posted
I was watching the Dr. Phil show today and it was about kids with violent behavior and rage attacks. It was interesting the first two kids also had been diagnosed with ADHD, and the mother of the second child had medical issues, although they did not say what they were.
The whole time I was sitting there saying to the TV eliminate Lyme as the cause. Dr. Fallon says that all kids with ADD/ADHD or Psychiatric problems and live in an endemic are whould be worked up for Lyme.
Anyways I sent this letter off today, thought I would share it with you all.
Dear Dr. Phil:
I watched your show today about raging kids. I am a fulltime single father of two boys. I have been my boy's fulltime caretaker since my youngest was 9 months old. He is now ten. Two years ago he went from a straight ``A'' student to a ``C'' student in school. He also started to have these violent rages. Nine months ago I found myself in the same situation as the parents that were on your show today. I was so scared by my son's actions; I did not know what I was going to do.
For 15 years I have been suffering from some chronic illness. The doctors were unable to define it, but 5 years ago, I nearly died from an episode of TTP. Three more years went by and 40 additional doctors, before I was officially diagnosed with Lyme disease. Last September, after the doctors started going down the ADD/ADHD road with my son, I started to wonder if he in fact was suffering from the same disease.
I got in touch with Dr. Jones in Connecticut. He is considered to be the worlds leading pediatrician in Lyme disease. He has personally handled over 6000 kids with Lyme. Several weeks later the blood test results came back and showed that my son in fact was also infected with Lyme. We started him on large dosages of antibiotics and now 7 months of antibiotics later we are starting to see results. His ADD, dyslexia, and depression are subsiding. In addition his grades are also improving. But the biggest improvement I have seen is that his rages and violent behavior has gone from a daily behavior to nonexistence. We have not had one incident in the last four weeks.
I know I am not alone facing this issue. The parent's of other Lyme kids that I have talked to all say the same thing; rage is one of their child's biggest problems. Lyme is becoming a national crisis. I am not saying that Lyme causes all ADD/ADHD or Psychiatric disorders in children, but I am concerned that it is being greatly overlooked.
Dr. Brian Fallon of Columbia University has said in several position papers, children that live in a Lyme endemic area and have symptoms of ADD/ADHD or other Psychiatric disorders should be evaluated for Lyme. The problem is that the CDC and the State Departments of Health have greatly underestimated the spread of this bacteria across the United States as well as the number of people infected with the Lyme as well as other bacteria that can cause as much if not more problems than Lyme. This has created a situation where endemic areas have not been properly identified. All of this has led to a uniformed medical community and public, which is delaying proper diagnosis and leading to potentially unnecessary pain and hardship
There are a growing number of kids at my son's school that have developed strange undiagnosed neurological and autoimmune disorders. In addition, the number of kids being diagnosed with ADD/ADHD has risen dramatically at the school. I can not help but think there might indeed be an epidemic of Lyme at the school. I have been trying to convince some of the parents to contact Dr. Jones, but since the health department is involved over this issue at the school, they are reluctant to do so.
I know that the medical community is split on what to do about ADD/ADHD and Psychiatric Disorders in children. A lot of well respected doctors are against medicating children for these problems. The reality is that could be a big mistake, as it turns out most do need to be medicated but not with psych meds but antibiotics.
Had they treated me when my symptoms first appeared, I might not be as ill as I am today and might have avoided the several near death experiences as well. My son on the other hand might be one of the fortunate ones, because it looks like early treatment might save him from a life of a chronic illness. This was due to the fact he had someone in his life that understood his symptoms and got him the help he needed, but what about the ones that don't have that advocate.
The most disturbing thought about all of this is what we are doing to our kids, by allowing this bacterium to go unchecked. So many kids have had their life destroyed. They are being forced at an early age to face pain, isolation and depression on a daily basis because of how this disease affects their bodies. They are being robbed of their youth and innocence. This is time they will never recover.
The Lyme community is in desperate need of help from the media in spreading the information about this disease. We need this help to expose what is going on and challenge our government to act and face the truth about this disease. Without this support, many more will become infected and have to face a hostile medical community. I thank you in advance for any assistance you or your show might be able to provide.
Sincerely,
Posts: 533 | From Las Vegas, NV | Registered: Jun 2003
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Great letter! I hope Dr. Phil decides to listen.
posted
What a marvelous letter....I truly hope Dr. Phil will get involved....and God Bless you for all you do for your children as sick as you are = what an inspiration
posted
Loved your letter, it is very good. Hopefully, fear doesn't cause him to ignore. I also watched that show. I had major rage as a child, but had to be provoked. I see that same temper in my son.
If he did a show or shows on lyme, it would become a household name as some many watch it. If he did shows others would follow as they always copy each other.
posted
My mom sent this to me as I too am having major troubles in this area!! I am actually taking her back to the DR tomorrow to try and get to the bottom of all this.
She was diagnosed with "ADHD" ofcourse. Been on 36 mg of Concerta for about 2 months. It HAS helped her in the classroom. Boy, do I feel for her teacher. But, I must say she finally got an A in citizenship!
I was also concerned about S.I.D. (sensory integration dysfunction) It has so many Anyone ever heard of it? Not a common diagnosis,(has MANY of the same symtoms) and it takes an occupational therapist to diagnose. But, I am NOT ruling out LYME as a culprit yet either.
Would it just be easier to ask him to do "THE TEST"? Is it Western Block? My mom is just to frusterated most of the time to talk to, however she is very knowlegdable!! Thank-you
By the way, my mom is rosesisland incase you did not know.
Posts: 688 | From SW Arkansas | Registered: Dec 2003
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
In the articles to be published about my family this coming week...this is the part of Lyme we wanted them to focus,,,
Pediatric Lyme.
Lookin....your Mom is a wonder...she WILL get well.
Yes, please....rule out, rule out, rule out....and if the tests are not "positive" ask for emperical treatment for Lyme as it is truly a clinical diagnosis and the tests are NOT 100% reliable.
If your child reacts to the meds for Lyme....antibiotics...not anti-inflamatory...this will be THE indicator.
I know that rosie hasn't had an easy go of this disease....and is frustrated...however, give this child the running chance they deserve....today. www.drcharlescrist.com
Trout
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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posted
THANK YOU for posting this and for writing the letter. I'm going to write one too. I could hardly watch the paint the families were in knowing it was most likely due to lyme. I watched the first young man and saw the dark, dark circles under his eyes and thought how toxic his little body must be. It was so sad to see him miserable and being punished for behaviour beyond his control. Poor kid! And now he's got Dr. Phil on his case. . . not MY idea of a dream. Dr. Phil is a good man but he obviously doesn't know about lyme. When he said he didn't know why, but he just wanted to explode and be angry, I could relate. Below is a little article to example what we've all been talking about:
FRIDAY, Nov. 17 (HealthScout) -- The young man went to see a psychiatrist after he'd picked up a friend and thrown him down a flight of stairs. At work, he'd slammed a co-worker against a wall. He'd never had these kinds of aggressive outbursts before and was genuinely frightened by his behavior.
But the psychiatrist, Dr. Brian Fallon, an associate professor of psychiatry at Columbia University, noticed something else. Six months earlier, the man had complained of having trouble putting his words together. Diagnosis: Lyme disease.
"He had a classic case of Lyme disease," says Fallon, who also is director of the Lyme Disease Research Program at the New York State Psychiatric Institute.
Caused by the Borrelia burgdorferi bacterium and transmitted by tiny deer ticks, Lyme disease has been reported in nearly every state and throughout Europe and Asia. It begins as a skin rash, and early symptoms often are flu-like, including fatigue, headache, fever, muscle stiffness and joint pain.
But if not treated early, Lyme disease can attack the central nervous system and produce a variety of psychiatric disorders, "from depression to full-blown psychosis," Fallon says. "Panic attacks or new onset irritability, insomnia, concentration problems and depression, or what may look like depression, may actually be undiagnosed Lyme disease," he says.
That's why it's called "The Great Imitator," Fallon says: Lyme disease symptoms are similar to those of a host of other medical conditions. And that's also why a psychiatrist can be important in diagnosing the disease, he says. Fallon discussed his work at an American Psychiatric Association meeting a few weeks ago.
"Psychiatrists can be very helpful," he says. "We know what panic attacks and depression look like. If a patient also has numbness and tingling, migrating joint pains and a hard time finding the words to say what they want to say -- instead of 'convertible,' they might say 'a car without a roof on it' -- that's classic in Lyme disease, but you don't typically see it with depression."
Plus, the standard blood tests for Lyme disease have a significant rate of both false positives and negatives, he says, creating a significant number of misdiagnoses.
Dr. Edward Truemper, director of pediatric intensive care at the Clute Barrow Nelson Children's Center at St. Mary's Hospital in Athens, Ga., says he's seen enough Lyme disease with neuropsychiatric features - from seizures to altered mental status -- to always ask where a younger patient lives and plays, and whether the child has pets.
"The ticks for Lyme disease are on deer, dogs and cats," Truemper says. "If [pets] get into the woods, or you're just in your yard and you've got deer, squirrels or any species with fur, the chances of ticks are very real."
"When you don't have an explanation with a person with neurologic or psychiatric symptoms, you need to not say it's all in their head," he says. "There may be an underlying organic illness, and one of those we're seeing more and more is Lyme disease. We may not be able to diagnose, but we put them on the antibiotic, and they get better."
Most people do respond well to the standard treatment, which is four to six weeks of intravenous antibiotic therapy, experts say. And sometimes the results are startling, Fallon says.
"There are cases of people I've met with full-blown dementia that was reversed with appropriate medication," Fallon says
posted
I would imagine that if I do here something back it would not be for awhile, just sent it this week.
Posts: 533 | From Las Vegas, NV | Registered: Jun 2003
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posted
Dr. Phil "doesn't do diseases." That's what the ex. producer said to me when I handed him a notebook of info and stories I put together on Lyme. I work as a freelancer in LA and occasionally get called in by the Dr. Phil show for my services.
However, he told me that the key into the show is to find a way for Dr. Phil to DO something, intervene, solve the issue. He's not a med. duck. Bad behavior caused by Lyme or some other illness? Dr. Phil gets to do something.
The show's screeners are in possession of my book, and have been alerted to look for messages that have LYME in the subject line.
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