LymeNet Flash: Angioedema

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Angioedema

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Author

Topic: Angioedema

katc
LymeNet Contributor
Member # 17210

posted

Hi all,

I would like to know if severe angioedema can be caused by Lyme or other coinfections.

Trying to help a friend of a friend, whom is literally dying and no doc seems to be able to figure it out. WE all know how that is battling this.

I myself had angioedema when I took the first antiobiotic after getting Lyme, but for this woman it is constant. Hopsice is being called, she has 3 young children, so i just thought it cannot hurt to ask all of you if you know anything at all about this.

Thank you so much

[ 12-17-2021, 05:27 PM: Message edited by: katc ]

Posts: 117 | From Winston Salem NC | Registered: Sep 2008 | IP: Logged |

LisaK
Frequent Contributor (1K+ posts)
Member # 41384

posted

hi, you may want to change your topic becasue it is misspelled and you may get more answers if you fix it.
[Smile]

I think I do remember reading somewhere about lyme and angiodema. , but I cannot remmeber any details. maybe a good internet search?

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3592 | From Eastern USA | Registered: Jul 2013 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

katc

Be sure to research MAST CELL ACTIVATION SYNDROME!

Here is some info:

https://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/36299?
Lyme can cause MCAS.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

katc
LymeNet Contributor
Member # 17210

posted

Hi, thank you, I corrected !

I tried searching , could not find anything. Sometimes I wonder if good ol google doesn't block the info. I'll keep trying

Posts: 117 | From Winston Salem NC | Registered: Sep 2008 | IP: Logged |

katc
LymeNet Contributor
Member # 17210

posted

I will look at the link, thank you.

I'm certain she was checked for it, however, all the test seem to be crap. She's been to the Mayo clinic as well.

Posts: 117 | From Winston Salem NC | Registered: Sep 2008 | IP: Logged |

LisaK
Frequent Contributor (1K+ posts)
Member # 41384

posted

try duck duck go instead of google.

also try and type your search in various ways- I find that greatly helps.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3592 | From Eastern USA | Registered: Jul 2013 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by katc:
I will look at the link, thank you.

I'm certain she was checked for it, however, all the test seem to be crap. She's been to the Mayo clinic as well.

Most doctors are clueless about MCAS .. including Mayo.

Please send her the links.

Mayo will only treat Mastocytosis .. so they may have tested her for that and said, "Nope, all clear!"

MCAS and mastocytosis are treated in the same manner.

[ 12-31-2021, 04:44 PM: Message edited by: Lymetoo ]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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