posted
I would like to thank everyone involved in Benicar discussions for trying to keep their emotions under control as much as possible.
Everyone's frustration is understandable due to the nature of this topic.
However, in an effort to calm these tensions down, the topics pertaining to Benicar as well as Bachinsky will be moved to General, where those who are interested can continue their discussion.
Also, please try to refrain from using the word "Cure" loosely.
Thanks.
Posts: 164 | From South Florida | Registered: Jun 2002
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Good move una. The previous post is one more example of the nature of the issue. David
Posts: 2034 | From CA | Registered: Jan 2003
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
I fail to understand why things get so heated on this board.
Benicar could be a cure...for some people.
I just dont get it.
I believe that Zithromax was a cure for me. Is it a cure for everyone? Of course not.
But the way people act on this board sometimes no wonder people call us crazy & a cult!!!
posted
Why is Benicar protocol in general and not medical?? I tell my lyme freinds to go to medical and check out the various new and old protocols........So your saying that Benicar protocol, has no merit......How about rife???/ How about pulsing antibiotic combos, not approved by mainstream medical. you threw the baby out with the bathwater. The rules should be you start a thread, under medical, and discuss,if you disagree give your opionion, like "caution this is new, no long term history, experimental" But ,let the well intentioned people, like Scott, give his opinion.If it is a thread on Benicar, stay on topic. No ICHT,or character attacks. ON TOPIC.Or start your own topic, and be respectful. It is like a debate, be ojective, no personal attacks. You need a Dr. Rx to do the protocol anyway, thats how this all works.
Posts: 512 | From Memlo Park, Ca USA | Registered: Sep 2002
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
Tree, thanks but that wasn't it and the second one did not link to anything.
Free's or Scott's continued post on Benicar is not anywhere that I can find it.
posted
Semper Fi is right. This is a doctor's call and not a patients. Scott is not on a street corner writing people prescriptions and promising cures. Now I understand the phrase "Don't kill the messenger." Unfortunately that's what always happens.
Scott has been staying on topic throughout all the threads. The only thing I've seen is him getting blasted by angry and scared people. He has a right to defend his position and he's done so with intelligence and reason. I'm glad he's stuck around to do even that because he has nothing to gain by ending up on Lymenet's chopping block.
Una, I have gained a ton of knowledge and that's because Lymenet is easy to navigate and open all kinds of discussion. Thank you for keeping it that way.
Posts: 373 | From Southern California | Registered: Jun 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
roseisland I moved one up in general I hope its the one your looking for.I gota go now Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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posted
Una, you need to look into those character attacks, JWR made against Scott, suggesting he is Marshal and Penny is his wife. This goes to why this all started. You have punished the rest of the good people trying to find answers, based on someone elses spitefull attacks. This is un American. We are trying to find out the benefits, if any the marshall protocol can give. Simple. What ever suggestions are brought up, people will decide on their own. To do this protocol you need a Dr to agree and give RX. So get this site back on track. Edit the JRW, out of line comments, and stay on topic. You have punished the rest of us, with the bad attitudes of some. Now do the right thing......
Posts: 512 | From Memlo Park, Ca USA | Registered: Sep 2002
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posted
Topics containing personal attacks get moved. Period. That's been the way here forever, and I think it's good practice. Check out the rules of the forum.
We're lucky it wasn't deleted..MANY posters got out of hand, not just one "side" or the other.
Discussion of these ideas would benefit some..discussion.
Please if we can be civil..some of us are trying to look at information..just look..figure things out..
I think the reminder not to use the word "cure" loosely is also very important to the responsibilities to the group.
Una is doing her job, and quite well, I'd say. Please don't start attacking her, too.
If everybody settles down and discuss information rationally, there could be allot of benefit from that...reguardless of the outcome or the validity or invalidity of certain ideas.
Mo
[This message has been edited by Mo (edited 13 May 2004).]
Posts: 8337 | From the other shore | Registered: Jul 2002
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Una,
Trout
[This message has been edited by troutscout (edited 13 May 2004).]
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
Semper...what the heck are you talking about?
Penny is Marshall's wife?????? WHAT????
Scott is Marshall?????
Excuse me....do not EVER put words in my mouth...I have never done the same to you, ans havw ALWAYS been courteous to you even when YOU, yes YOU were very combative before you got ICHT. I voiced my fears, but ALWAYS wished you well.
ENough making up devisive stories. I was using POETIC LICENSE...implying a love fest...regarding same mind sets...not something as rediculous as you stated.
I think that is pitiful.
Just like in ICHT when people who CARED for you opposed your going for treatment...you BLASTED them just for their concern.
SO BE IT. I officially do not care what happens to anyone who puts their trust in someone who has no clinical experience, no studies of his own, no affiliation with a real research institution.
Semper...you are one of the lucky ones re. ICHT, and I am glad you are well. It seems most of the others are having a return of their symptoms. You, or the others could have been killed...we tried to point this out.
No one, hopefully, is going to die here, but the Hypothesis is NOT PROVEN.
Why is this so difficult for you all to see.
Believe what you want...I will rely on reputable researchers and LLMD's, who have EXPERIENCE with this disease...something sorely lacking with this protocol.
Another point...LYME is called 'The Great Imposter" because it produces the SAME SYMPTOMS as a lot of diseases...to say that the presentation of Sarc and Lyme have similarities that overlap, can be said for MANY other diseases...is LYME the cause of ALL of them???
Highly unlikely. Proof??? NONE...
I my friend, am trying to use logical reason. I ask for proof. I ask to see clinical studies. Where are my answers?
OUT OF CONTROL???? The only thing that is out of control is people posting unproven CURES and making fact out of hypothesis.
danq
Frequent Contributor (1K+ posts)
Member # 2126
posted
Thank you, Una.
I wish there were a section called "Controversial" or even "Contentious" to move this to because it really doesn't belong in General Support either; but that's not currently possible, so you did the best that can be done for now.
Thank you.
And for Trout: the only discrimination going on by Moderators - now or in the past - is against posters who can't stay away from intemperate remarks. One could ask, since you claim discrimination: have any of your posts been deleted or edited?
Dan
Posts: 2420 | From Davis, California | Registered: Feb 2002
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posted
What? Now you want to move anything about Benicar treatment to continiuos. Just keep people on topic. Delete JWR tirades, on those topics and keep on topic.
JWR, if you really cared just say, not proven, new, becareful. And leave it at that. You go after the person, Scott, Marshall. You bring up ICHT again why? It worked for me and others. My wife [ a biologist] tells everyone, it saved my life.Does ICHT have anything to do with the Benicar treatment NO, but you brought it up
Posts: 512 | From Memlo Park, Ca USA | Registered: Sep 2002
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posted
Let's just put it in "off-topic" and pretend it doesn't exist. Then let's pretend that we don't have Lyme. Right on.
Posts: 373 | From Southern California | Registered: Jun 2003
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Trout
[This message has been edited by troutscout (edited 13 May 2004).]
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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posted
It's been a couple of weeks since I last put in my two cents. I was so disgusted by the thread I stopped reading it. Things haven't changed.
I'm still taking cozaar. I'm still doing very well on it. I have very minor breakthrough symptoms, but overall I'm still thrilled. It is NOT a cure. It does control most symptoms for me.
I'll once again state that I see no proof that benicar is superior to cozaar. If cozaar works for me, maybe it will work for others. I also have an daughter who has chronic lyme. I took Scott's word for it and started her on benicar rather than cozaar. She is not doing as well as I expected. Maybe she should be taking cozaar. It's possible there may be gender differences in response to these drugs. It is also possible that many of us have a label of lyme, but suffer from other things in addition.
Please don't give up on ARBs. We don't have enough information yet.
I have not been able to work full time in years. I am now working 3 part time jobs and I'm not exhausted. It's unbelievable!!
posted
Hi J123, what dosage of Cozaar are you taking? I tried 100mg and got fatigue, numbness, muscle twitches etc.
Posts: 35 | Registered: Oct 2002
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
J123 and Eric, You might want to re-post your responses under the topic on Experiences with Benicar, which you will now find in the General Forum, instead of here in the Medical Forum. Re-posting your same message there, instead, will make it easier for others who are interested in your progress to be able to find it now if it's placed together with all of the other similar posts.
Here's the link to that topic for your convenience:
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The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
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