posted
I don't fully understand why I have to deal with an alternative practitioner to deal with candida issues.
I know that my MD put me on Nystatin without doing any tests. In fact, he told me he didn't understand chronic candida and didn't know if tests were available for it.
I've read where others used the western blot to determine the extent of candida issues.
Also, 3 weeks of Nystatin didn't do anything for me. I haven't tried diflucan. I am working with a practioner who specializes in candida and leaky gut. For me, it is a slow process.
However, is there any medical speciality that actually knows what they are doing in this area? Or do we have to rely on alternative practitioners for any help with candida?
My MD also did not know that Candida albicans can change to a mycelia form with root-like projections that can puncture the intestinal wall. Leaky gut often results. My MD did not know anything about leaky gut either, or if there were tests for it.
I guess I'm trying to understand what is missing in conservative medicine that they don't seem able to deal with issues that need to be dealt with before we can beat all aspects of Lyme, including candida.
posted
I'm sorry to say that I must throw my disgust in here as well. I just don't understand what is so rocket science about this if there is so much written about it.
But maybe for me it isn't the lack of knowledge that I find offending, but the offhand manner in which I get a shrug and a flip of the hand in the air as if "que sara sara" as they pass the bill along the desk. Plus, the feeling that the doctor these days don't feel in the least obligated to provide me with actual health care for my $$$.
Even my LLD, whom I respect greatly, said, "I just do the antibiotics, you do the rest." when I asked about overgrowth.
And yet somehow, because of the complete lack of treatment in the past, I find that I am grateful for any little bit of help I do get, so I don't complain. Does anyone else feel that this has been the vast plan all along? Shame 'em into submission...then they'll be so miserable they'll be grateful for anything? (It worked) (shamefully) (Laney)
I mean't to say that my blood levels are low in all four subclasses of IgG and also low IgM, IgA. My doc says he doesn't know what to think about it?
[This message has been edited by lymielu (edited 14 May 2004).]
Posts: 44 | From San Antonio, TX USA | Registered: May 2004
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posted
You are reflecting my experience and frustration with my MD in this area. As you said, is this really rocket science?
Is there a specialty that my MD can refer me to that may understand how to read a western blot in regards to candida? Does anyone have any experience in this area?
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Hi James,
That is a problem with even the best of the llmds, as many don't use many holistic protocols or know how to detox.
The best doctors for leaky gut and candida are the environmental doctors. There are also chiropractors/others who do Bioset and Total Body Modification. You would need to look up both these terms to see if a practitioner was in your area.
I have been working with a Bioset practitioner for a month, and only he figured out which foods I was intolerant to, how to help my digestion with enzymes, and use glutamine for leaky gut. It is a slow process, but in a month's time, it is the best I have felt in years.
The Bioset and TBM work energetically to help clear the body of toxins and allergies.
The Great Smokies Laboratory has testing for leaky gut and I believe it is with stool testing.
Good luck.
[This message has been edited by ArtistDi (edited 15 May 2004).]
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
I believe, in my opinion, and through the loud mouths of MD's that have absolutely no clue,
that "everyone has candida". And in fact, it is true in a semi catch 22. Everyone is suppossed to have a SMALL amount of the "Bad critters" to balance the good. SMALL!
And based upon that right there, I had three doctors tell me that neither MY nor my son's problems could possibly be due to candida because EVERYONE has candida. Yeah phewy to them too. They don't realize at what level does candida become a problem.
For most MD's, having them recognize and treat lyme is a crap shot, just like trying to have a regular MD treat lyme. It won't work. More than likely, they will give you a sample of diflucan and call you cured.
Candida is VERY VERY hard to get rid of. It's a full fledged battle as is lyme.
I was just reading an herbal book last night that stated " when one has candida overgrowth, it is NOT the yeast that makes them sick, it is the way the body breaks that down in the system and how food is incorrectly absorbed due to, so digestive enzymes work better"
I went to a wholistic doctor for my diagnosis of candida which came way prior to my diagnosis of lyme. They found yeast up my nose, in my mouth, under my toe nails, in my URINE, blood and other fancy places. Im loaded. Great Smokies Lab, as one had mentioned is one of the better labs for yeast. They have an online website that you can
surf through that talks all about their tests, and what certain positives mean. You can order their tests through their lab for free, but a MD or wholistic doc ( still an MD) or whomever, has to write the script for you.
And as someone mentioned, even most LLMD's don't realize the significance of yeast.
And if Di is reading this, Im VERY interested in the bioset doctors and will poke around to see if I can find someoen in my area. I was just told by my LLMD that my remaining symptoms sound like allergies to food cause by more than likely- yeast and not so much lyme anymore. Im scared to death to take the plunge off abx without having someone in my corner to fight my yeast.
Unfortunately for me, I got "into it" with the wholistic doc who did treat my yeast when I told him I had lyme. He said, oh great if I tell you you have HIV, will you take meds for that too? I left and never returned.
I hope this clears up for you James. There is a candiadiasis board on yahoo too if you are interested. Curezone.com also has a candida board. Very knowledgeable people there.
Good luck.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Jodie, I saw your post, so I am giving some information. After I crashed from a too much, too hard, too fast antibiotic approach for a sensitive body (and I was almost well), I had a hard ride.
It is not over, but I decided to be pro-active and started researching how people with mcs beat it.
I found common links in the recoveries. Those who used Bioset or Total Body Modification, were often able to get better along with other protocols.
The practitioner works energetically and tests the body for everything! Will test you on supplements, drugs, etc, organs.
The big things that I learned about recovering from illnesses such as ours: Nutritional deficiencies and detox problems.
I have been doing sauna detox, bought a rebounder (mini trampoline) to help detox the lymph system (Dr. Cheney recommends this for CFS) and have been working with Bioset.
He helped to determine my toxic levels, which organs were being hit, and what foods were problematic. I rotate my foods, Jodie, and keep a log to see what I react to.
I was not able to tolerate fruit for almost a year after the crash, and now I am slowly adding them back in. The practitioner will do acupressure or acupuncture to help aid the detox. The key is to get the energy systems of the body to stop reacting and settle down.
I also do meditation every day, prayer.
This (knock on wood, knock on wood) has been helping me for the first time.
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Most conventional MDs do not know enough about Candida to treat it properly. My blood tested way positive for Systemic Candida. My own PCP said she didn't know what that meant and would have to look it up in the PDR. I went to 3 Gastro MDs who said I had Irritable Bowel and gave me anti-spasmodic drugs that blocked me up. My Lyme MD said Candida is not a problem but gave me a script for Diflucan because I was miserable with symptoms. The die-off was horrible, which confirmed that I had Candida. I finally saw a Chiropractor/Nutritionist who put me on a sugar & carb free diet and supplements to correct the Candida and repair the leaky gut. Boy am I glad I saw him! I am finally seeing improvement in my Lyme symptoms because the Candida symptoms have started to subside. You will have to take control of the Candida issue yourself. I don't think the MDs will be helpful. There are some good books on the subject. "No More Heartburn" by Dr. Sherry Rogers explains leaky gut & Candida very well. Hope this helps.
posted
There are some issues that conventional medicine is not very good at, and they happen to be the things we deal with most in chronic Lyme. They don't think mercury is a problem. They don't think Americans have parasites, they don't know enough about candida, don't care much for detox, and they are not doing well with chronic illness in general.
Posts: 284 | From Austin, TX, USA | Registered: Aug 2003
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