posted
Since my tick bite (2006), I’ve had my first ever uti and frequent UTI’s with workups that reported a few casts but a ‘sterile’ infection. I’m 63 years old now, and am having problems getting the treatment I need. Just recently had 2 weeks worth of macrobid which didn't touch the infection, a culture, and 5 days of Cipro. What I need is twice a day for a week to ten days, but you know doctors, they think my tendons may get destroyed with Ciproflaxin. My uti signs are being ignored and I’m being under treated. I won’t take Keflex-severe diarrhea no matter what probiotic I take. This is an e. Coli infection. Anyone have help with a bidet toilet seat, or am I doomed?
Posts: 482 | From Oregon | Registered: Feb 2011
| IP: Logged |
posted
My solution for the past 15 years has been daily or twice daily capsules of D-Mannose. You can take them every two hours during an infection.
I'm not quite understanding the "sterile" infection part. Please enlighten me.
Taking Cipro and those drugs in its family is very dangerous. At least it was for me. I will NEVER take them again. That is why I take D-Mannose 'religiously.'
Cipro can do far more damage than just to tendons. Many patients on the mast cell sites (MCAS) say that their horror story began with Cipro or Levaquin, et al.
Are you having a lot of pain??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Few suggestions
With other treatments available, seriously think about taking Cipro. It is a dangerous drug.
In office testing misses a lot. Cultures are better especially if retrieved directly from INSIDE the bladder. This is done prior to urethra installations.
I have had success with catheter installation, done in office, once a week for a month, then once every 2 weeks for a month, then monthly as needed. It was a combination of gentamicin, heparin and lidocaine.
My LLMD said DMSO installations work the best but I had a hard time finding a practitioner who used this.
Lyme biofilms LOVE the bladder. But each layer of biofilm contain different organisms. Each one must be addressed.
posted
Have you looked into oxalates? While I haven't had UTI issues a lot of people with oxalates have UTI symptoms without culturing positive for a bacteria. Rather oxalates are their issues. (there are also people with UTI's)
If you are on FB there is a Trying Low Oxalate group, Also they are now on youtube - Wizards of Ox. They have a ton of stuff on there. I saw a video entitled "Questions from the (TLO) Queue on UTIs and ferritin"
Posts: 833 | From Somewhere | Registered: Nov 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic