posted
I got lyme in 1986, after spending a week on Prudence Island, RI. I went back to Texas, so no one knew what I had, even though I had the classic symptoms, massive bulls-eye rash, lyme meningitis, severe headaches, roving arthritis, facial palsy, etc. Was never treated, but I was a teen, so after about 2 years, my body fought it off and I didn't have symptoms any more. 20 years later, I started having kids. In each of the 3 pregnancies, an undeniable bullseye rash appeared in the 3rd trimester. Symptoms were so bad that after my 3rd child, I finally went to a Lyme literate naturopath, got tested (7 IGG bands positive WB) plus Bart+ and treated with multiple abx and herbs for 6 months. Symptoms improved.
Now DD (15) just tested positive for Lyme and Bart. She has been having debilitating musculoskeletal pain, headaches, and brain fog, etc. The symptoms seem to start just after puberty, though she has been having foot/heel pain since she was 9 years old.
It seems like so little is known about congenital lyme. My doctor had never heard any cases of bullseye rashes reappearing during pregnancy, to the extent that she suggests they were from new tick bites. But, really, a new tick bite during the 3rd trimester of 3 different pregnancies?? We live in WA state, which has some lyme, but not as much as other parts of the country.
Do any of you have experience with congenital lyme that showed up at puberty?
Thanks Red
Posts: 33 | From USA | Registered: Aug 2011
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posted
Earlier this year, the CDC released the statement that a mother can infect her unborn baby with Lyme disease.
I could have told them that more than 30 years ago.
If you haven't seen the documentary "Under Our Skin" it's worth watching, very educational.
The followup documentary(I forget its title) shows one woman's experience having a baby with chronic lyme disease.
I believe both can be found on YouTube.
It's really sad, but I'm glad that you and your daughter are going to an LLMD for treatment.
You both can get much better. It's a complicated illness, but there's a lot that can be done.
Posts: 563 | From New Mexico, USA | Registered: May 2007
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