posted
I am tired of antibiotics and what they do to my body. I have been off them for the last five months or so, and seem to be plataouing. I haven't gotten better or worse.
I'm at the point now where I can do anything, but I still have problems digesting foods, and also occasionally with headaches and fatigue. I have had quite a few stressful things happen to me lately, yet I'm still holding steady.
What are the best ways to attack Lyme without antibiotics? I run 45 minutes 4 days a week, I lift weights, I get my sleep, I take some herbs from a naturopath.
Are there any suggestions from people who have been cured without antibiotics to get over the last little hump? I am anxious to get everyone's imput. Lymenet is such a great tool.
posted
Have you tested for heavy metals? How long were you on ABX? Long to be worried about yeast/candida? If so, have you treated for candida?
A number of Lyme patients have indicated that metals and candida can hold you back from full recovery. As a result, many people find that both need to be resolved to effectively deal with Lyme.
lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
In my opinion there are many adjuncts that you can use for therapy like herbs, rife, cranialsacral therapy, acupuncture, homeopathic medicine, vitamins, etc...but they still need to be used in conjunction with the abx....
I"ve gotten to about 95-100% on the combos above with abx...slowly...it's a very slow process...you have to give it time...you'll plateu, then change meds, then plateu again....then take two steps backwards, then one forwards etc...
have you discussed coinfections with your llmd? many find if they plateau or dont get better it's because they have an underlying coinfection that isn't being treated, adn if thats the case , then more than likely the lyme WON:T go away until that's treated. it's like spinning your wheels....
unfortunately abx none of us like..but as anurse I think you do have to use it at some point for some length of time in combo with many of the above treatments to totally eliminate the bugs....
just my humble opinion....and I'm doing very well now, thanks to this way of thinking...
I'll keep you in my thoughts and prayers...
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
------------------ Do unto others as you would have them do unto you.
[This message has been edited by treepatrol (edited 13 May 2004).]
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
At one time, the "fighting" of Lyme did me more harm than good. After a few months of abx, I learned to clean up my body which in my opinion made it possible for the Lyme to flourish in the first place. That is what cured me.
You may still find some of my posts.
Good luck.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
I do not have candida, but I have not been tested for heavy metals or coinfections. Should I do this? How can I test for these? How do I treat them? How does rifing work and how much does that cost to start up?
Posts: 204 | From Wyoming | Registered: Feb 2003
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Hi, I'm a chronic lymie whose been off abx with no relapses for eight months. These are the things I've done during/and or since going off the abx:
agressive anti-candida treatment. My Lyme doctor told me about a new line of natural products that I feel have fought the yeast better than Nystatin, diflucan and acidophilus.
The products are made by the Garden of Life (www.gardenoflifeusa.com).(They're sold at Whole Foods Market, as well). I take something called Primal Defense. You have to s-l-o-w-l-y make your way up to the full dose because
like Lyme, you herx when you are killing the yeast and whoa, this stuff kills those yeastie beasties.
I try to stay on the no sugar/lo carb diet (but cheat here and there), exercise 2-3 times a week and take PH baths by Master's Miracles.
I know I sound like a walking advertisement but out of all the products I've used (and they have failed me), these are the ones I've found advantageous.
The final thing I've done is to remain on my alternative program which you can read about in the archives under my name: can't hurt & might help.
There are skeptics as this program really is a stretch, but I tell you, I just know it has been one of the key factors in my recovery.
posted
missextreme...test for coinfections through a lyme literate md, test for metals through a good naturopath physician, and learn about rife machines through the following link.. http://hometown.aol.com/theskyking/myhomepage/profile.html
Concerning rife, you can connect to a busy discussion group on this website, as well as contact the author of the site for more information.
Concerning co-infections...I'm copying a recent newspaper article below. I copied it off a recent post to the eurolyme newsgroup.
The Newtown Bee Newtown CT No Longer Just Lyme-- Co-Infections Challenge Doctors And Patients By Dottie Evans [photo omitted on LymeInfo] Dr Richard Horowitz, specialist in diagnosis and treatment of Lyme and other tick-borne illnesses, spoke Monday night at the Fireside Inn. --Bee Photos, Evans An informational forum on Lyme disease sponsored by the Newtown Rotary Club in cooperation with the Newtown Lyme Disease Task Force on Monday night at the Fireside Inn was so well-attended that chairs were at a premium. Several of the 300 attendees stood at the rear throughout the two-hour presentation. When Pat Smith, Lyme Disease Association president, asked how many in the audience had suffered Lyme disease, were now suffering from it, or had a family member who was struggling with it, more than 100 hands went up. Connecticut Attorney General Richard Blumenthal, also on the panel of presenters, spoke briefly and soberly about the impact of Lyme disease on Connecticut residents, especially children. "This battle is profoundly important. Lyme is an insidious, growing threat and if we have children, we are more cognizant and sensitive. I applaud the courage of people such as you who are coming forward." He added that the state system for reporting Lyme disease cases "is woefully inadequate, and a new standard for diagnosis needs to be realistically set." Ms Smith also spoke on behalf of children with Lyme disease. "Schools need more education on this issue. The children suffering with Lyme or other tick-borne diseases [termed TBDs] may experience a 20-point drop in IQ, and a drop in grade point average. They suffer psychological damage when they are unable to participate in sports, lose friends, and feel isolated," she added. It seems that children, as well as the elderly or those with compromised immune systems, are at the greatest risk of contracting Lyme disease. And while Lyme disease caused by the spirochete bacterium Borrelis burgdorferi is most widely recognized, it is not the only infection that can be transmitted to humans by a bite from the black-legged or deer tick. Several other infectious diseases, such as erlichiosis, babesiosis, and bartonella or cat-scratch fever, may also be passed along. In fact, as many as 40 percent of those suffering chronic Lyme disease may also have one or more of these other diseases. "Patients are having trouble getting diagnosed and treated," Ms Smith said, adding that under current Center for Disease Control (CDC) surveillance criteria, only one-tenth of actual cases have been reported. "The fact that Connecticut numbers in 2003 were down 72 percent is the result of the fact that labs are no longer required to report the cases. It's a paper drop only," she cautioned. A Social Phenomenon: Nightly Tick Checks The evening's keynote speaker was Dr Richard Horowitz, a former assistant director of medicine at Vassar Brothers Hospital and currently a practicing physician in Hyde Park, N.Y., who has dedicated the past 20 years to the study and treatment of Lyme disease at the Hudson Valley Healing Arts Center. "I've treated more than 7,000 cases of persistent Lyme, and I can tell you it's a very complicated disease, and it's everywhere. Prevention is impossible. Only Antarctica does not have it," Dr Horowitz said. "You must be your own doctor. Do a tick check every single night. Find someone else, and do it together. If you find a tick, remove it with tweezers and pull straight up," he advised. "You must also think like a doctor. Lyme disease presents with clinical symptoms that you must learn to watch for," Dr Horowitz said. These symptoms include feeling tired and experiencing night sweats and chills; drenching sweats during the day; a stiff neck and headache; memory problems and difficulties recalling words; joint pain that comes and goes, and migrates throughout the body from knee to elbow to shoulder; sensitivity to bright light; and flulike symptoms. "Obviously, you must look for the expanding, red EM rash [erythema migrans] within three to 21 days after the bite. It will disappear even without treatment and may lie dormant for ten months," he warned. "Not everyone who has Lyme gets a rash," he added. If additional symptoms such as seizures, nausea, or vision problems persist after initial treatment for Lyme disease with antibiotics, this is a signal that another TBD may be involved. "There is a universe of organisms that these ticks contain and treatment must be different for each disease. You might need more than one drug. Most people are multiply co-infected," Dr Horowitz said. "In the office, I've seen patients as sick as those with congestive heart failure. Talk about terrorism being a threat to the United States; we're looking
at an epidemic of Lyme and other TBDs here, and that is the worst threat imaginable," Dr Horowitz said. A Universe of Co-Infections Besides the Lyme disease bacterium, there are an increasing number of other infections that may be transmitted. Erlichiosis may cause flulike symptoms, usually occurring within five to ten days after the tick bite. "A patient will also present with high fever and aches and pains, as well as a low white cell count, high liver functions, and low platelets. Erlichiosis is very specific and can be treated well with antibiotics if it is caught early," Dr Horowitz said. Babesiosis, a malarialike disease, also presents with an intermittent high fever, but includes chills and drenching daytime sweats, loss of appetite and anemia. "Forty percent of those with chronic Lyme are co-infected with babesiosis...it takes a whole battery of tests to diagnose it." Bartonella, also called cat scratch fever because it can be transmitted by a cat bite or scratch as well as a tick bite, may cause seizure disorders and memory loss or confusion. There may be vision problems and it may present with significant lymph node enlargement. Again, treatment is unique and specific to the disease. Dr Horowitz closed his talk on a hopeful note, mentioning that for the first time in 20 years, he has seen evidence of a possible treatment solution occurring right before his eyes, "in my office during the last 30 days." A patient had come in who suffered from Lou Gehrig's disease, and was given glutathione by intravenous injection to remove heavy metals stored in his brain cells. "Neurotoxins produced by the Borrelia spirochete, or Lyme disease bacterium, also interact with heavy metals in our cells," Dr Horowitz pointed out. After being given the IV dose, the patient showed 90 percent improvement within ten minutes. His joint pain was gone and his cognitive symptoms improved markedly. "We repeated the experiment doing a double blind test with saline instead of the glutathione," Dr Horowitz said, adding that the results were encouraging and consistent. "All these chemicals in our bodies cause inflammation, and glutathione seems to act like a sponge that pulls them out. I'm very excited about this." ****
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