about all their symptoms. And I usually never post about any of my symptoms unless sharing certain links that I found of help for others.
Or if I had the same ones someone is asking about -- but I don't then also post about all my other symptoms.
But I don't think I ever posted about my knee pain . . . just maybe about hands but that's as much joint as nerve related, too.
From what I've read - the mass market or even IDSA / CDC stuff would have it be that one either gets joint stuff or - on the most rare of rare occasions neuro stuff but not both.
Wrong. Most of the ILADS-related research and from those I know with lyme, and in my case, there is no separating that lyme most often affects the whole body. Sigh.
But many do get much better with the right treatment for their individual case load / body make-up. And, often the body parts or systems that are affected can rotate so that not everything is kaput all at the same time. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Be sure you are gluten-free for that often helps reduce inflammation / pain even if one is not a genetic celiac.
posted
Thanks Keebler! That's what my llmd said, each individual is different. I feel I'm a weird case as I don't see many having only joint issue like me. Guess I'm wrong. But the no reaction to meds still confuse me.
The links are very helpful!
Posts: 10 | From USA | Registered: Jan 2019
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posted
Lymetoo, thank you!
Posts: 10 | From USA | Registered: Jan 2019
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
JZL, not everyone tests positive thru DNA Connections. My LLNP told me that she had about 10 patients prior to me that all tested negative and she was getting worrying that the testing was no good since all of these people had classic lyme symptoms.
I didn't have any good or bad reactions to antibiotic therapy in the beginning either. The only thing that I knew was the the Mepron made me feel like I could breathe freely again.
I have been treating for nearly one year and I finally got a severe herx from Coartem recently. Please don't give up. This illness takes patience.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Kidsgotlyme, this is good info to hear. I always wonder if Lyme is really my issue when I don't respond to any meds. I'm on 3 abx plus Mepron but they do nothing. So confused. Thanks for the encouragement
Posts: 10 | From USA | Registered: Jan 2019
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posted
Thanks! I've been taken that for a couple of years and tried many other anti inflammation supplements with no help.
Posts: 10 | From USA | Registered: Jan 2019
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