I have been on Baxin, flagle,
Zithro,Flagle and other things

Now this month been on Zith and Doxy. Doxi isnt a big dose but hits with a heavy hand

Something im wondering is this. I would get a herx from the other meds and then felt horrible the rest of the month all meds do to me.

But this Doxy has hit me whammy good fashion. When i first took it and now. And yes i have fell horrible all month but the herx is heavyer now.

I have noticed that doxy covers co infections to.

Which ones is it that gives ya a low grade fever and chills. I had this when i took doxy the first time and now im getting it again. I never had fevers with any of the other meds. Just joint and amplified symptoms.

I wondering if maybe im Killing off a co infection and not just lyme perhaps and if so which one is it that causes the fever and chills.

I know its not babs. Got any ideas. Thanks Graneet

Sincerely
Annie

------------------

I haven't been around much anymore but intuition( ! ! )sent me to the puter to take a peek.

There you were with the same thing I have been wondering about.. Have recently been on Ceftin/Doxy but MD dropped Ceftin. Am now only on 100 mgs. x2 day of Doxy.

Herx'd throughout the combination but now am having a rough time on just the Doxy. and thought it was kinda strange.

Even had the first migraine (SP) I have ever had-gold lights and all ! It was a ----- for 2 days.

Thought I would feel less miserable on just the one abx. but....

Maybe someone will come along and tell us what they think.

Also, was on Flagel rx'd by another MD and did well on it. My new guy took me right off. Said it would cause too much neuropathy and did't want to risk it.

Ever heard of this? The Flagel was clearing up a pseudomonas infection I have had under a couple of nails since 1983.

Since off, it's coming back in a big way.

Any explanations appreciated.

Thanks for bringing the Doxy. herx. issue up, Graneet.

While I was typing my post you must have replied to Graneet. Thanks.

Have the chills off and on-sometimes feel like I am burning up with fever but I'm not.

I can feel like I have a fever of at least 102 or more but temp is still below normal.

Just don't get it.

Well thursday i felt good and buddy i cleaned house i loved every misserable moment of it. Then bang tired thursday expected then friday more each day got worse. This was just on Doxy alone.

Today i took one hundred mg thats all. Started the fever chills and man sick as a dog. Now that the doxy has wore off i dont feel as bad as i did earler in the day. I go to the doc tommarrow and i knew if i felt like i did earlier today i would never make it at all.

So like you thinking maybe another co infection die off instead????

Interesting and i hope so honestly. I hate doxy but it its working bring it on.

Oh also the fever is like you posted not a fever as temp but hot faced. Now im ice cold faced. Bout the time ya think you know it all LOL leave it to lyme to throw a curve ball.

Graneet

So, if you've got an extra special herx, you might have bartonella as well. I have lyme, babesia, and bartonella, so I get to see how they all mix.

Eek, I'm starting the doxy/zith combo tomorrow, so I don't want to hear anything else bad about it. :-)

if you combine it with say rifampin or levoquin or septra ds it can help with bartonella, you see what i mean..? alone though you'll still be gettig the lyme, but probalbly not too much with the coinfections..they really seem to need very specific abx...

bart+ levoquin adn macrolide or doxy
OR
rifampin and macrolide or doxy
OR
Septra ds adn macrolide /plaquneil

babesia: mepron adn macrolide
or
clindamycin and quinine
both can add artemesinin to help
Or
Larium and macrolide

See, so the treatments are very different for coinfections...but the doxy should surely help you with the lyme..I couldn't take it. it made me feel too crappy, and my head felt like it would blow at any minute!

best,

I got smacked upside the whole body with a herx myself- woke up with it.

Low grade fever and chills can be babesia, BUT

doxycycline can CAUSE low grade fever. when I first started on it, all I did was have a fever. I had mentioned it to both my LLMD and my Family doctor and hey both said it can cause fever sometimes. Amoxicillin and RIfampin are another one of two drugs that do this. Amoxy has it listed as a side effect of the full leaflet.

The fever could also be a herx like you had said too. My brain isnt working so Im not even sure Im answering your question.

Doxycycline can also cause intracranial pressure hence migraines, vertigo, stiffness, etc.

I hope this helped. I have to go to work feeling like patheticness.

No-I'm lying-feel like ---- this am.

So glad for the feedback-

Graneet-couldn't believe your description of how you felt-like cleaning the house, then crashing. The exact same thing happened to me on Sunday. Felt so good I thought I was miraculously (sp) healed. Felt invincible.

Then on Monday-CRASH-couldn't function-tears and all.

The Doxy is aimed at my Erch. Got abx. toxic-off 3 days-then he (MD) said lets just continue right now with either the Ceftin or Doxy-not both. I chose Doxy thinking it was the best "all encompassing" one.

Maybe should have chosen the Ceftin-got muscle tested and the Ceftin showed NO-THE dOXY-yes.

Thought Septra was no longer on the market. It was RX.'d but told unavailable by pharmacist. Whats up on that ?

If these herx.'s are a good thing from the Doxy. then I agree- "bring it on"-

Can't remember who responded to my Flagel question but what mgs. have you been on?

Not awake yet-will check here later.

Let's try and have a good day-I'm good usually for 2 hours in am-have to run and get Easter presents off to my grown up children ! !

Thanks to you all-

I Didnt take any more meds yesterday cause i new i had an all day trip to the doc today. I felt horrible all day. Headache,joint pain, and all the rest of the fun stuff.

Just didnt have the heart yet to take the meds tonight either. Ithink i will wait until tommarrow.

Chocolate i have taken baxin 500 a day with Flagle or methotizidole generic flagle 750 mg a day. I got headaches from Flagle.

I have been on zithro 500 mg everyother day and generic flagle 750 a day.

Now on zithro 500 every other day and Doxy three hundred a day. The first doc i went to had me on a thousand mg of doxy four times a day. I FOUND MY HEAD IN THE POT MORE THAN ANYWHERE ELSE. My head felt like it was gonna blow off.

But i seem to be getting a good response from this low dose so im gonna keep it. My head still hurts a lot. Taking asprins when it gets to much.

Isnt it odd that one day thing. I still was sore and still tired out but had more drive.

Geek Girl

You will be okay dont worry i got a hit when i first started then mellowed with me i felt yuck all month until yesterday then wham. I plan on backing off if its to much.

Ild
Thank you for this info. Answers my question. I dont care what it kills so long as its not ME! altho im wondering lol

Annie
That explains the fever it is odd tho when i take the temp nothing but my face is hot as a firecracker then i go cold as ice and chill.

Crime o lyme
Yes it does help and thanks HOPE YOU FEEL BETTER SOON. Did someone say it was a full moon sounds like some of our herxs are rough this month.

Chocolate what is that nail thing you mentioned? I have been getting these odd splinters under my fingernails . Doc looked at it said it wasnt the heart didnt look like them. Odd

I feel like i have an alien body it does it own thing where ever however and when ever it wants. WEll i just am putting it on notice i have declared marshal law. LOL like its gonna listen to me HA

Thanks Guys for your responses

I just switched to doxy a week ago. Am on 100mg twice a day. I think I am herxing on this or relapsing. I am on flaygl too and have been seen early february working up slowly, up to 1000mg/ days so far.

I find doxy hits hard too (if a herx), it's my time so I get more stuff now anyway, but been having some stuff like my left eye that hasn't done this since before abx. Very hard to judge what is going on.

Other day bad leg felt like it would explode and then next day calmed down, so that seemed like herx. Doxy suppose to get into brain better, so was told to switch. Did well on biaxin, flagyl, amoxi combo.

When I was hospitalized in 1983 for Lupus ( ! ) I developed what they called Pseudomonis under 2 nails-the 2 fingers got twice their size-painful-x-rayed to see if had gone into bone. It hadn't. Was treated with Keflex.

It has never really gone away-flares alot-particularly when I am feeling sick. Like a fungus, I guess-bright green turning to black.

Noticed the Flagel helped it and or the abx.
But since off Flagel it is flaring.

Those splinters under your nails can be caused by various things-Can't remember exactly what specifically right now but will look it up in my notes.

Lymiecanuck= you said " but have been having some stuff like my left eye"- What do you mean ?

Graneet-Forgot-I backed off the Doxy today' as well-100 mgs, only and no Flagel. Headache went away-So I wonder-was it the Doxy -the Flagel-or the combo.

Confusion - Doc doesn't know I tested adding the Flagel back in since he was so opposed to it.

Will have to "fess" up when I see him.

Flagle is a bad one for headaches then adding the doxy ouch.

Someone told me if i remember right lol but you know how that goes with us. But think they said bart to but not sure. Long as its not the heart thing im not worried now. Just thought it odd. Had two on little finger nail when it grows out they come off like bit of dry blood or something. There was two on the thumb one grew out and came off and left another. I noticed this week in the same spot another has come up.

The doc said not to worry not heart so im fine LOL.

I so dread tommarrow specially if its like monday was but dont want to loose out on riding myself of them kritters.

Do you have a copy of PRESCRIPTION FOR NUTRITIONAL HEALING-3rd edition ? You can get it at any GOOD health food store and book stores.

Couldn't find notes on nail disorders that I collected long ago but look on pg. 532 of book-you will find maybe what you are loking for.

Great book to have around.

Don't dread tomorrow-it's just another day of the unsuspected and-hey-it might be like the house cleaning day !

Thanks for the info on the book. I dont have it but maybe if i have an up day i could look for it.

Well the dred day came. I hadnt had med since monday am but wow still felt terrible today. Went to the store on no meds before. I almost passed out. Broke out in a cold sweat and thought i would never make it to the car in time.

The little walking i have done yesterday and today my shins ache.

I am swelling like crazy wonder if its the doxy even my face is to HUM.

I think i need to get more thread and a bigger needle cause this old bag is falling apart at the seams ugh.

I thought I was nuts. I've been swelling in my feet and face and having heart palps.

i HAVE HAD SWELLING SINCE THE FIRST iv rOCEPHIN-BUT MORE ALL OVER ALL TYPE-PARTICULARLY ABDOMEN. aSKED THE mD ABOUT IT.

tHINK ANTIBIOTICS JUST DO THAT BECAUSE OF THE STIRRING UP OF TOXINS THAT GET IN TISSUES.

pLEASE CHECK ON THE FACE AND FEET SWELLING WITH YOUR DOCTORS. MAYBE AN ALLERGIC REACTION? FACIAL AND EYE SWELLING SHOULD BE EVALUATED.

I'M NO DUCK OR LLMD ( MAYBE A GOOSE ! ) BUT DO RECALL MY MOM HAVING SWELLING IN THOSE AREAS WHEN SHE WAS ON MEDS FOR COPD- TOOK HER OFF.

ALWAYS SAFE TO CHECK. BETTER SAFE THAN SORRY. YADAYADAYADA-

GRANEET-ARE WE CLONING EACHOTHER? WENT TO GET A MASSAGE TODAY (FIRST ONE IN YEARS-$ $)
AND THE TOXINS GOT SO STIRRED UP THAT WHEN I GOT TO THE DRUGSTORE TO PICK UP MY RX., I COULDN'T SEE WHERE TO SIGN THE TICKET. COLD SWEAT AND HAD TO PRAYERFULLY DRIVE HOME. FELL INTO BED AND ONLY REVIVED AFTER 2 HOUR NAP.

TAKE GOOD CARE-ALL OF YOU-

I would first talk to your doctor about what he thinks about taking breaks if the herx is to much.

As for myslef i ride it out some but yesterday i took it again and felt horrible. Feeling totally drug under though But today been on meds and seems not as bad Unless i get up and try to do something. I road to town and the riding motions was ugh.

Now i think as for me if it gets where i cant take it i will take a day or two off. But i did that monday only 100mg that was all then none tues felt horrible
Then Yesterday i took regular my regular dose and oh my. My shins start hurting bad i notice Crazy. Felt so weak wondering if i could even move.

But i will break from it if i have to. I will because i have been at this so long its not like this is the first bout with taking med and seems my ablility to go forward and tough it out is getting less.

I have to have a break to be able to keep doing this especially with being in bed more than out.

Plus Dr C says its worse on you to go threw bad herxs. Coarse i think we have to gauge what is bad. What is bad for me might not be for you.

Only your doctor can really answer how long you should break on your meds, BUT

as for myself, I break until the symptoms flare down a bit, usually one or two days, then hop back on. If I am NO better, I hop back on anyway as it might be a lyme cycle, and THAT cycle, I do NOT want to miss hitting with abx.

On your other question, doxy does treat lyme and erlichia both. How much are you taking?

You sound like your meds do you like mine do me no matter what i take i feel bad. I can tell its the meds because when i get up in the am i dont have the med as much in my system and i feel a tad bit better. Then wham when i take it thirty minutes to an hour later.

I DO NOT KNOW HOW young mothers and working women do it. Maybe its my age but there is no way. BUT i know you have to put a roof over your head and food in your mouths so you do what you got to do but my heart sure goes out to you.

Sometimes i can stop meds for a couple of days and feel better. I did that when my bro-in-law was seriously ill and we had to go to Fla. Only i did it for a week. Trouble is when i did start back up i had a hard time. That was on Baxin and Generic Flagle.

I dont have a lot of options for med changes. With no insurance i cannot afford to many of the types out there. So im nervous about starting and stopping the ones i am given. Afraid that they might build up a resistance. That happens soon enough anyway but want it to do something.

After all with all the misery it causes i want to gain something out of the deal.
i do think tho its starting to get to my stomach all this med.

Last night i thought i couldn't cope with this another day. I felt as if someone was literally sucking the life out of me. LOL i was waiting any minute for my head to enter my mouth with my arms next then hips which Id probably choke on then feet.
So guess major herx.

I hope you can make it my heart goes out to you.

graneet

I USED to be able to take my antibiotic ( which was amoxicilin in the beginning) feel great for two weeks, herx for two, and so on. Now I just seem to do whatever I want.

I have been working on this with my regular GP more than my LLMD , no offense to my LLMD. My GP is an ACTUAL family doctor who incorporates alternative medicine into his practice BIG TIME. Basically, if I would go to him with indigestion or acid reflux, my choice is either prescription whatever or Aloe Vera Juice, and so on.

He follows my lyme to a T and all of my herxing, prescriptions, etc. He checks everything my LLMD does. In fact, I was told I would basically be fired if I DIDNT let him in on this lyme. He said " I'm so glad you found someone commited to lyme disease

because I would not have know what to do for you other than give you anti-inflammatories, so you stick with this doctor, but MUST report to me "

Anywho, back to the subject. I just had to go see him for a strep throat infection last month. Right away he said "gaining some weight, huh". Then he started to tell me that I was accumulating toxins

and that was why I was so sick. He made it very very clear that when you kill the borrelia, it can and usually does get stuffed up in the body and toxins will hide in your fatty cells and tissues, hence weight gain and hence, major symptoms. The kicker was "Ok, so how do I know the LYME is gone, and im just dealing with toxins "

to which he replied "How do you know when the lyme is gone and you are just dealing with toxins , yeast, and immune system shut down?" It made a lot of sense to me

so I guess what i am trying to say is cover all them bases! It's a royal pain in the ARSE to figure out what is from what, BUT

he did tell me that if I coudl start off in the beginning taking abx and at LEAST have two good weeks and have now LOST those two good weeks, i have too many toxins in my body. I know that holds true for me, because when I wake up in the morning after having to go pee 6 times ( a way to clear toxins) I feel better

when I hit the abx bottle, I feel worse. So, in my case, there is already dead toxins in my body and Im giving them more by giving them more abx.

I'm FINALLY at the point now after 6 months where again, I take my antibiotic ( which is now doxy) and feel good for about two weeks, and just die for another two.

I am DEFINATELY NOT saying this is the answer for everyone, but I am suggesting toxic build up. Are you taking enough hot baths, drinking lemon water and green tea,

and for joint pain, ( even lymph node swelling) I use absorbine junior. Its in a green bottle, looks like a bingo dabber, but it has calendula oils in it and mostly all herbs, so I use it to drain my lymphs hehe. It works!

Now, the yeast? um... anyone want to kick me on that, Im more than ready to bend over, just give me a few minutes, my back hurts alot.

Darian, you said you are on 100 mg of doxy, two times per day. I am NOT the authority on lyme, do NOT get my wrong, but I am wondering some things. Are you on anythign other than doxy at the momenet? 200 mg of doxy isnt enough to cross into the brain or to effectuate a kill.At that dose, it is keeping the bacteria from GROWING, but is NOT killing it. ( I still herxed on low dose doxy though which probably meant toxins more than it did herx)

ITs the whole bactericidal vs. bacteriostatic, and doxy is one of those drugs that has that effect. Either stop growth or kill it... and 200 mg wont kill it.

I was just pointing that out for you,tis all. I dont have the answers but I try to help.

Now graneet...I loved what you said you told your husband " I feel better, so let me take more death pills". Hehe, I say that ALL the time.

How many of us have bartonella? There has been recent topics saying which drugs treat bartonella and which ones don't to the point I got very paranoid and talked to my LLMD and also my GP. In the HIGH enough doses, doxy CAN nab the living crud right out of bartonella, but it works BEST, quicker and less resistance when combined with another drug

which I will be adding.

Doxy nails SO SO much at one time. Erlichia, lyme, bartonella ( right dosages) some mycoplasmas, etc, all of which can make you h erx to high heaven. And its cheap, so for us no

insurance patients, we can only pray it works!

Well, I have rambled enough. None of you are alone in the doxy war. Its a tough drug and boy does it make ya herx. I have NEVER had joint pain, EVER ( well except on rifampin because that is a side effect) but boy is it nailing me in my legs and feet.

Fun fun!

Lets all get better and burn our doxy together, or perhaps we can feed it to passing ticks. Whatcha think?

Go drink green tea!

I think it could be a toxin build up. Makes lots of sence. I am only able to take showers so cant do the tub thing. And have been bad not any lemon water i do drink water but im sure not enough so guess i better go get me some right now and drink up. I have done better but still not what i should.

Interesting about the absorbine Jr. I have to try that but wont that burn the fire out of your underarms.

I wish my stomach wasn't so picky i would love to drink the green tea. But i have tasted my hubbys reg tea and YUCKKKK

Now Crime i love the idea of going into my yard and opening up all my antibiotics and pouring them all over and say eat up and puke you dumb ticks LOL. Coarse then i imagine some tick eating up and developing some very resistant strain and then come hunting for me. HUM SOUNDS LIKE A MOVIE.
The Invasion of the Tick. And Dr.Steer would be the Mad doc that it turns on.

GOOD GRIEF IM LOOSING MY MIND. Or maybe i have already lost it.

Graneet

Have been having lots of low back pain-putting a sock full of rice in the microwave to nuke it as hot as can stand it. Helps.

Also, joint pain has never been an issue with me till now-kills hips-knees-back, etc to get up and down-in and out of the car. Ouch !

Is this'TOO A dOXY. thing?

Also, my MD had me on Ceftin/doxy combo. He decided to put me on just Ceftin but I requested to stay on the Doxy. cause so good all around and wanted to be sure to really kick the Erch.

He was ok with it. On 100mgs. 2x day. I added Flagel back in-250mgs. 2x day. Flagel has never given me any grief.

But I am wondering about what someone said (forgive me-can't remember names unless I switch back and look).

If that amount of Doxy. (200mgs.) is only doing half the job, think I shoud be on something along with it instead of just the Flagel.

Also, how long can you stay on Doxy? Keep reading from folks 3-4 weeks is usually the norm. I am beginning to think That it is not the Doxy after all-but a high toxcicity level.

I, too, am not drinking enough water -UGH- but started drinking green tea-iced-today.

Found one I love cause hated it,too. Esp. hot. It is by Celestial Seasonings and has gensing and honey in it. A little lemon and sweetener, ice, good!

Don't think there is enough honey in there to cause yeast to misbehave-and honey is metabolized slowly so no affect on blood sugar.

Suddenly, all I want to do is sleep - odd- before I was sorta razzed on the abx.

Well-we'll just keep loping along. Wonder what the next combo will do?

Felt the best on Zith. but at 30 bucks a pill---welllllll !

One more thing and I will crash out of here. Irritability-nasty moods on Doxy.?? No rages, thank God.

Happy Easter to you all. But ya ain't gonna have any chocolate candy, right???

Chocolat

From http://www.jemsekclinic.com
Section 11: The Herxheimer Reaction

I had a feeling that my doxy dose was too low...so I am def. calling my LLMD on Monday, any suggestions on what works for both Lyme and Erlich? By the way, I am only on doxy...should I perhaps be on something else?

I've been off of the doxy for 3 days now and get to start tomorrow just in time for monday (I can hardly wait)

I have been having horrible lower back pain too and lidocaine patches work for me..not completely, but hey, it's something. I don't know how much they cost since I know that many of you out there don't have insurance...that really stinks...sorry you're going through all that too, lovely burden on your pockets. All though, I have been flagged so pretty soon I'm sure I'll be joining the rest of you in "doxy-debt"

I had a feeling that my doxy dose was too low...so I am def. calling my LLMD on Monday, any suggestions on what works for both Lyme and Erlich? By the way, I am only on doxy...should I perhaps be on something else?

I've been off of the doxy for 3 days now and get to start tomorrow just in time for monday (I can hardly wait)

I have been having horrible lower back pain too and lidocaine patches work for me..not completely, but hey, it's something. I don't know how much they cost since I know that many of you out there don't have insurance...that really stinks...sorry you're going through all that too, lovely burden on your pockets. All though, I have been flagged so pretty soon I'm sure I'll be joining the rest of you in "doxy-debt"

I had a feeling that my doxy dose was too low...so I am def. calling my LLMD on Monday, any suggestions on what works for both Lyme and Erlich? By the way, I am only on doxy...should I perhaps be on something else?

I've been off of the doxy for 3 days now and get to start tomorrow just in time for monday (I can hardly wait)

I have been having horrible lower back pain too and lidocaine patches work for me..not completely, but hey, it's something. I don't know how much they cost since I know that many of you out there don't have insurance...that really stinks...sorry you're going through all that too, lovely burden on your pockets. All though, I have been flagged so pretty soon I'm sure I'll be joining the rest of you in "doxy-debt"

I had a feeling that my doxy dose was too low...so I am def. calling my LLMD on Monday, any suggestions on what works for both Lyme and Erlich? By the way, I am only on doxy...should I perhaps be on something else?

I've been off of the doxy for 3 days now and get to start tomorrow just in time for monday (I can hardly wait)

I have been having horrible lower back pain too and lidocaine patches work for me..not completely, but hey, it's something. I don't know how much they cost since I know that many of you out there don't have insurance...that really stinks...sorry you're going through all that too, lovely burden on your pockets. All though, I have been flagged so pretty soon I'm sure I'll be joining the rest of you in "doxy-debt"

I had a feeling that my doxy dose was too low...so I am def. calling my LLMD on Monday, any suggestions on what works for both Lyme and Erlich? By the way, I am only on doxy...should I perhaps be on something else?

I've been off of the doxy for 3 days now and get to start tomorrow just in time for monday (I can hardly wait)

I have been having horrible lower back pain too and lidocaine patches work for me..not completely, but hey, it's something. I don't know how much they cost since I know that many of you out there don't have insurance...that really stinks...sorry you're going through all that too, lovely burden on your pockets. All though, I have been flagged so pretty soon I'm sure I'll be joining the rest of you in "doxy-debt"

My eyes have given me a lot problems throught all this especially my left eye. It did well on the combo, but started acting up again on doxy. It swells and hurts, been to eye doctors and spec. and they say looks like allergies.

Not sure about the doxy at this point.
Do you have blood problems? I am getting mine checked, been telling doc for months that having circulation problems but just testing now. Can you believe that??!!! Piss me off. So much pain all over.

If doxy doesn't work back to combo, feel too low a dose compared to combo, which was 1000mg, biaxin, 2000mg, amoxiallin, 1000mg flaygl.

My first doc recomended it and i can really tell my eyes are super sensitive now to sun light have to keep eyes closed a lot.

Chocolate missed your question on length of time on doxy i was on it with the first doc for eight months. But i think it just depends how long its working for us.

Symptom question to all.do you have a burning feeling on your skin. I kept thinking maybe it was sunburn but i havent been out at all the last few days and today the tops of my forearm and hands feel like there sunburned and my back is feeling like that to. So im now wondering if its kill off, doxy reaction or??????

How about you all?

Darian I have done that about posting and im finding what causes it is trying to use the back button when i post instead of just waiting till the page comes up with the post on it tne clicking on medical up top.

To remove them where the little paper is over your post click on it and you can edit what you have. I usually go back and delete it. You have to type something tho in it, it wont let you just put nothin.

Dont feel bad have done that several times. Couldnt figure out why. LOL.

I have heard that toxins DO build up in the lower back area and cause pain.

I have never had lower back problems until last year. This was before I was diagnosed with lyme. I have always been active and never been overweight.

It started out as burning hip pain, then it moved into my buttox, and then into my lower back.

It is a burning pain that radiates in the lower back, and in the pelvic area, and it spreads out below into the buttox area. It also burns around the bursas of my hips, and into the groin area, and down into my legs.

Since I have been on antibiotics, it seems to not bother me as bad, but the burning is still there. It may not be as bothersome because I am not so active anymore. I used to walk 2 to 3 miles a day last year, but have slowly weakened to the point to where I am lucky if I have enough energy to walk a 1/2 mile.

Danny

How ya hanging on with that herx? Did it level off any yet?

Darian: Doxy will treat lyme AND erlichia. Doxy is one of the FEW that will nail the erlichia, but it will.

Lower back pain... I've been having it too, I think its toxin accumulation in the kidneys area. fun, huh?

Grrr!

COL HEY well its some lighter still no energy to do anything back pain comes and goes but am gonna try to drink more water flush the toxins out. See if like you said maybe thats what the problem is. I have looked at some of those liver toxin clean ups and ugh my stomach is so weak i doubt i could keep that stuff down must less drink it for a week.

Wish i was tougher. I am in a lot of ways and not in others and that is one of them.

How you doin?

How are some of the others on this months regieme of doxy

So work is truly kicking my butt...for those that didn't know I'm a surgical assistant, so I'm a sick chickie that gets to deal with sick ppl all day! LOL just kidding...I actually enjoy my job and although it is grueling sometimes (the long hours and standing) it is soooo gratifying and if anything it helps push my mind away from a good old-fashioned herx.

As for that I'm back on the doxy 100mg 2x daily and the pain is finally starting to calm down...energy coming back, and hopefully I want to try to go back on my usual exercise routine. I also don't want to push my luck.

I had asked my LLMD about the doxy dose being low and he agreed, but he also said he doesn't think I would be able to handle the herx I would get with a higher dose...any opinions?

I hope all of you are doing well and, as always, my prayers go out to my fellow lymies and your families

Just keep in mind that doxy at that dose is bacterialstatic, it only STOPS growth, does not kill it. You need at least 300 mg per day to be bacterialcidal and actually effectuate a kill of the bacteria and not just a stop sign.

BUT if you are really with a LLMD and this is how he wishes to approach this, and you feel OK, then please do it. I just recently hit 400 mg of doxy

and it has caused havoc on my body, particularly my vestibular system. I am so dizzy again it is pathetic.

I could tolerate vertigo in WAVES, but not constant dizziness. tihs is horrendous. BUt, 400 mg gets into the brain, so hopefully I kill something before it kills me.

Oh definately doxy is based on weight, thats for sure. I would never go around and tell anyone "hey jump on 400 mg of doxy and see what it does to ya!

The 400 mg is the beaten path of lyme, its a common dosage to KILL the lyme and one that I bet your LLMD is going to try to work you up to, ALSO.

Doxy ,, cant be jumped into feet first with 400 mg a day. At least not for me, I about KILLED myself.

And yeah, if you weigh a little less, than a little less could get it INTO THE BRAIN. This is the KEY. Doxy does NOT cross the blood brain barrier under 300 mg * MOST* of the time.

Last thing anyone wants to do is make sure their knee gets rid of the lyme, but it all runs to their brain.

Not a nice trade off. Then again, Im already a neuro lymmie.. hmpf

I see Dr. C down there in MO. If that is who you see, hehe, you arent going to come off abx anytime soon.And if that IS who you see, you will get bumped up higher. MAYBE! More than likely, probably. I dunno who are you seeing though and they all have their own plan but that higher dose of doxy is key. Dont be afraid of it! I know it sucks to think what is it doing to the body, but its worse when you think what LYME is doing to the body.

ABX= temporary if you treat the lyme. Lyme=forever if you don't treat the lyme. Scary though!

Amy, I know I asked youthis before, but I think I missed your answer. What part of PA are you from? If you are on 400 mg and you are cool on it, GOOD! Great! Stay there, freeze, and don't move. Thats just my opinion.

Its a LONG, slowww Road back to health, but you will get there! And you're lucky, man that 400 mg of doxy kicked me right in the ever living behind.

Its individualistic as to when you will herx, how long you will herx, how hard you will herx. I wish I could pinpoint that for you, but I cant.

I herx all the freaking time.

Ok.. GRANEET! How are ya doing? You forgive me for hogging your post?

Doxy still kicking your butt also?

i will stay on 400 then..THANKS

kam

Now back to doxy: what does biaxin do in comparison to doxy herx. I know its a person to person story, but how does biaxin rate?

kam

I do know that alot of patients have had mono either during or right before Lyme flares. Other infections, viruses, etc can suprress the immune system so much that the other infection takes hold and then

WHAM.

I think its like 99 percent of the population carries the Epstein Barr Virus that causes mono, but when the immune system goes down .. they can surface.

I personally, am not aware or never remember dealing with mono- ( that IS Epstein Barr, right?) but I did have a positive IGG.

on the biaxin and doxy.. I couldnt tell ya, Ive never done biaxin. Well I did ONE pill and let me tell you. You couldnt TOUCH my skin. Bad bad idear.