Twice, a few days after moving up to 300 mgs of mino per day, the following symptoms became REALLY intense: (1) pressure in my head & ears; (2) off-balanced, (3) burning & tightness in my spine, (4) fatigue & weakness (5) emotionalness, anxiety, brain fog & confusion (6) inability to put together words. It got so bad that all I could do was meditate on my breath & tell myself that as long as I could still breathe, I was ok. Even my husband thought it was scary.

When I went OFF the mino, for several days I felt worse in some ways: (1) pressure in my head, yet feeling like my brain was contracting; (2) stinging & pain in my head - like something inside was broken (3) brain fog, (5) fatigue & weakness.

After about a week OFF the mino the 1st time, I felt more energy & a clearer mind than I have since the day of the tick bite, so my LLMD decided it was a herx. This time, I stopped mino 3 days ago, and the continuing bad feelings are shaking my confidence.

Does the above sound familiar to other neurolymies?

I identify with your symtoms. I am three days off and have decided I going to take a "holiday" for my brain to fully recover. My herx was caused by Samento.

Healing thoughts,

I get headaches in back of head. Blurry eyes, Trouble chewing and tmj. The neck and back pain all the way across is horrible.
I have smelled smells that are not there. I have seen things look like they run past the outside of my eye.
I am awakened with a sudden noise. Only to find there is none.

There are many other symptoms not in the head.

You will have an up and down hill road on this journey with lyme. Trust your instincts. When your scared call your doc or go to the hospital.

Graneet

I had a real hard time with Mino and it was a smaller dose. 100 mgs once a day.
I had paranoia, bad anxiety, anger, mood swings, headaches, hallucinations, and many other symptoms.

Call your doctor and let him/her know what is going on and how you are reacting to the drug.

I did feel better after I stopped Minocin, I could tell I came a long way, but I would not want to go back on it anytime soon.

The herxes with the Mino were quite different! Including the spine tightness (very painful--not like electric shocks in my joints as the Amox herxes).

Actually, a better way to describe my spinal tightness would be to imagine a string running through my spine and my vertebrae the beads. Then having someone pull on both ends of the string, squishing all the vertebrae together like a pearl necklace with too short a string.

My ear ringing and imbalance intensified on the Mino but went back to normal abnormal after several weeks off of the Mino.

Last week I started Bicillan injections. That herx also included the spinal tightness along with the electric achiness everywhere else and brain fog, etc. Sort of like a combo herx I guess.

Alot of what you describe are my neuro symptoms. I have exp. a lot of this before treatment when getting worse and some with treatment. From what I know, this is common with neuro lyme.

Hang in there, we need to take the abx to beat this thing, I have been on for a week, biaxin, amox, and will add flagyl on thursday.

It's hard, but try not to get too scared because I find that this makes it worse.

I'm on Mino too. 200mg/day for 6 weeks now.

My "adverse" reaction to the drug started about after one week into the treatment and lasted for 3 weeks straight with some variations.

But essentially I became quite aggressive towards my family and unable to cope with things in general. Depressed, headaches, foggyheaded, muscle pains, etc were other symptoms.

My LLMD suggested I reduce the dose to 100mg/day.

I did so and most of these symptoms went away to some extent, particularly the aggression, depression and brainfog symptoms.

Many people talk about herxing after one week and then after every four weeks. But I don't experience this at all.

In fact, I don't even understand why they should be such a pattern. It makes more sense (to me) that the herx would be constant or random.