posted
Oh can we ever identify with her story!!!!!!! Sounds like a copy of what my son went through and is still going through for twenty five years now !! Myriads of diagnoses upon diagnoses including the classic one, "It's all in his head!"
An in-law on my hubby's side actually said, "It's all BS (his words, not mine!)!"
Took six years just to get a diagnosis and after years and years of all sorts of treatments and supplementation, IVs, etc., etc., he just tested high for two strains of Babesia and three of Bart (and no, he was NOT bitten again)! Not surprising he can't get rid of the chronic pain, fatigue, irregular sleep, and short-term memory problems!!
So, YES, we advocate for his - and our own healthcare - because of this and continue to do so. The picture says it all for my son with the bruised left-side of face and the comment ("Chronic illness may not look sick on the outside, but inside if you could only see the battle going on.").
Posts: 9020 | From Illinois | Registered: May 2006
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Thanks for posting hiker. I will NEVER understand how the medical community failed us. We need to be treated like any other patient who needs medical interventions, not be dismissed. We pray everyday to get well!
Hopingandpraying, my heart breaks for your son and your family. If only we could wish this nightmare away.
Currently I have a mattress with a huge crater in the middle from laying in it. And after 10 years of my journey, I still have 7 doctors and an iv nurse yet continue to struggle every damn day.
Posts: 3217 | From Florida | Registered: Nov 2016
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posted
Thanks for the post hiker53 - it really speaks volumes!
Thanks also BBonnie for your comforting words and I wish the same for you and everyone. You certainly have a lot to deal with also!
Posts: 9020 | From Illinois | Registered: May 2006
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posted
wow thanks for sharing, Elizabeth has so much strength and courage, she is incredible!
bartender bonnie, what are each of your doctors for? and what IV's do you get? I'm considering doing a course so then I can do my own nutritional IVS at home
Posts: 80 | From UK | Registered: Mar 2024
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
So glad you joined LymeNet nature24 💚
LymeNet is the #1 LymeNet website that archives Lyme patient’s first-hand experiences, since 1994. We are all advocates and help others to navigate this horrible disease.
My providers;
Hematologist/ Thrombocytosis
Neuro/ Neuroborrellosis
Gastroenterologist/ GERD/ Diverticulitis
Urologist/ IC Bladder
Pain Management/ Chronic Pain Syndrome
ENT/ Chronic Sinusitis $ Vertigo
Immunologist/ Primary Immune Disorder
(nurse administers iv immunotherapy monthly)
LLMD/ unable to continue due to financials, treating myself.
Dentist/ lots of problems with teeth breaking last year
Primary/ Monitors overall health
It’s hard being me, hee hee. Stay In The Battle. Never Give Up 💚
Posts: 3217 | From Florida | Registered: Nov 2016
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posted
hi bartender bonnie, thank you for your kind words and sharing that information. I'm sorry you are going through all of that, surprising to me is that I have been going through similar regarding the various diagnosis' illnesses' and multiple different types of medical professionals. sending best wishes
Posts: 80 | From UK | Registered: Mar 2024
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posted
nature24 - so sorry you are going through so much.
Would you please enable private messages in your profile? I wanted to send you some information for the UK.
Posts: 9020 | From Illinois | Registered: May 2006
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!! Myriads of diagnoses upon diagnoses including the classic one, "It's all in his head!"
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