posted
If someone had chronic Lyme but was abx free for 10 years with manageable symptoms and new tick bites and a Bull's Eye and they were on Doxy for 5 days so far with the Bull's Eye clearing with Doxy and Cat's Claw poultice on leg overnight
...and if they felt it harder and harder to take the Doxy and then vomited the Doxy up on Day 6 in the morning and also had a stomach problem a year ago (due to stress) that had resolved,
...and if they wanted to stop the Doxy and wait for an LLMD appointment next Thursday, what would your personal (non-professional) opinion about all that be?
Some kind words for the patient much appreciated, as always.
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I am not a medical doctor so please don’t take this as medical advice 😀
You might be familiar with this. Dr Joesph Burrascano’s Lyme Diagnostic Guide (page 13 for Lyme Borrelia treatment) It is supported by ILADS (International Lyme and Associated Disease Society.
“ Otoba parvifolia extract and Cat's Claw are supplements that reach all forms of Lyme inside and outside of cells. Because these herbs are dosed using drops, they are more easily regulated to manage a die-off reaction by not increasing the dose until the reaction lessens.
Likewise, in my experience, any oral antibiotic combination works as well as the Otoba parvifolia extract and Cat's Claw combination, which is 85-90 percent of the time.
Doxycycline or clarithromycin treat the spirochete. They also treat Lyme in and out of cells.
Rifampin, rifabutin, tinidazole, and grapefruit seed extract treat the cyst form.”
“More recent lab experiments show CRYPTOLEPIS and JAPANESE KNOTWEED are effective at killing growing and persister Borrelia and Bartonella.”
This is what my LLMD prescribed for me when I was in treatment and I take to this day. My sweats from Babesia were gone in one week!
posted
Amoxycillin also treats Lyme as does zithromax.
My tummy could never handle doxy.
I wasn't diagnosed for over 18 months so probably too late for antibiotics to really work for me, but I took: amoxy, zithromax, bicillin, flagyl, tindazole, minocycline etc. Not all at the same time, though.
I take a tiny amount of Japanese Knotweed, Cryptolepis, and Teasel now. I have not noticed a difference like Bartenderbonnie, but I do not have babesia or bartonella.
I use herbs from Woodland Essence. They are tinctures so easy for me to control the number of drops I put in water. I am not advertising for this company. Just saying that I like the drops versus capsules.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10210 | From Illinois | Registered: Aug 2004
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I got lost in Phoiph's thread on mHBOT. Phew - a lot of discussion there. Losts of expense.
It is so hard as we all have different circumstances (stress levels), immune systems, co-infections, strains, treatment histories, personal tolerances for treatments and costs, and ultimately paths to healing, until someone finds the magic bullet, which we all hope for, of course.
Someone found a polio vaccine. There is hope!
Until then, thanks so much for your help!!!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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quote:Originally posted by hiker53: Amoxycillin also treats Lyme as does zithromax.
My tummy could never handle doxy.
I wasn't diagnosed for over 18 months so probably too late for antibiotics to really work for me, but I took: amoxy, zithromax, bicillin, flagyl, tindazole, minocycline etc. Not all at the same time, though.
I take a tiny amount of Japanese Knotweed, Cryptolepis, and Teasel now. I have not noticed a difference like Bartenderbonnie, but I do not have babesia or bartonella.
I use herbs from Woodland Essence. They are tinctures so easy for me to control the number of drops I put in water. I am not advertising for this company. Just saying that I like the drops versus capsules.
Ah, ok, you, too - with the Doxy - I have been on Mino before but thought it was very similar and made me very sick as well. Better to get past blood/brain barrier, I thought, so very good for that.
Yes, Woodland Essence is what Julie McIntire (Stephen Buhner's life partner) recommended for me back when I had the privilege of working with her. She retired.
Getting older, I am less and less open to taking "stuff". Even herbals can be hard on the liver, etc.
Dunno.
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Harmony, I am glad you started reading the thread on mild hyperbaric oxygen treatment. I am one that has benefitted greatly from having a chamber in my home. As have other family members. For us, it was worth the expense (in the long run cheaper than paying a Lyme doc for years). Our home will never be without a chamber, if I can help it.
But in the meantime, it seems like you have a new infection that needs to addressing. I could never take Doxycycline for years. Now I can, if I take it with a tablespoon of peanut butter. It must coat my stomach. I mentioned this in another thread but just in case you don't see it. You may find that it is helpful.
Posts: 1856 | From Maine | Registered: Jun 2004
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I think I can take it with food - was just trying to be a super-hero and take it on an empty stomach and my stomach handed it back to me.
Some forms (maybe all) absorb better on an empty stomach, and the dose is so low what they prescribed, so I tried it but the dose in the trash can is even lower, so I have to take it with food.
Mino has made me sick just the same in the past - it crosses the blood/brain barrier better, though, and you still have to stay out of the sun - ask me how I know....
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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posted
I feel like in the movie "Independence Day" when the scientist is giddy when the aliens arrive and "all the little gismos in the spaceship they had in the lab turned back on"
With the Doxy - all the little gismos in my body are triggered again - I put a chair in the kitchen and my cell phone - so I can try to land on the chair on the way down and call for help on the phone if I need to - I used to have vertigo with Babs - not in a while, though
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Oh my, Harmony! Empty stomach? You are a trooper! I wouldn't make it passed one dose never mind 6 days!
You need to avoid dairy for 2 hours, because the calcium binds with the Doxy. Otherwise, take it on a full stomach with the peanut butter. I hope you find that much more tolerable.
You may find a few days of Pepcid complete will help heal your stomach. It helps mine, but I try not to do more than a few days.
Posts: 1856 | From Maine | Registered: Jun 2004
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quote:Originally posted by kgg: Oh my, Harmony! Empty stomach? You are a trooper! I wouldn't make it passed one dose never mind 6 days!
You need to avoid dairy for 2 hours, because the calcium binds with the Doxy. Otherwise, take it on a full stomach with the peanut butter. I hope you find that much more tolerable.
You may find a few days of Pepcid complete will help heal your stomach. It helps mine, but I try not to do more than a few days.
Thanks, kgg!
I am on a vegan diet at the moment, so is dairy is not an issue
Yeah, I try not to mess with my stomach acid if I can help it - sigh - maybe it's ok but I feel like we often interfere to help one thing and create another problem
I think it is ok now, with food
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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Let us know how you like the new LLMD you are seeing this week! And what she prescribes or tests you for.
I am sure I will be on to share and ask questions
Thanks for caring!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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posted
Hm, do you have an opinion on Doxy in capsule versus pill form?
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Harmony, a very long time ago, I knew of a type of Doxy that did not cause as much stomach upset. Supposedly. But with my stomach it did not matter.
I do not think it matters whether it is in pill form or capsule. My son has a corn allergy. And many pills have corn starch in them. For me, I am gluten free. Many tablet forms of medication also have gluten in them. So I look for those two items listed in the ingredients. Other than that, I would not be concerned what form it is.
Posts: 1856 | From Maine | Registered: Jun 2004
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quote:Originally posted by kgg: Harmony, a very long time ago, I knew of a type of Doxy that did not cause as much stomach upset. Supposedly. But with my stomach it did not matter.
I do not think it matters whether it is in pill form or capsule. My son has a corn allergy. And many pills have corn starch in them. For me, I am gluten free. Many tablet forms of medication also have gluten in them. So I look for those two items listed in the ingredients. Other than that, I would not be concerned what form it is.
Ok, thanks so much!
I forgot there are different forms. This helps!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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