posted
spoke to my llmd yesterday, not doing great on oral meds, switching them around again but she mentioned trying iv. rocephin. I am quite nervous to do this but hopefully I will get some feedback as to what you guys think of this. Has anyone done it and if so, could you please tell me about it and did it help.
thank you so much for any help.
Posts: 468 | From boston, ma | Registered: Feb 2018
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posted
That might be the best way to go! Give Scott a call, he'd have the best knowledge on that Linda!
Posts: 597 | From Massachusetts | Registered: Mar 2019
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posted
Might help! Be sure to take flagyl also so you can get the cyst form.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
_ If I recall correctly, this is the Rx that REQUIRES one also start taking BEFORE a specific Rx for Gallbladder protection.
Be sure to check on that. And also other tick-borne infections that are not affected by any antibiotic (Babesia, just one example) should be considered, too, so they can be addressed either concurrently or pulsed in between or afterward. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
thanks everyone. Right now I am going on ceftin, plaquenil, and rifampin to see if they do anything before any iv's. I am very scared to do iv treatment but will if necessary. will keep you updated.
oh I am also transfer factor too.
Posts: 468 | From boston, ma | Registered: Feb 2018
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Stay in the battle lindadanis You can do this. 💚
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
thank you all very much. Bartenderbonnie, I am honestly trying but its so hard. Everytime I take medication, I get more anxious and dizzy, I am sure this is herxing and I don't know how to handle it. My llmd never told me ugh. I believe Epson salt baths and lemon water, correct? My daughter is getting married in two weeks so very stressed out which I am sure is not helping matters.
Any info would be greatly appreciated. I just wish my dizziness/balance would get better. Somedays I cannot even drive., today was one of them. I also have terrible brain fog, ugh.
Posts: 468 | From boston, ma | Registered: Feb 2018
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posted
Another question, if I have to do IV can I do it by myself, I live alone. I think she was referring too a picc line?
Posts: 468 | From boston, ma | Registered: Feb 2018
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posted
thank you Mariel21. I appreciate your help.
Posts: 468 | From boston, ma | Registered: Feb 2018
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Avoid hot baths for many reasons. best to do, a cozy warm one, no more than 20 minutes. Be sure to inse in warm water, too - not cold as some do - cold is too much of a shock.
Also, if you have any kind of urinary or genital irriation, best to avoid all baths and go for short, just cozy warm showers. Rinse in water that is just a little cooler, but nothing that is a shock.
Epsom salts can be very, very, (did I say very) irritating to the skin, too. Never again for me. I did a lot of damage with Epsom salts baths.
If the skin on your feet is sturdy, you could soak feet in warm (not hot) water with a little epsom salts, be sure for a full rinse off. Just as much magnesium can be absorbed that way through the feet as in a full bath and it's so much kinder to the skin and tender tissues.
posted
FYI- Rocephin can be done via a push for 5 minutes instead of dripping from a bag. Very convenient as opposed to other drugs which usually require an hour.
Posts: 95 | From new york | Registered: Jan 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- With your daughter's marriage in two weeks . . . I hope you can just stop doing anything that is not necessary . . . take time and care with what is . . . schedule in REST, really.
This time is precious so it's no time to push any kind of treatment or even harsher support stuff. any support you do should (always, really) be kind, gentle and soothing.
Take in the good moments of the next couple weeks. This is what matters most. Take care. Enjoy what matters. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
thank you all very much. My daughter had lyme many years ago and I remember she could not tolerate rifampin, but don't remember why. she has been on 4 pills per day but she is starting me on all of the oral meds at once., not sure why but I won't do that. I know better.
Can you please tell me why everyone says rifampin is tough?
Posts: 468 | From boston, ma | Registered: Feb 2018
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
Just a note on my IV experience. I have had a PIC line and a port. The port is superior IMO and from my experience.
Yes, you can do the PUSH method, I did. It is a lot of medication to hit the system in 5 or 10 minutes.
Once the delivery system is installed, one can do the setup after you've had a bit of training. You can also see YouTubes on the setup process.
See this free e-book created by a Lyme patient on IV. Tips on many levels!!! I don't think it goes into having a port which can last for years when taken care of carefully. MY last one lasted over six years. https://issuu.com/lymeunderground/docs/infusingforlymies
You have probably already checked on your insurance coverage.
Enjoy the wedding!!
Good luck!!
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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