posted
I am feeling so overwhelmed with this! I am on IV abx and have been for 3 weeks. Still no improvement. Not even a little! The pain is still so bad and is even...if you can believe...sometimes worse! My husband asks everyday if there is a change and I am so pissed off that I have to say "No". When will this get better? I thought the IV was supposed to make you feel better so much quicker? I still have all the neuro problems (dizziness, seeing black floaty things, tingling in fingers and toes), fatigue and the joint and muscle pain! Someone, please, tell me that it will get better! I need some positive, happy thoughts right about now! Thank you. Nancy
Posts: 89 | From CT | Registered: Nov 2003
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posted
Nancy, I guess it depends on a lot; how long you were sick, etc...but try to take it one second at a time...you will get there..
Posts: 588 | From Wallingford, CT USA | Registered: Sep 2003
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I am sorry Nancy you are feeling so bad! I hope you will see some improvement soon! How long have you been treated? Healing thoughts, Marta
Posts: 121 | From CT | Registered: Oct 2003
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Hang in there..our son has been on Rocephin via PICC line for almost 4 weeks, he's had good days and bad days..our LLMD seems to think if you feel bad that's a good sign that the med. is working and killing the bug. ie.herxing. He also told us to be patient...easier said than done esp. if you're the one who's suffering...peaceful and healing thoughts to you and yours.....
Posts: 16 | From Westerly, RI | Registered: Apr 2004
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posted
This is a quote from a book called "Councels on Health", pages 166-167:
"Life in the open air is good for body and mind. It is God's medicine for the restoration of health. Pure air, good water, sunshine, the beautiful surroundings of nature--these are His means for restoring the sick to health in natural ways. To the sick it is worth more than silver or gold to lie in the sunshine or in the shade of the trees. {CH 166.3} In the country our sanitariums can be surrounded by flowers and trees, orchards and vineyards. Here it is easy for physicians and nurses to draw from the things of nature lessons teaching of God. Let them point the patients to Him whose hand has made the lofty trees, 167 the springing grass, and the beautiful flowers, encouraging them to see in every opening bud and blossoming flower an expression of His love for His children."
DMC
Posts: 221 | From fort smith, arkansas, usa | Registered: Feb 2004
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Probably the most rewarding aspect of our local support/education group is seeing people NOW and remembering how they were THEN. Everyone is different but at the end of a year, across the board, EVERYONE is doing better. Instead of a bunch of zombies swaying for lack of balance, we are now a chattering group of advocates and have an abundance of ideas. We're a lively group and care deeply about any new members.
When diagnosed with lyme, one patient was told the treatment was almost worse than the disease. Not to scare you but to let you be aware that you're not digressing, you are improving. Each symptom will resurface and then hopefully go away. I am 2 years into treatment and feel great most of the time. When I say great, I mean great for a lymie. I realize I have limitations but I work 4 days a week booked solid doing hair. I am active on the weekends and constantly have a project going. My mind is clear. My hair is no longer thinned out.
IT WILL HAPPEN FOR YOU TOO!!!
I am very careful about diet, well as I get better I'm less careful but I'm watching all the time. I also take alot of supplements.
Our support group has really come to life in the last year. I wish you were here so we could help you but at least I can let you feel the atmosphere we have of jubilance when we are together. It HAPPENS, people DO GET BETTER. It feels like it will never end but you WILL reach a place where you do not feel sick all of the time.
Take care and hang in there, you have the best piece of knowledge, you know what is wrong w/you.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Nancy,
My LLMD told me that the IV would have a worse herx reaction than the oral. Because it kills of the lyme faster, the reaction is stronger. It will get worse before it gets better.
You also asked for positive, happy thoughts. Today is bring your child to work day. My work place is teaching all the kids about voting and being involved with elections through a mock election. It's amazing how excited these kids are. A positive view of the future.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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I have been on oral abx for 7 months Biaxcin and plaquinil and on IV for 3 weeks. How long can this herx last? I thought you only get herxes for a few days. I do feel as though I am getting worse day by day. Plus my arm the picc is in hurts in the shoulder and in my neck on that side...is this normal?
Posts: 89 | From CT | Registered: Nov 2003
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liz28
Unregistered
posted
A year ago I couldn't leave my house, I was calling every charity organization around and begging for food because I couldn't work (only one even returned my calls), and was getting emotional support from a local group for people with terminal illnesses.
Today, I'm in school part time, I'm interning at a snazzy place over the summer (I told the boss I was sick, and he said, don't worry, we really want you, we'll tailor the program to your needs), I'm doing VERY gentle yoga, and I work at night. There are still a lot of rough spots, but the big question now is, when in the h--- will I be back to full functioning, dagnabit--and, to be honest, is it safe to get laid yet. I am gradually moving from the "disabled" category to the "chronic" category, and my dream is to be working full-time by Jan. of next year. At my current pace of recovery, that's doable.
About 50% of this improvement came from the abx, and 50% came from herbs and craniosacral therapy. Be wary of alternative stuff, but don't rule it out, it might help.
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