posted
Last year, shortly before my husband was diagnosed with Lyme, he started having severe lower backaches.After treatment for the Lyme started ,they went away.However, within the last month they have come back.Does anyone know of anything that works for these?He takes Motrin 800, but it doesnt phase it.He tried Vioxx, but is allergic to it.Does anyone know anything, even "home remedies" so to speak that help this?
Posts: 46 | From Michigan | Registered: Mar 2004
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JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
What about Flexeril? That helps alot with my back pain and the muscle spasms I sometimes get.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hydrocodone may help and keep taking the motrin for antiflamatory aspects talk to your LLMD
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Has he had an MRI of his lumbar spine?
Posts: 1010 | From Mars | Registered: Feb 2004
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posted
No, he hasnt had any MRI's. I have tried the heating pad, arthritis patches, etc. Nothing really seems to help much.He first got the horrible backache we are guessing soon after the tick bite, but then with Doxy, it went away.He has recently had a relapse of many of the early symptoms, such as the bullseye rash, the back pain, weakness.The pain is right about waist level, where your back meets your hips.
Posts: 46 | From Michigan | Registered: Mar 2004
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posted
Im wondering if doxy dont cause this because with this last round of doxy i also have had major back pain right where you said it was with your husband. Now two things helped me Lots more water. And i came off doxy too.
Its very painful and hard to walk to with this i felt like i had a board nailed to my hips. Thought it might be arther to???
Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Yes, TM is an issue to address w/a Neurologist. Lyme arthritis and degenerative disk disease is also something we can face as we age. It's stange; some have bulging discs and ddd, yet have no pain. Others have pain.
While I've read TENS can be contraindcated for Lyme, I find it very helpful for lower back & joint pain. My LLMD said it was OK as a substitute for pain meds.
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I did'nt know tens machines were contraindicated for lymies. Hey I've been using mine off and on since I got it from the VA....I have success with it for pain relief when I criss cross the red and black electrode pads accross my lower back.
Don't get angry with my next suggestion cuz my LLMD told me it would'nt work and I don't know if I set myself up for future problems as yet not presenting themselves...and I know we're supposed to stay cleare of steroids but...
right after my right total knee replacement in 99 I developed excruciating radiculating pain in my right hip. I let them put in a caudal block in my spine. My LLMD at the time told me it would'nt work but it did the very first of the three injections. I did'nt have any pain there that was real serious since. That pain never came back (yet). Just recently I (as we speak) am experiencing aggravation of my left sciatica brought on by the oxycontin's constipating effect on me. I am due for left total knee replacement the 25th of this month...if I experience the same herxiemer and radiculating pain as I did with the right knee...I will once again ask to have the caudal block administered...cuz it worked and I was at pain level WOW12 and could'nt take it and do PT. Now for some it won't work and for some it seems to last from a month to a year...but I think worth looking into....................the zman
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Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
My husgands doctor uses something called an Alpha Stim (hope I am remembering that right).It works for a bit, but since he only sees his LLMD about every 6 weeks, it isnt enough.You can buy them though for about $850.
Posts: 46 | From Michigan | Registered: Mar 2004
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posted
I've suffered with lower back pain for the last 30 years...ever since age 16 when my younger brother jumped on my back in the swimming pool.
I strongly suggest he find out exactly where the pain is coming from first. Then take the appropriate measures.
Personlly, I have found a good yoga teacher. Appropriately taught back exercises have helped me more than anything.
Again, it depends on what's causing the pain.
Nancy
Posts: 963 | From N. Olmsted, OH USA | Registered: Jan 2003
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Just a thought... have you checked your mattress for sagging????
That's what was going on with me. The bed, although only 4 years old and a top-of-the-line mattress, had a 2 inch sag. I replaced my bed with a SleepNumber bed (air filled).. Heaven. No more lower back pain.
------------------ Julie G. ___________ lymeinhell
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Shy, i've seen those alpha stimulators for around $200. online a while back. It is the one that is put on the ear lobes, right?
Laney
Posts: 44 | From San Antonio, TX USA | Registered: May 2004
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Tony, the TENS contraindication was anecdotal via another Lymenet member. My LLMD din't oppose. I'd check w/your LLMD for both the TENS and the injections.
My LLMd suggested I up the acidophillus & Collace as a way to combat the binding effecr of pain meds/
Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
Shy,
I'm so sorry to hear of your husband's back pain. I am seeing a neurosurgeon next week for a re-ruptured lumbar disk myself . I had surgery to repair it a year ago.
Let me preface this next section by stating that I hate painkillers and almost never took an aspirin before my back went out (just as I hated abx and always avoided them before lyme), but I have been forced to understand why some people use them.
If he's screaming in agony (been there, done that), oxycontin should help by putting him basically out of it for a while. If he has pain that sometimes stops him in his tracks, or if he spasms up at night like I do, hydrocodone works for me for that. Someone else mentioned Flexeril - maybe worth a try.
If he has generalized lower back pain that bugs him constantly, extra-strength ibuprofen or bextra handles that for me, and when the pain was not too bad, I've used Dolisos brand homeopathic backache remedy with success, even though I was on abx which theoretically should have kept the homeopathic from working.
But as everyone above says, it is imperative to find out the exact cause of the pain. An MRI is in order.
If he has a compressed but not ruptured disk, there's a technique called Vax-D that I've heard good things about. It's basically "The Rack".
I really don't know if my back problems are "due to" lyme, though some people feel theirs are. Had I not made that assumption myself and seen a back specialist when I had my "warnings", I might have avoided surgery...and possibly another one in the near future.
There may be other factors that predispose him to lower back problems, so I hope you will see this through with the doc and don't ignore it.
posted
Thanks all for the replies.We talked to his LLMD and he put him on something called Skellaxin(sp) which seems to be helping. They are thinking that because he suffers from night time back spasms, it is being caused by his muscles tightening up. This medicine is pretty expensive, but what medicine other then Doxy hasnt been.
This Alpha Stim can be used anywhere Laney, I am not sure what the difference between the one you found and this one is, but I will check next Wednesday when we go back to the Dr. and let you know. It does bring him alot of relief for several weeks.
I am fairly new to this board, but would really like to say I have never "met" a better, more intelligent, considerate, helpful group of people.Thank you all.
Posts: 46 | From Michigan | Registered: Mar 2004
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
Shy,
Skelaxin doesn't touch my nighttime sciatica and spasms, but here's hoping it's a winner for your husband. Sue
posted
Lower back pain comes with the territory in chronic Lyme disease. If the symptoms went away with treatment why not go back on treatment. my symptoms returned after idle for year and half and came back with a vengence. the lyme doc needs to retest and retreat you for possible recurrance ,or reinfection as the docs would say since there is no recurrance of lyme. IV rocephin or doxy for 60 days minimum may be the treatment of choice along with zithromax. test for co-infections also.
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posted
That sounds exactly like my husbands Dave,they are actually thinking he may have chronic lyme and have ordered more tests.He is on Doxy again and they are also trying other things with it, as hes allergic to penicillin. He is still working, which is a minor miracle, so heres hoping that it doesnt get any worse then this.
Posts: 46 | From Michigan | Registered: Mar 2004
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
Shy,
Though lyme certainly may play a role in my lumbar disk degeneration, I chalked up the warning signs to lyme. Only when I landed on the floor with spasms through my butt to my feet in both legs and couldn't get up for about 5 hours, was it found that I had a ruptured disk.
If that's the case, lyme tx will not repair the disk. Please, have him get an MRI. If my bulging disk had been caaught before it ruptured and treated preventatively, I may not have needed surgery and caused this chain of events that will probably require more surgery.
People with back problems can be bitten by a tick.
posted
sorry to hear of your husbands back pain , i get the same thing alot of times this is my bodies indication that i am overdoing so i lay down with the heating pad also my dr put me on colchicine and it has improved. good luck
Posts: 106 | From south western new york | Registered: May 2004
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