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» LymeNet Flash » Questions and Discussion » Medical Questions » Bicillin poll (Page 2)

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Author Topic: Bicillin poll
tvalentijn
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Dr. P. says that Bicillin is a drug that stays below the radar when it attacks the skeets. So they don't change into cysts or spheroplasts. NICE.

I am taking 2.4 mln units once a week and normally herx 24 hours later. I also take Biaxin and Plaquenil. I started 2 months ago, have seen improvement - especially between the herxes. I still have 4 weeks to go and then we will reconsider what to do.

My ass only starts to hurt badly when the herx starts, a few days later it's ok. But I have limited muscle mass left there.

Tim


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David95928
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Tim, a number of years ago between exacerbations fo what I now know was Lyme, I got into doing sqats at the gym. The happy result is that I developed a fair amount of glute muscle, despite being a fairly compact guy. Little did I know I was preparing for the future!
If you and Dr. P. Decide to continue with Bicillin, a lot of people report that they hurt less over time. That has definitely been my experience. My doc has me taking 1.2 MU three times a week. One suggestion, are you splitting the dose between cheeks. 2.4 is a lot of volume for one injection. Good luck with it.
David

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David95928
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Up for other's comments. My situation continues to be good/stable. No negative effects.
David

[This message has been edited by David95928 (edited 03 November 2004).]


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minoucat
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The hubby and I are now in our 8th month of bicillin, 2.4 IU a week. I just finished 6 months mepron/zith; he's still on mepron/zith, and just finished 2 months levaquin for bartonella.

Shot discomfort is minimal. We icepack the area before, get the bicillin to body temp before we inject, inject slow, and walk around afterwards.

Lumps last 3-7 days.

Huge improvement from all the treatments. Really like the bicillin -- no stomach upset, no weird taste in my mouth, no diarrhea.

Herxes were very noticeable for the first 4 months, starting about 12 hours after a single shot.

Now, even though we do double shots 1ce a week, all I notice the next day is a little extra fatigue. All sx are improved, but I know that the babs/bart tx also had a lot to do with that.

No allergic reaction at all.

David, are you still doing the biaxin?


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Barngirl
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Hi David,

Bicillin really helped me.
I had a nurse friend stop by the house to give it to me three times a week for 2 months. I took weekends off. I think it would have been better to do every other day but It helped any way. I herxed like cazy-I got the shot in the muscle and we did it in the evenings. I went straight to bed I was so tired. I was also on Zithromax & mepron.


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beachcomber
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I will have my 17th set of injections tomorrow - so 4+ months. I have seen steady progress. I still herx about 28 hours after the injections. That lasts for 3 days. I am mostly tired and achy during that time. But, I am pretty funtional on Bicillin. Oh, I get two 1.2 unit injections each week - one in each cheek.

It doesn't really hurt (except when one nurse hit a nerve - ouch!!!!). The only thing I have noticed lately is some muscle weakness that seems to be from the injections. It feels like I have some tissue fatigue or damage, even though we always rotate the site.

I love not taking orals! They wrecked my gut. Bicillin is convenient and easy on the tummy.

I think the plan is 8-12 months. Will know in a couple of weeks.

Bc


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dontlikeliver
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Regarding Bicillin in Europe.

I contacted Swiss phamarcy and they told me that Extencillin, which is apparently the name, is not long-acting. This is why I didn't buy it there even though the price is 10 times less.

Have also found out the reason it is not available in the UK, is because it's banned.

DLL


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daniella
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I do GREAT on Bicillin shots...
Unfortunately I am a distance now from my LLMD and have no way to be injected..

I have been on a few different abx with the shots but I don't remember exactly what...sorry

daniella


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