posted
Although I was darn certain for this past year that I had to have Lyme disease - and after being treated by various respected LLMD's and thinking I was herxing and what not - I was really just suffering from anxiety and depression.
Obviously my case is unique and many here may indeed have lyme - I would encourage everyone who has not seen a psychiatrist to do so just in case.
I wish you all the best in getting better.
Dougie
Posts: 45 | From Portland, OR | Registered: May 2003
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posted
You may be depressed and anxious but then you might be plain crazy if your post is not meant as sarcasm and you believe that line of psychiatric crap. If you do, you'll be back. Good Luck! Posts: 44 | From eastern LI | Registered: Mar 2001
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WildCondor
Unregistered
posted
Give me a break! This has got to be a joke.
If it is not, read on... Of course I hope you do not have Lyme, and that you are cured. However, anxiety and depression are big time Lyme symptoms. Let me ask you, what is the cause of your symptoms?
Go ahead and take zoloft and xanax and valium and all the psychiatric stuff and let it mask your illness, and drag you deeper into denial.
TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Dougie, I did a search and have been re-reading some of your earlier posts. I haven't read them all yet, but so far I haven't found anything suggesting that you have been tested for the co-infections.
I did learn that you suspect that you acquired LD during a trip back to NJ. However, your LD test showed only the #41 WB band, although I didn't pay attention to how soon after your suspected infection it was before you were tested because that could make a difference in whether it was too early for enough antibodies to show up or not.
So, yes, it is indeed possible that you don't have Bb, but what about the other tick-borne co-infections? If you start to relapse quickly after going off abx, then please be sure to check into those (Ehrlichia, Babesia, Bartonella), if you haven't done so already. Sometimes, it's necessary to test several times before they show up, so if in doubt, be diligent about asking to be re-tested for each of those.
If time permits, I'll try to review some more of your previous posts to see if I can pick up any more clues which might be helpful.
BTW, keep in mind that there are other infections besides tick-borne pathogens which can cause symptoms of "reactive arthritis". Chlamydia trachomatis come to mind, but it's not the only one. There are some STDs which can do so, too, if I'm not mistaken.
You might want to become familiar with the iinfo at the following two websites:
They have a doctor referral list in case you find that you want to check into this later, depending on how you do after you discontinue abx treatment. These doctors use a less intensive form of long-term abx therapy which is very effective for persons who have primarily arthritic symptoms as their main complaint.
I must be honest that it worries me that you might be jumping from the frying pan into the fire. Personally, I am very leary of the long-term effects of taking anti-depressants, so be careful that you study up on all the side-effects and try not to become dependent on any Rx med which is known to have addictive properties, if you can possibly avoid it.
posted
One doctor told me my Lyme disease (and I tested positive for it, mind you) was caused by a defective gene that activated spontaneously in the presence of deer. Several people told me it came from thinking too much for myself, and I had to let a man do my thinking for me if I ever wanted to get over these distressing Lyme symptoms. One rheumatologist told me that what I needed was a thorough breast exam, which he would perform himself, of course. I can't even count the number of people who told me it was an emotional issue, or that God was deliberately making me sick to teach me a lesson, or that this was a sign I didn't really want a career, or was trying to avoid adulthood by creating a health problem (I'm 37, so it's a little late for that one). Two people told my I had psychically directed a tick to bite me. And eventually, I noticed something interesting. Not one of these opinions seemed to have any effect on my health. I just got sicker and sicker, until I was completely disabled. Then I tried this neato thing called "antibiotics." Wonder of wonders, these seemed to have an effect, no matter how I was feeling at the time that I took them.
It's great if you've found your problem, and don't really have Lyme. Lord knows, it will save you millions of dollars. But believe me, I'd pay that financial price many times over to get back the last four years of my life. Please, don't throw away your precious time and energy just to help a supposed medical expert avoid being humble in the face of something he or she may not understand.
posted
P.S. Depression in Lyme patients is often caused by inflammation. Try celebrex or some other anti-inflammatory for one day and see if it helps you. For me, the effect was obvious within twenty minutes of taking the drug.
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Dougie, I did a little more searching and found a great website for you. It contains info about other infectious pathogens which can cause arthritic symptoms besides LD. Here's the link to it.
After looking over the list of pathogens on this webpage, be sure to click on the other webpages on that website. The doctor is a rheumatologist who is keenly aware of the infectious origin of rheumatic diseases.
PS - Don't forget to consider the possiblity of a toxic root canal tooth, in case that might be a problem for you. Here's a website with info about this.
posted
If it's just anxiety and depression than why would you herx from abx?? I don't know any depressed people that get worse from taking antibiotics.
Be careful,
DawnE
Posts: 158 | From Great Neck, New York | Registered: Sep 2002
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
WOW!
I had the same thing told to me when I was urinating blood and spurting nose bleeds like Old Faithful.
if its just anxiety and depression in me, slap my on my behind and call me Sally!
No really, are you being sarcastic? If you're not, keep this in mind.
41 is specific for lyme. Only way to get that band is exposure.
Lyme, anxiety and depression run hand in hand.
There is no ONE known cause for anxiety or depression but it *may* *may* be a chemical imbalance in the brain ( ever listen real close to Zoloft commercials?) Nah, try
infection, yeast, etc.
Antidepressants, antianxiety meds most of them contain chemicals that can actually SUPRESS headaches and inflammation associated with lyme thus giving you an "oh my god Im cured " effect.
I know, I lived it. I started on zoloft the same DAY I started on abx. I was out mowing the LAWN the same week. I stopped the zoloft and symptoms rushed back in.
Sorry, Id rather not mask my own symptoms.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
It would be a good idea to read this about the WB, and especially read what it says about band 41....as well as the fact that you can test + for ONE band and have Lyme.
Good luck! You'll need it if you are going to fall for what your duck says.
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hey Dougie, I really and truly hope you don't have lyme. That said let me share my experiences. Before my dx of lyme the ducks said I had ankylosing spondilitis, Post polio syndrome, and then when I told them I was getting sicker when they gave me anti-inflamatories at high doses (600mgs lodine 3times a day) and I was a vietnam vet of course I had post traumatic stress dissorder. The shrink put me on xanax, zoloft, ammitryptiline. I became a freakin zombie. I was about to take my own life and prayed to God to give me the answer. Two days later I surfed the tv and got tunnel vision on a lady (polly) talking about her symptoms. I said to the lady on the tv "you sound just like me" "what have you got"? This lady was Polly of Lyme Conecticut and the show was the Discovery channel. Divine intervention? Can't explain it any other way. Anyway since then I've been thru several campuses of medicine and even spent the night at a lockup psych ward,,,why? Because the 1st duck dropped me as a patient in the middle of oral abx's. The second doc even after I told him my story put me in the nut ward. The VA was convinced I was nuts and a drug addict.The orthopaedic doc thoght I was a guy who liked to get cut on periodically. I've been diagnosed with bi-polarism,PTSD,manic depression,obsessive compulsive,delusional,suffering from dimencia(spl)...always because the damn ducks would'nt give me antibiotics when I knew that it was what mad me better instead of treating or "masking my minds ability to appreciate pain". No I have'nt had a lot of luck killing this damn bug outright yet either but I never ran into as aggressive a doc or my insurance was'nt right even for the three LLMD"s I saw in the past. I think I have found that doctor now thank God. Yess after being dropped by both my LLMD and primary scare doctor I looked up and somehow knew this doc would help me. Of course I was manic at the time but I'm convinced divine intervention has helped me again. I seem to be at my lowest whenever the REAL DOC steps in to save my bacon. There's something HE wants me to do yet...why else would he keep helping me. I know HE loves me. Well like I said I pray you don't have this lousey disease...but be cautious cus you may get to the point I did and you won't know what the medication is giving you or if it's the disease, Nuff said the zman
------------------
Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
This post was just intended to share my experiences and offer a friendly suggestion to those of you who have not yet been evaluated by a psychiatrist as well.
It was quite shocking for me to have all my aches and pains (really they were pretty bad!) magically go away with some of these antidepressants.
As for herxing? Well for me it turned out that I am somewhat manic depressive and that I would assosiate a herx with a depressive episode.
Posts: 45 | From Portland, OR | Registered: May 2003
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
Whatever works for you, great.
But the majority of us are not bipolar (my kingdom for one manic episode) and your experience does not apply.
We have an infection, and for some of us, hearing one more time that it's all in our head is one cowpie too many.
Antidepressants may help your pain levels by changing your brain chemicals -- a nice side effect, but not the cure for people with lyme.
posted
Dougie-- You shrink should be reported to the medical board. This is rediculous, anxiety and depression do not cause pain!!!!!! They can exhasurbate the symptoms. As for the herxing, you probably were. Your anxieties and depression symptoms were probably making the symptoms worse. I have been to shrinks that just say its all anxiety, BUT IT ISNT!!!!!!! And if you listen to that bull****, then your just as stupid as the rest of them and will have a miserable life. Oh yeah, the reason why the antidepressents were working is because they were numbing you nerves. That is also what they do besides their main purpose. This is riduculous, so ridiculous, and so encorage you to reconsider and don't let that stupid ****ing psychiatrist mess with your head
Posts: 227 | From CA | Registered: Apr 2004
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
D-
It sounds like you're loved alot.............
At first it sounded like hand slapping, but I think people really care. They don't want to see you miss any boats. Just be sure to keep a calender of how your feeling. I'm assuming your off antibiotics. The log may come in handy in the future. Be sure to measure temperature in late afternoon during any sag time.
Also, I can't really stand up and clap over the WB tests, even those from Igenex, but periodically do PCR's. Take PCR's from MDL and Igenex for Lyme and co-infections.
What I mean is, stay on it..........don't dismiss it or forget about it.
Heaven knows, you wouldn't wanta be back hear with us loving Lymies any longer than you have to be...........
Smiles, hugs to all--
Grett
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Hi Dougie, It appears you are rock solid in your new diagnoses from ONE psychiatrist depsite VARIOUS (as you say) respeceted LLMDS's saying you have lyme. You have ditched the work of your LLMD's in favor of one psychiatrist who is not schooled in LD.
Suddenly, on the word of one, you are ready to reject all of the previous doctors diagnoses. I can understand wanting this to be true. However, you need to do more homework.
I had seen a psychiatrist years ago for panic attacks. As time went by he added bi-polar and then ADHD. As more time went by I learned about LD and shared with him. 15 years later!
He has since diagnosed another psychologist in the office w/LD and the pshycologists wife and kids. He has diagnosed his own wife w/LD. His is diagnosing patients in his practice and they continue to show up at our Lyme education and support group. He currently is very up to date on his lyme information DUE TO ME.
He is aware this bacteria can pass our protective blood brain barrier and do damage a psychiatrist would typically never suspect unless he is educated about LD, damage usually associated with syphyllis, the cousin to lyme disease
He understands this is transmitted the same way as syphyllis and that's why it runs in families. Is your psychiatrist lyme literate? Is he/she well read on the topic? And I mean WELL READ, not just what you've "said", but written, documented articles such as When to Suspecy Lyme Disease.
Any "specialist" such as a psychiatrist must be shown data to support such claims we make before they would consider LD as a possible cause. Otherwise their job is a slam dunk w/a diagnoses of depression and anxiety. BTW, what is the cause of this depression and anxiety???
Additionally, I have been working on another psychiatrist who is SLOWLY 'gettting' it. Her partner's are already aware of lyme sx crossing over w/mental.
As Tom Brokow reported "experts say many people wandering the streets in a state of psychosis may simply be undiagnosed Lyme Disease".
As you should know, a symptom does not have to be as extreme. Depression or psychoses, you have a positive band 41. Have a Bowen test done unless you simply don't want to deal with your LD until it deals with you.
If I had seen this was post #2 or 3 from you I'd have said "troll alert". I wish it were that easy. Consider doing a Bowen, it's not all in your head, especially the band #41.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Good luck BUT sorry to say you will be back. Lead a horse to water but you cant make it drink.
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Many antidepressants balance your neurotransmitters, including increasing seratonin. This alone can reduce pain.
It has been found that many people with fibromyalgia have a reduced amount of seratonin and increased amount of Substance P. Substance P is basically the neurotransmitter that tells your brain you are in pain.
Many people believe that the neurotransmitter issue with fibro is a symptom, not a cause. In that case, it could accompany people who have lyme or other disorders characterized by widespread pain.
If you are feeling better, physically and mentally, than I am happy for you. Sometimes all we need is to be at peace with ourselves and our illnesses.
But if you are just giving up because this seems easier, than I urge you to find another doctor to talk to and to research why antidepressants help reduce pain.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
The great magnesium website (www.coldcure.com) was authored by a man who had manic - depression. A very serious form of depression. It is a huge website with tremendous research (links).
Stress, poor diets, AND certain pathogens can deplete the vits. and minerals that keep us healthy.
No wonder so many Americans have Mg deficiency symptoms and they are so varied. Look at the list of lyme symptoms (40+). We are a "stressed out" nation.
I think it may be time to add yet another supplement into our foods.
Our foods used to be healthier. But along came pesticide use which depletes many nutrients. Yea, I know...need to make more food for more people, but that puts us at risk.
We manage to mess up a lot of things that are really good for us.
We don't like the "taste"/smell of well water which is full of nutrients, so we treat it...
The list goes on.
BTW...B6 is needed to make serotonin, dopamine and melatonin. Mg is needed for serotonin UPTAKE.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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jen13
Unregistered
posted
To the poster who said anxiety/depression do not cause pain, that is incorrect. They can be associated with pain and often are.
Maybe this guy is right and the antidepressants are the ticket and he will feel well on them and not have too many side effects. In such case, quality of life is what counts.
If he finds over time that he relapses or the symptoms come back, then he can reconsider.
JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
Dougie:
I really and truly believe that the SYMPTOMS of Lyme CAUSE anxiety - NOT anxiety CAUSES the symptoms!!!!!!
I've had several doctors feed me that BS many times before. You're just anxious, take these pills and your twitching will stop. Take these pills and your vision problems will stop. Take these pills and your muscle spasms and muscle cramps and rib soreness and lung soreness and joint aches and stiffness and headaches and short-term memory problems and long-term memories problems and your concentration problems and slurred speech and the problems you have with name/word finding and sore breasts and flu-like achiness and IBS symptoms and tremors and exhaustion and night vision problems and floaters and stomach spasms/twitches AND everything else will ALL GO AWAY MIRACUOUSLY WITH ONE PILL!!!! IT'S REALLY ONLY ANXIETY.
Anxiety MY ASS!!!!
If that were true, if every one of us were really just anxious or depressed and we could take a anti-depressant or anti-anxiety drug and be CURED - WE'D ALL BE TAKING THAT PILL!!!!!!!!!!!!!!!!!!!!!!!!!!!
Deep down inside you know whether you are/were/am really depressed or anxious.
It's SOOOOOOOOOOOOOO much easier believing the doctors. It's so much easier to believe that maybe you are a little crazy in the head and taking a drug will cure it all. It's so nice to be able to put your trust in doctors - to let THEM handle it instead of you having to handle it. It's so much easier thinking it's anxiety or depression vs. wondering what the heck is wrong with you.
And it's SO very easy to believe the doctor vs. yourself. It's hard not to doubt yourself because it's a "doctor" telling you all this. I mean, who are you compared to a doctor who went to school all those years, etc.
I once started thinking that, hey, maybe the docs are right. Maybe this IS all in my head. Maybe I am imaging or creating all this. And I took pill after pill after pill. I took all the different side effects that came with the pill. I became paranoid, had panic attacks and became anxious ON the medication prescribed to me - I had never been this way before. When I told the doctor, ummmmmmmmm - I'm having panic attacks now on this medication - the answer was LET'S ADD NERVE PILLS!!!!!!!!!!!
Don't doubt yourself. Just because doctors keep telling you something doesn't mean you have to believe them. Noone knows you or your body or your mind better than yourself.
Self Doubt is a very bad thing. You will eventually pay a price for doubting yourself.
I also agree wholeheartedly that a case of Lyme may not be the root of his problem
The 41 band can also be caused by cross-reactivity to other pathogens(EBV for one) and has been indicated as making a appearance amoung those who are dealing with cetain types of dental infections
But to furthermore confuse this gentleman--yes, a 41 band can mean infection--or exposure at some point in his life to this pathogen(you did not mention if this was a 41 band IgG--which in *theory*, is a sign of past exposure--or is it a 41 IgM band---which is a signal of active infection) A total *picture*of your syptomology would also be needed to help the doctor along with a clinical DX of Lyme
Just keep it in the back of your mind to check in with your old LLMD if you do not see signs of improvement that are lasting
posted
Hi Dougie, That is great news. Have you read the new pamplet that ilads put out "What Psychiatrists Need to Know About Lyme Disease?" Stay well and be in tuned to your health just in case. I know all of us really do pray you are healthy & fine. Take care. Vee Vee
Posts: 107 | From MD | Registered: Jan 2004
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Lyme is NOT necessarily the cause of anxiety/depression and pain! Before I ever got lyme disease, I suffered from these things.
Lyme disease can certainly initiate anxiety and depression in those who have not had it before, but if you are a person like me (and possibly Dougie?), you're predisposed to these emotional upheavals, and attributing it to a physiological effect of lyme can be problematic.
I find that the anxiety and depression CAN exacerbate any pain I am feeling. If I take an anti-anxiety pill.. oddly, the pain is often reduced! Imagine that!
So... understandably many of you have secondary emotional problems due to lyme... but let's try not to assume that 100% of emotional problems are due to physiological problems like lyme (or magnesium deficiency) that can just be cured with Abx or a supplement. Some of us were born with the predisposition for depression and the source is buried in our brains!
Karyn [disclaimer: not having followed Dougie's full history, I don't necessarily apply anything I've said here to him.]
Posts: 25 | From Philadelphia, PA | Registered: Apr 2004
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