posted
SEVERE SEVERE ANXIETY and fear right now.. I cannot calm down. I feel my future is ruined and I'm gonna lose everything.
Debilitating exhaustion. Nothing is working.im having trouble comprehending sentences now taling like I'm "special needs" and my ST memory is going.
It's getting bad driving now and I can't be around alot of ppl.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
You poor thing, you suffer so much. đź’š
Please call your LLMD asap.
You are an extreme anxiety riddled patient. There are neuropsychiatric prescriptions / benzodiazepines that can offer relief.
I know this is a very touchy subject for you with your past history of these meds. I know you know that there are side-effects and adverse reactions, especially when tapering off these meds.
Only you and your LLMD can weigh the pro’s and con’s to implementing them into your protocol
For me, Xanax saved my life. ( I always get flack for saying this from other members.) At my worst, I was hearing conversations in-between the walls of my house, seeing ghosts, people constantly calling out my name, couldn’t leave my house, lose time in a catatonic state, any kind of noise sent me into panic, and I lived alone.
I know how terrifying and debilitating anxiety is. I feel your pain, it is real.
Praying your LLMD can offer you relief. ❤️.
Posts: 2977 | From Florida | Registered: Nov 2016
| IP: Logged |
posted
Bonnie I've been on almost literally every psych drug there is, nothing ever worked. That's why all these psych docs kinda gave up on me and thought it was strange nothing worked.
Psych meds won't fix my problem. The problems will always be there. I'm on alot of meds and supplements anyway for the lyme.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Your problems won’t be fixed by psych meds due to the infectious nature of your illness. Your anxiety is a SYMPTOM, not the cause.
Please get in touch with your LLMD for interventions to ease your suffering. This is her expertise and will offer solutions to your anxiety. You need relief and this is where I would start.
Posts: 2977 | From Florida | Registered: Nov 2016
| IP: Logged |
posted
I still can't calm down. Had to just cancel plans for the weekend I cannot be around other ppl to be watched, touched or judged.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
posted
Oh Mountainsky, get your NMDA receptors to calm down! I know thats not an easy task since overstimulation causes Long Term Potentiation ( https://youtu.be/-mHgPfXHzJE ). Where basically you are training your brain to become even more sensitive to things.
The NMDA receptor is THE problem source for many psychological ailments. Lyme stimulates the production of Quinolinic acid, a potent NMDA receptor agonist. And this is where many of the lyme neuro/psych symptoms arise from.
If you do not calm that receptor down, it will get worse and worse.
If you havent researched this topic, do so now.
But perhaps even more general, if you have psych/neuro symptoms and you aren't researching the crap out of it (biological mechanisms, potential causes, remedies etc) you are doing yourself a disservice. Educate yourself! Your doctor will probably know nothing about these things anyway.
Posts: 381 | From The Netherlands | Registered: Nov 2013
| IP: Logged |
posted
My psych symptoms are irreversible. It's a big waste. It's like a traumatic brain injury. That's why I separate my self from alot of ppl. I'm too much of a disappointment and embarrassment.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
posted
There is a valid scientific reason why your brain behaves the way it behaves. And that behavior can be altered. But you have to KNOW how it works. Researching the topic will give you an explanation and tools to improve your situation. Nothing is totally irreversible. Perhaps a full cure is difficult to reach at a certain point in to a chronic illness. But improvement is definitely possible.
I know how difficult it is. I had those symptoms you describe (probably even worse, it was a total nightmare for me, i lost everything). But i educated myself where doctors could not help me. Over the years i found more and more explanations and tools to help me. And yes those tools includes things like supplements, life style choices, diet, things to avoid etc.
Like i said, if you are not willing to research the crap out of what ails you, then you are doing yourself a disservice!
So I will give you a starting point:
Look for the NMDA receptor in this picture. Then look at the NO/ONOO part. See where this is going? You could start researching the NO/ONOO cycle. There is much written about it in the context of chronic illness.
Btw, if you are interested, the picture is from a very nice extensive research paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2248324/ I wouldnt expect you to be able to read this material yet, but perhaps one day you will.
Eventually you will get a little bit of understanding of what goes wrong in your brain, and how you can start to counteract it.
I know many people say to just treat the infections, and while that is important too, ignoring your neurological functioning is a huge mistake. Your neurons control everything in your body, including your immune system. And so, without improving your neurological functioning you are probably getting nowhere.
Posts: 381 | From The Netherlands | Registered: Nov 2013
| IP: Logged |
posted
This isn't me at all. Maybe you or others on here but not me. Now this is bringing out a major panic and rage attack. I can't look at this.
The same reason why I'll never watch Under our Skin. I watched the first 2 minutes and had an attack. I said to my family if I ever saw someone on my laptop watching that documentary I'd smash my laptop. Certain things I will not do. It feels forced and I have to have control back.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
It’s gonna be ok Mountainsky.
Relax, breathing exercises, baby your body, take as much time as can for yourself, vent to us, we are here for you, one day at a time.
If I could go back, in the beginning of treatment, I wish someone would have told me that it takes a lot of time to get well and not to rush through everyday.
I’m much more calm now. You will get there.
Posts: 2977 | From Florida | Registered: Nov 2016
| IP: Logged |
posted
Unfortunately Bonnie its not. Its life sentence for some of us, so.
Breathing exercises is pointless. I don't do any of that meditation bull**** neither. I look dumb and submissive.
Getting more upset now.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
I had my genetics from 23andme sent to a naturopath from out of state so we has a phone consult. The first thing he said to me was"do you have anxiety?"
I dont process histamine. There are foods to avoid and supplements to take but I dont follow through like I should.
Strangely antihistamines make me wired.
Posts: 1297 | From USA | Registered: Dec 2002
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
quote:Originally posted by Mountainsky: My psych symptoms are irreversible. It's a big waste. It's like a traumatic brain injury. That's why I separate my self from alot of ppl. I'm too much of a disappointment and embarrassment.
Potentially not. Real Food Rebel had major psych symptoms for decades which reversed once she changed her diet and did heavy Lyme / Parasite protocols with herbs. Here is her story: https://realfoodrebel.com/my-story/
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/