LymeNet Flash: Bleeding near my retinas

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Bleeding near my retinas

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Topic: Bleeding near my retinas

orrn71
Member
Member # 50137

posted

I tried using the search and can't seem info I'm looking for.

I have been treating LD and coinfections on and off for almost 20 years now.

It has gotten to the point that I cannot leave my house or do much for myself.

I have been diabetic for like 15 years and have never been able to get my blood sugars under control.

I can be 45 in the AM and 445 in the afternoon. My diet is not perfect, but not bad enough for those sugars.

I take a ton of insulin also. A few months ago I noticed some really blurry, dark hair like things in the vision of my left eye.

After a few weeks I had a big dark red spot in my right eye.

I made an appointment with the eye doctor and he said I have bleeding by my retinas in both eyes.

He said it was from my diabetes which I knew and wanted to do laser treatments right away.

I have had 2 sessions done. Not very fun at all. Then I look up about bart and the symptoms that it causes.

It is the exact thing that I have. It says with bart treatment it can sometimes be reversed.

Ever since the treatments my head has been killing me. My eyes hurt and are watery and get crusted a little.

They are extremely bloodshot and are just so uncomfortable.

I am supposed to go Monday and get them checked(it's been close to 2 weeks) and maybe

another laser session which I am not looking forward to AT ALL.

Since they are still so uncomfortable and I can't get rid of this headache. I can't even sleep.

I am very afraid to have another session done. Could bart be flaring up there from the laser treatments?

He is also talking about injections and more lasering.

When I just had the left eye floaters I researched and found that you could use MSM drops to help

with floaters, so I used them for like 3 days in both eyes and then had the bleed in my right eye.

I am wondering if using those drops kicked the bart in and made my eyes bleed.

I don't know whether to wait and see if treating bart will help or just go ahead with all this.

I started cryptolepsis today, but have to ramp up. I just don't want to have all this done to my eyes

if there is a chance it could get a bit better treating bart.

This is causing scar tissue of course. He is lasering all the new little blood vessels back there.

I am so unsure of what to do. The injections they do are either steroids or chemo drugs.

I don't want either of those in my eyes. Your body will absorb blood eventually.

I could get a retinal tear is the issue. I know that is what he's trying to avoid, but if this is

caused by bart I wonder if it will act the same way.

I know people lose their vision with bart also, but...

Any thoughts, information or opinions would be greatly appreciated.

Thank you!

I tried to break this up since it's so long. I hope I did it right.

Posts: 38 | From Colorado | Registered: Apr 2017 | IP: Logged |

orrn71
Member
Member # 50137

posted

I used to come here and get all kinds of help and if someone couldn't help at least they we3r3e supportive.

Every time I post recently I do not get even one comment.

What has happened to this place? It makes me sad.

Posts: 38 | From Colorado | Registered: Apr 2017 | IP: Logged |

hiker53
Frequent Contributor (5K+ posts)
Member # 6046

posted

Sorry orrn71 that you are not getting comments.

I don’t know anything about Bart and eye issues but understand wanting to save the retina and prevent a tear.

I would not be able to handle shots in the eye. The one steroid shot I had in my shoulder set me back a bit, so I avoid steroids.

Will pray for you.
[group hug]

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 8885 | From Illinois | Registered: Aug 2004 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

There just aren't many people who post on LN anymore. Very few of us left.

I apologize for not replying before, but I don't know anything about bart either. I didn't know it could affect the eyes.

I pray that you find a solution.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Sorry orrn71

I can only offer some links that might help you.

You can try calling The Padua Institute of Vision Rehabilitation in Connecticut. They specialize in the Neuro aspect of vision disability in Lyme disease, as well as brain injuries. Maybe they could give you a referral or advice?

https://padulainstitute.com/lyme-disease-visual-processing/video-neuro-optometric-solutions-for-tick-borne-illness-an-interview-with-dr-bill-padula/

I also found these links all pertaining to Tick Born Infections and eye involvement;

https://danielcameronmd.com/eye-problems-lyme-disease/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5398737/

https://www.reviewofoptometry.com/article/the-bugs-behind-infectious-retinitis/

Hope you find your way to some answers.

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Also, please join “Breaking Down Bartonella” Facebook group.
I believe they could help you.

https://www.facebook.com/groups/1104493829902071/

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

orrn71
Member
Member # 50137

posted

Thank you very much for your responses! I was seriously thinking it was just me.

It is too bad that there is not more activity on here like there used to be.

This place and it's people were an invaluable place to come for questions and information.

I didn't comment daily, but read a lot of posts and used the search engine quite a bit.

I knew when I really needed help I could always come here and get good information.

Take care all! I will still always check in to see what's going on here.

Thanks again Hiker53, Lymetoo and Bartenderbonnie!

Hope you are all doing well!

Posts: 38 | From Colorado | Registered: Apr 2017 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I know, orrn. It's sad. Everybody went to Facebook, basically.

Old habits die hard for me. This place gave me so much and I just feel compelled to return the favor.

I hope you can get the help you need.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

orrn71
Member
Member # 50137

posted

Thanks Lymetoo! Hope you are doing well!

Posts: 38 | From Colorado | Registered: Apr 2017 | IP: Logged |

Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

posted

orrn,

I don't know if you are checking back here---likely not.

I have the blood vessels growing under my retina, but not due to diabetes. The retinologist said, "You need to see your rheumatologist!" I never wanted one, but I need to go back on treatment.

Please, please do not take this lightly or only try to beat it with treating Bart!! You can lose your eyesight. I think Lyme can cause it, also.

I had to have a shot in the eye in February, and again 2 weeks ago!! It's quite serious. You need to pull out all the stops, get it checked regularly, get the treatment (usually it's a shot (not steroids), and get all the help you can to stabilize your blood sugar. And treat the infections: Lyme and Bart.

Sadly, you probably won't see this.

Posts: 3771 | From around | Registered: Mar 2008 | IP: Logged |

orrn71
Member
Member # 50137

posted

Thank you Rumigirl! The shot they use is chemotherapy or steroids.

So if it's not steroids they're using it's the chemotherapy one.

Those are the only two they have. There are only 3 different medications for this and all three have one or the other.

Did you have to do the laser treatments? I have had 2 sessions and been so sick.

I just think that any time our body has any stress that the infections get a chance to rise.

I am only treating bart and lyme with herbal supplements, but am still ramping up and don't

know if it is enough to combat these eyes issues, not to mention I have diabetes that is not controlled due to bart.

I am definitely not taking this lightly, but I don't want to make it worse by not doing the right thing.

Thank you for replying to my post and sharing your experience.

Posts: 38 | From Colorado | Registered: Apr 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

I am so sorry you are going through this. I found a very good article about Bartonella & the Eyes:

https://www.galaxydx.com/bartonella-and-the-eyes/

PM sent with some names of good LLMDs in CO as well as names of LL Ophthalmologists (not in CO, unfortunately).

You could also contact the CO Lyme Support Groups. Maybe they could help you.

https://whatislyme.com/lyme-in-colorado/

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Also found 4 case studies of Bartonella patients with flame shape hemorrhages of retina and diabetes:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4128839/

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

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