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» LymeNet Flash » Questions and Discussion » Medical Questions » Camp A and Camp B

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Author Topic: Camp A and Camp B
Tincup
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EDITING NOTE-

This was a rough draft and I have since rewritten the article. It is much longer though.... so I will leave this shorter version here.

If you would like to see the entire article.. please go to the site below.
http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

CAMP A and CAMP B

The Lyme Disease Controversy

People who are stricken with Lyme disease are not only faced with a serious infectious
disease, they may easily become distressed over the political predicament they are facing
when attempting to find treatment. Little do these people know that once they were bitten by a tiny infected tick, they would be bitten a second time by a group of practitioners who
once swore an oath to, 'first, do no harm'.

Since day one, a controversy has been brewing in the world of Lyme, pitting doctors
against doctors, labs against labs, and insurance companies against anyone they may have to reimburse. Lyme patients have literally been hung out to dry by this group of so-called professionals, without proper testing, a definitive diagnosis, or a proper treatment protocol. A patient who falls prey to a doctor on the wrong side of the Lyme fence eventually learns these so-called healers do not have the patients best interest at heart. Instead, some doctors are being lead around by the nose and are following whoever happens to be signing their paychecks at any given point in time.

A dwindling group of these callous medical professionals are causing growing numbers
of patients to become chronically ill and disabled by ignoring obvious Lyme symptoms,
disputing test results from experienced labs, and prescribing drugs to mask symptoms, as
opposed to addressing Lyme as an active infectious disease. These doctors have been
quick to talk the talk to any unsuspecting passer-by or colleague, but not walk the walk
with their patients down the road to recovery. Concrete evidence continues to surface
proving these dinosaurs' original theories obsolete, however, they stick by their guns in
an attempt to save their declining reputations and almighty pocket books.

As the talkers (Camp A) cut corners and devise new schemes to prevent going down with
the ship, the front-line physicians (Camp B) who are treating the devastated Lyme
patients are saddled with increasing numbers of extremely ill people who shouldn?t have
ended up in that leaky boat. For the sake of the almighty dollar, the floundering medical
misfits in Camp A have allowed the Lyme controversy to drag on for over 20 years.
While patients in their hands needlessly suffer and go untreated, Camp A dismisses any
research that contradicts their original asinine conclusions.

Camp A reports Lyme disease is, "over diagnosed and over treated". They have
concluded that if someone is bitten by a deer tick they should 'wait and see' if the
organisms disseminate and cause symptoms before addressing the situation. They ignore
research that has proven the Lyme spirochetes can travel to the spinal fluid within days
and time is of the essence if treatment is to have a chance. Camp A requires Lyme
patients to prove there was a deer tick bite in conjunction with a typical 'bulls-eye rash', and be positive on two different blood tests before being treated. Research has shown that less than 50 percent of patients with Lyme recall a tick bite and less than 50 percent develop a rash. The standard lab tests used by Camp A misses as many as 80 percent of those who actually have Lyme and are notorious for inaccurate results.

Members of Camp A blatantly ignore the warnings by the CDC, FDA, International Lyme
and Associated Diseases Society, Lyme Disease Association, and many other prominent
organizations that agree a negative test should never be used to rule out Lyme. Camp A
insists that Lyme disease, a systemic infection that can attack multiple organs or systems at random, fit in a nice neat box and conform to antiquated lab standards devised over a decade ago. Then, they claim, and only then, should Lyme disease be considered a
possible cause for investigation.

Camp A believes that patients who remain ill or relapse after short term treatment must
not have had Lyme disease originally and were misdiagnosed. These patients, many who
not only have active or chronic Lyme but one or more active co-infections, are often told
they are faking or malingering and are ordered to go back to their normal routines
and/or get more exercise. Increasing numbers of these patients are prescribed psychiatric
drugs and are told to accept the fact that nothing is physically wrong with them. To
compound the problems, Lyme patients often must endure a multitude of invasive tests
which are intended to try and rule out an obvious case of Lyme (the "anything but Lyme
syndrome"). As time progresses and the infections become worse, patients are often
misdiagnosed with chronic fatigue syndrome, ALS, MS, arthritis, depression,
Fibromyalgia, lupus, or a combination of conditions instead of the true tick borne
infections that remain active in their body.

Years ago, Camp A first speculated that antibiotics would not work on patients with
Lyme disease, therefore, many patients were not treated. Concerned front line physicians
discovered no research proving that assumption and discovered they could successfully
treat the growing numbers of serious ill Lyme patients with antibiotics. Camp A, walking
about with egg on their face at that point, dilly-dallied about until they were eventually
forced to jump on the band wagon and declare, yes, a short course of antibiotics would
cure Lyme disease. As Lyme patients began returning to doctors waiting rooms when
short courses of antibiotics failed, retreatment or longer courses of antibiotics were found to help these patients recover. After a good deal of foot dragging, Camp A eventually admitted they too were successful when extending treatment courses, and admitted that retreating patients who remained ill might, on a rare occasion, be necessary.

For a number of years, Camp A's wavering and ineffectual protocols adversely affected
thousands of patients and their families. In turn, countless numbers of patients
suffered from chronic Lyme infections, often resulting in permanent damage and/or
death. In desperation, patients searched world wide for physicians who would help them
properly address their ongoing infections and multiple symptoms. As the number of
Lyme cases increased across the country and some patients were able to see positive
results with proper treatment, Camp A came under fire from newly formed Lyme
organizations and front line physicians who had documented proof that the infectious
organisms often survive after short term treatment. The mounting evidence gathered
concluded that long term treatment resulted in more successful outcomes for many
patients. They noted that it was not only necessary to treat the chronically ill, but it was the humane thing to do.

Camp A doctors dug in their heels as when they discovered physicians in other areas had
proven them wrong again. The good news that patients could improve with longer
courses of treatment fell on deaf ears. It wasn?t until Camp A discovered more money
could be funneled their way by developing a vaccine to prevent Lyme that they actually
changed their views and suddenly admitted Lyme was indeed a devastating and
debilitating illness. Camp A suddenly flip flopped and abandoned their original claims
of "no big deal" as they promoted their recently developed vaccine that would save the
world from a horrible disease.

Television and newspaper advertisements began promoting Camp A's new vaccine and
Lyme disease quickly became a household word. Some members in Camp A, no doubt
with an eye on their precious bank accounts, also found time to promote their newly
developed lab tests, claiming a quicker and more accurate result. As Camp A raced to
file patents and collect on their inventions, they padded the medical journals with their
detailed reports about the unremitting consequences and serious nature of Lyme disease. Finally feeling they were back on top of the Lyme world, they convinced the CDC, major university hospitals, and unsuspecting physicians to promote their vaccine. Little did they realize, while in their haste to line their pockets, their apple cart was preparing to topple once again.

After reports of serious problems surfaced, the FDA issued warnings about certain Lyme
disease tests and cautioned physicians and the public not to rely solely on these tests
when diagnosing Lyme disease. To make matters worse, the new vaccine that was once
thought to be Camp A?s ticket to fame and fortune, quickly blew up in their faces after
1,000 plus adverse event reports (complaints) were filed with the FDA. The lab tests and
the vaccine, which many in Camp A considered to be their proverbial ship coming in,
suddenly sank. Legal actions and multiple lawsuits threatened Camp A's reputation and
livelihood. As panic set in and the sparks began to fly in Camp A, internal battles over
money, positions, job benefits, and stocks ensued. As the fires raged, there was a serious parting of the ways between some of the members of Camp A's former good old boy
network. One after another, Camp A associates put their tails between their legs and
scattered near and far, while back in the kitchen the fires were burning out of control.

Lyme patients, realizing the atrocities they had been subjected to, were filing complaints
and initiating legal actions against Camp A doctors and the brown-nosing insurance
companies. Many patients had become permanently disabled or had lost family members as a result of Camp A's inattentive response to their illness and quest for the almighty dollar. The patients believed the very ones they had trusted and paid dearly to help them regain their health, had knowingly caused them irreversible harm. Certain Camp A
members were accused of failing to diagnose or properly treat serious infectious diseases
and the courts agreed. Compensation in the millions of dollars were awarded to disabled
victims as a result of legal actions. Attorneys, on behalf of patients who died or reported serious complications from the vaccine, also filed lawsuits against Camp A members.

Floating up the creek without a paddle, Camp A was forced, once again, to flip flop their
position in an attempt to save their rear ends. They began the "cover your rump"
campaign which consisted of shouting to anyone who would listen, true or not, that Lyme
was, once again, "over diagnosed and over treated". Having backed themselves in a
corner, Camp A tried to convince the public that patients suffered more from
"Lyme anxiety" instead of a serious infectious disease that could disable or kill them.

Camp A tried to convince other physicians and patients that positive tests for Lyme were
often false positives and labs that specialized in detecting tick borne diseases were faulty for one reason or another. They buddied up with insurance companies who were
delighted to discuss any dollar saving tactics that were hidden up the sleeves of Camp A
leaders. Camp A doctors went so far as to claim that people with Lyme were not actively
infected and often not physically ill but instead they suffered from a mental disorder
called, "antibiotic seeking behavior". This bad publicity allowed insurance companies to
sneak in and develop guidelines that would reduce the length of time (and money)
needed to treat Lyme patients for active infections. Camp A doctors with a dwindling
patient load spent their spare time in court testifying against Lyme patients. Some, who
obviously had high opinions of themselves and too much time on their hands, testified
against front line physicians who had been successfully treating chronically ill Lyme
patients, in an attempt to discredit them in the public's eye.

In order to gain credibility, Camp A doctors also granted press interviews and
sparked a miniature media frenzy around themselves. To insure their views concerning
Lyme would be taken seriously, some Camp A doctors announced they actually needed
body guards to protect them from Lyme patients who didn't really have Lyme, but some
sort of mental illness instead. The literature coming from Camp A once again promoted the false assumption that the treatment time required to cure Lyme should be shortened dramatically and in turn, their new best friends, the insurance companies, placed them high on their pedestals.

In an attempt to boost their credibility, Camp A members continued to published even more
papers. Evidently, their attempts to mislead other physicians and the public failed
miserably and they resorted to using themselves as their own references in these reports. As the self promotion of Camp A doctors became unbearable, hundreds of chronically sick and disabled patients from across the county gathered together and peacefully protested Camp A meetings. Adding insult to injury, some of the world's leading tick borne disease specialists walked out of a Camp A conference in NY City in protest, with one doctor claiming the Camp A conference was spewing nothing more than hog wash.

Camp A deserves some credit for coming close to being successful in one arena. Flip
flopping about over the years has allowed them to have nearly completed a full circle in
their little world of Lyme disease. Some of their most recently published articles claims
that only ONE dose of Doxycycline is needed to prevent Lyme disease, and oh what a
magic pill it must be, indeed! Perhaps if Camp A continues on their stroll backwards
through time, anyone with a tick bite may soon be able to simply click their heels
together and wish away any serious infectious disease. Considering the fact Lyme
disease currently costs society over a billion dollars a year and can ultimately destroy the
lives of hundreds of thousands of people, this should be considered a true miracle.

In the meantime...

Camp B, unfortunately growing larger by the day, disagrees wholeheartedly with Camp A
on many points. Camp B knows through personal experience and scientific research that Lyme
disease can be a complicated infectious disease that destroys lives and at the least
requires prompt, intense, and aggressive treatment in order to have a better chance at a successful outcome. With so many people originally following the misguided lead of
Camp A doctors, Lyme disease web sites now are booming and receive approximately
one half of a million hits a month from patients in need of assistance with tick borne
diseases. Hundreds of new Lyme education and support groups have formed across the
country and the leaders report being overwhelmed by the growing numbers of terribly ill patients they see who were booted out of Camp A offices while still actively infected
with tick borne diseases. Telephone hot lines dedicated to providing information for
people with Lyme disease respond to over 100,000 calls a year and membership in Lyme
organizations has reached approximately 200,000.

As the public demands to know more, numerous articles and books are being published
on how to deal with Lyme disease and co-infections. While Camp A sucks up available grant money to try and support their antiquated notions, private groups across the country are holding dinners, dances, walk-a-thon's and other fund raisers and are donating money for the serious help needed with Lyme disease research.

The Camp B physicians on the front lines are increasingly overwhelmed with the
numbers of new cases of tick borne disease patients showing up in the United States.
Many of their patients come to them already severely and chronically ill after following
the outdated protocols and recommendations of Camp A. As the diseases within them
take a stronger hold, patients are suffering and dying from a disease reported to be "easily cured and easily treated" by Camp A followers.

Unfortunately, most of us know people in Camp B who have suffered from tick borne
illnesses. Documented research over the past twenty five years, along with biopsy and
autopsy reports, countless medical documents, and bacteria cultured from patients tissues
after treatment, has proven beyond a doubt that Lyme is a complex infection that can
remain active and destructive after treatment. In addition, Lyme may be complicated by
other tick borne infections, yet Camp A followers continue to promote their flawed
reasoning and protocols.

Members of Camp B have learned the hard way that Lyme is not, over diagnosed,
over treated, or easily cured. Many patients who were ill for many months or even
years actually do improve once they have a proper diagnosis and proper treatment.

For their efforts and dedication to the patient's well being, Camp B front-line physicians are now under pressure and direct attack for treating patients with chronic Lyme disease. They are ridiculed by their peers, investigated by medical boards, and are threatened with loosing their licenses if they treat patients who have suffered at the hands of Camp A. So why do Camp A doctors still refuse to diagnose or treat a serious debilitating infectious disease or check for and treat co-infections that may be complicating the picture?

The answer is simple, but shameful. One reason for this atrocity is that some of them
haven't kept abreast of, or are ignoring years of medical research and documentation that
proves them wrong. In addition, many in Camp A refuse to actually listen to their own
patients and continually dismiss complaints and ongoing symptoms. The third reason is
that Camp A doctors may be in fear of loosing their medical licenses and livelihoods if
they don't stick to their guns and continue to support their original mistakes. After all,
some of the successful Lyme disease lawsuits against doctors were for not properly
diagnosing and treating Lyme disease. Lastly, insurance companies are loosing money
when treating chronic Lyme patients and we all know that hurts a good number of
powerful pocket books and ultimately influences the course and cost of treatment.

Why should you be concerned about the situation? There are growing numbers of
chronically ill and disabled children and adults still stumbling out of Camp A after they have been improperly tested or treated for tick borne illnesses. More people are loosing the battle with Lyme disease after years of pain and suffering. Physicians who are brave enough and concerned enough to care for these patients are being harassed, ridiculed, and shut down. The madness must stop.

Bottom line...

If Camp A were right, there wouldn?t be a Camp B.

[This message has been edited by Tincup (edited 29 November 2003).]


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cindy_leigh
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excellent.....
powerful.....
and sad.....

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tuffette2
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Tin Cup
You are one awesome writer!!
You go girl!!!
This is another one for my file!

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rosesisland2000
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Applause!!!
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DiffyQue
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Excellent! We need to post this periodically for the newcomer!


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Caryn
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i reposted this on www.jeffersonstarshipsf.com

great post Tincup!


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Lishs mom
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You go girl!!!!


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Marnie
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Both camps could fold up their tents IF lyme was properly handled intially. It is NOT being treated with the correct things! Makes matters worse - right away for some...many years later for others. Depends on #s of pathogens and strength of own immune.

Did you wander over to the Canadian website? Way to remove tick, using sub cutaneous injection beneath the tick. BRILLIANT!


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artsmart
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Right on Tincup! You should send this article to a major newspaper-if you could get someone to print the TRUTH.
quote:
Originally posted by Tincup:
CAMP A and CAMP B-

The Lyme Disease Controversy


?Camp A? states Lyme disease is, ?over diagnosed and over treated?. They claim if a
person is bitten by a tick they should ?wait and see? if anything happens before
addressing the situation. They think in order to diagnose Lyme, a person must have a
documented deer tick bite, a typical ?bulls-eye rash?, and 2 positive blood tests.

They ignore the warnings by the CDC which state many people don?t report a bite, the rash does not appear in many cases, and negative tests are not to be used to rule out Lyme.

Camp A also believes that patients who relapse after treatment actually didn?t have Lyme
disease originally, or they accuse the patient of faking the illness, needing psychiatric
help, or accuse them of malingering. To compound the problems, Lyme patients are
often later misdiagnosed with ALS, MS, arthritis, depression, fibromyalgia, lupus, or a combination of other illnesses if they continue to remain ill after short term treatment.

Camp A originally stood by the belief that antibiotics would not help anyone with Lyme
disease. They were later proven wrong and decided that a week to ten days of antibiotics
would cure Lyme disease. When they were proven wrong again they came to the
conclusion that two weeks of antibiotics would cure Lyme disease.

When that failed to help thousands of patients they claimed Lyme suddenly was a serious
disease and the public should be given their new vaccine to prevent developing horrible
long term neurological and arthritic effects. They also encouraged other doctors to use
their new lab tests for all their future blood work. They filed for various patents and
wrote medical reports about the devastating effects of Lyme and the widespread
problems.

Once the FDA sent out warnings about the new lab tests, the legal battles began over
money and stocks, and there was a serious parting of the ways in the Camp A community. Some Camp A doctors were released from their employment, sought employment with private companies, or were transferred to other departments of facilities. In the meantime, more and more patients were filing complaints against Camp A doctors after becoming disabled from Lyme and a lawsuit was pending concerning
symptoms people suffered from their new vaccine.

Once the Camp A vaccine was removed from the market (after over 1,000 adverse events
were reported to the FDA), the remaining Camp A doctors flip flopped back to the notion
that Lyme disease was, once again, ?over diagnosed and over treated?.

They concluded that patients simply suffered from ?Lyme anxiety? from reading too
much about Lyme in the media. They warned other doctors that positive tests for Lyme
were often false positives or the labs used were faulty for some reason or another. They
tried to lower the length of time needed to treat Lyme and to lower the costs required to
push patients through the system. They testified in court against disabled patients and testified negatively in the political arena about doctors who were treating chronically ill patients. They went on a media frenzy to broadcast their views and some hired body guards to protect them from the crazy Lyme patients. Camp A?s most recently published research concluded that only ONE dose of Doxycycline will now ?cure? Lyme disease.

Unfortunately, Camp A?s literature and research continues to focus on overall ?cost
effectiveness? when determining testing and treatment guidelines for Lyme patients.
Need I say more?

In the meantime...

Lyme disease web sites receive approximately a half of a million hits a month from
patients in need of assistance and hundreds of support/education groups have formed
across the country to address their concerns. Many books have been written and fund
raisers are held to help develop better tests and find a true cure for Lyme. Several
telephone hot lines dedicated to providing information to people with Lyme disease
respond to over 100,000 calls a year and membership in Lyme organizations has reached
approximately 200,000.

Physicians on the front lines who are fighting the Lyme epidemic and battle with their
patients best interests at heart are overwhelmed with the numbers of new cases of tick borne diseases. Many of their patients come to them already severely and chronically ill after following the recommendations of Camp A. They have patients who have died
from lack of proper treatment and thousands more who have become disabled from the
disease that was said to be ?easily cured? by Camp A.

Most of us know people in Camp B, which was formed when Camp A?s theories left
thousands of patients suffering by the road side with an ongoing infectious illness.
Documented research over the past twenty five years, along with autopsy reports,
countless medical documents, and bacteria cultured from living patients tissues after
treatment, has proven beyond a doubt that Lyme is a complex infection that can remain
active and may be complicated by other tick borne infections. Lyme is not ?over
diagnosed? and ?over treated? or ?easily cured?. It has been proven over and over that
many patients do improve with proper long term treatment.

For their efforts and dedication to the patient?s well being, the front-line physicians are now under pressure and direct attack for treating patients with chronic Lyme disease. They are ridiculed by their peers, investigated by medical boards, and are threatened with loosing their licenses if they try to treat chronically ill patients that were discarded by Camp A doctors. Even though Camp B physicians base their treatment protocols using the conclusions of thousands of pieces of peer reviewed medical documentation, and see improvement in their patients, they are still under attack and are loosing their medical licenses for doing their jobs.

So why do some Camp A doctors still refuse to diagnose or treat a serious debilitating
infectious disease or check for or treat co-infections that may be complicating the
picture?

In my opinion, the answer is simple, but shameful.

One reason is perhaps some of them haven?t kept up with current medical research. In
addition, many do not actually listen to their patients and they dismiss their continuing
problems as the patients slowly deteriorate. The second reason is that doctors may be in
fear of loosing their medical licenses and livelihoods if they don?t stick to their guns and support their original mistakes. After all, some of the first successful lawsuits were against Maryland doctors for not properly diagnosing and treating Lyme disease. Third,
insurance companies are loosing money when treating chronic Lyme patients and we all
know that hurts a good number of powerful pocket books.

Why am I concerned about the situation? I have had over 25,000 direct contacts with
Lyme Disease patients. I see first hand the growing numbers of chronically ill patients
stumbling out of Camp A after they are treated, relapse, and are refused further
treatment. In addition, I have lost friends and family members to this disease because it
was misdiagnosed and/or under treated by Camp A doctors. It breaks my heart to see so
many people treated without dignity and respect and be ignored while they are suffering from an ongoing infectious disease that was not properly treated. The madness must stop.

Bottom line...

If Camp A were right, there wouldn?t be a Camp B.



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cbb
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To the top.
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cws3333
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"If Camp A were right, there wouldn't be a Camp B."


Tinny,

What a pithy statement!

How about printing up a tee shirt to benefit Lyme causes with the following message:

The Lyme Disease Treatment Controversy:
If Camp A were right, there wouldn't be a Camp B
www.lymenet.com


cws

[This message has been edited by cws3333 (edited 16 August 2003).]


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Tincup
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Great ideas!

I will check it out.. and this post after I get some rest...


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Ziggy
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WoW!

This should *definetly* be published!

Miss Cup, let us know if you want to see this in a web page at WILDER Network? We will publish it!!

in any case, thank you for this amazingly simple explaination of a very complex prob! You're amazing! Every single day!

Z

------------------

http://www.wildernetwork.org


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Tincup
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Hey hey Ziggy...

I would be happy to share this with you if you would like to use it. Thanks for asking. I am honored and pleased.

I am in the process of editing it a bit now... so if you care to wait a bit longer.. I will post the polished version for you to use.

HA! In the revised article I gotta take out the words "idiot" and "butt heads" first... hehehe

Thanks for your compliments and please know I do appreciate them.


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cws3333
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Tinny,

Really pleased to hear that you are planning to publish a version of this post.


cws


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Thomas Parkman
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Dear Members of the list,
The rigidity-indeed stupidity and hybris- of doctors is an old old story. In the 18th century millions were murdered by the 'ducks'. They bled sick people to rid them of their 'poisonous humors' Mozart, his mother and very possibly George Washington were done in by such methods. Then in the 19th century there was opposition in various places to small pox vaccination. So stupidity just keeps changing its lingo. The name of the game changes but the rules never do.

Further there is a growing body of evidence that 'Lyme' is transmitted by more than just tick bites. It is also far more widespread than just a few states in the US. It is becoming very obvious to informed opinion that it, and ideed all spirochetal infections are devious, treacherous and difficult affairs with so many variations and symptoms. In fact the spirochete itself may not even be a bacterium, which could explain certain of the difficulties in eradicating it.

It is now quite clear-the evidence is indisputable-that the organism has the most incredibly complex and sophisticated repetoire of defense mechanisms against the human immune system and for evading that system. It posses a degree of sophistication virtually unparalleled in living organisms. As a result, tests are of limited utility in diagnosing it.

Unfortunately most 'ducks' know little or nothing of this. The dogmatists, egoists and crooks in 'Camp A' are certainly not helping matters either. Medicine may have become a lot more sophisticated in the past 100 years but one thing has never changed and never will: human nature. Cheers. THomas Parkman


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cbb
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To the top for the new members!
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Lymetoo
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Three cheers for Tincup! Thanks!!!!!

------------------
oops!
Lymetutu


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JRWagner
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HEY TINNACIOUS!!!! Ya'all going camping and did not invite porr lill' ol' me?

OK, no marshmellows for you. Now, who wants to come into my tent? Heh, heh,heh....

I heard Mel is NOT going...is this true?


Seriously, and I resent the implication...


I was in the first "Post Lyme Syndrome" study at New York Medical College, in Valhalla, N.Y., in 1995. The study was conducted by Dr. Weissberg and cohorts.

I was interviewed, for some insane reason, by Dr. Jeffery Addlersberg, of NY Channel 7, ABC, for a short piece on the controversey.

I have been trying to get him to do a follow up. I'll let you all know.

The study included a SPEC Brain Scan, a spinal tap (which was done so poorly that I developed Chemical Meningitis, and my BP spiked to 160/110! The idiot had to try THREE times to insert the needle!

In addition, I got up way too fast after the puncture was finished.

If Lyme were not Chronic, why would I still test STRONGLY POSITIVE after NINE freakin' years with this disease. I have been tested for everything else under the sun...NOTHING else is going on...just LYME!

My Doctor is doing a study as we speak to prove this very point!

Egos get in the way of caring for the patient! Fortunately, DR. C is NOT like that!


Peace, love and wellness

James In-the-Woods


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yankee in black
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Hi Tincup and all others,

Tinny'you probaly don't remember me-but ya teased me to death(Kidding) my 1st post here about a month back

And told me your saga of having to flee Michigan-cause ya looked like someone on the wanted flyers at the Post office!!!HAHAHAH!

Tomas Parkman said something in his post that hit home-they are not even sure spirochetes are a bacterim

I have read on the Eurolyme web cites-that many German dr's ( I don't know the up to the minute facts-as this papers were published in the late 90's )felt that B.B more closely resembled a relapsing fever!

That would certainly address alot about the lyme controversy-the ups and downs of the disease

Just thinkin in print here....


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kungfuherbert
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Hey Tincup,
Great post keep up the great work......
I can't wait to see the day when this society of our finally realizes what lymes is and proper treatment is given. But first the CDC needs to step up to the plate.

See Ys, Herb


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Lymetoo
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up!
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cbb
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Back to the top...
lots of new members that need to be informed about the 'real world of Lyme'.

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Lymetoo
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up for newbies
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troutscout
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To the top
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cbb
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Back to the top again.
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irongirl
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Tears and Cheers!!
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Lishs mom
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to the top for DeeDee
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Melanie Reber
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topping off for those who are still wondering
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kam
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Thanks for putting this into perspective.

And yes, I am interested in a shirt as a fund raisere as mentioned.

I dont' really care for TShirts though, but if that is the only choice, I will purchase one.

I don't think I picked up on what I can do to take to my doc to show him that long term abx is working.

The two local docs seemed to be concerned about using long term abx. They felt it may do me more harm than good.

One experienced a person who had heart troubles with the long term abx.

My thinking it was not the abx but the lyme that was the result of heart troubles, but I felt I needed proof to be in the position to disagree.

I do agree that there is a big gap when it comes to lyme information.

How I can see over 40 docs in the past two years due to symptoms being so poor I couldn't work ...not counting the docs I saw occassionally when I had out of control symptoms the last 20 years while i was working... and only have 3 of those docs be in camp B or even consider lyme disease?

And even after I was dx, continue to have docs think...this is not lyme..it may be MS or MG or Als or CFS or stress. That last one is really makes me laugh.


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rosesisland2000
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up
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rosesisland2000
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up
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Mary J
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to the top
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Tincup
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I just edited the article.. pretty big time.

Please.. anyone interested in making comments.. please do so.

If you would like to share this with anyone.. again... please do so.


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Tincup
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Well fiddle faddle.. it isn't showing up!

Wat's the problem?

I will wait for a bit.. then check it again.

If it doesn't appear soon.. I will try a new post.


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Melanie Reber
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Wow!

I liked the original version...but THIS is great. (I'm glad that the original was copied for future reference in another reply)

Thank you...your efforts are so appreciated by so many.

Melanie

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C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]


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cbb
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To the top.
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lemonylime
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Thanks, Tincup.Just what I was looking for! We need an expose! A book to be written! This is horrific! I'm "better off" than most here, and can't believe the 9 month ordeal I've been through! We need political action! I'm fired up!

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VEE VEE
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Thank you Tin Cup!
I was looking for this.
It's great!!
Keep up the good work!!

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swissmoeka
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Thanks Tincup,

What a great article! and what perfect timeing for me. I'm not doing well and my LLMD wants me to see another LLMD for a second opinion (two heads better than one type of thing).

I decided to go to NC as my Daughter will be able to take me (Jemsik) which they agreed to work with my LLMD.

Long story short they take insurance and said to get a referral.

Of course I was turned down. Well, my friend says I should appeal.

The ins. co. says they have someone in Lebanon NH ...but they didn't give us any names. I called and they gave us a # to call infectious disease.

I had my friend call as my brain comes and goes. She calls me back and says forget it.
They told her right out that they are Camp A Dr.s
(I couldn't believe it, I didn't know they called themselves that.)

That they treat for 30 days and thats it. If you don't get better than you don't have lyme.

I called the ins. back and told them that thats ok if you catch it right away but not if it went undx for years. That that was just nonsense!

Am I making a mistake by appealing it?
Swiss


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