LymeNet Flash: Plaquenil? Seems like a bad idea -- input/experiences?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Plaquenil? Seems like a bad idea -- input/experiences?

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Topic: Plaquenil? Seems like a bad idea -- input/experiences?

minoucat
Frequent Contributor (1K+ posts)
Member # 5175

posted

The LLMD has prescribed plaquenil to help potentiate the zithromax.

I'm very worried about the possible tendon damage. We're in the middle of the babs protocol and doing ancillilary tx for Bb; at this point I'd rather finish off with babs and try another approach to finish of the Bb.

what have your experiences with Plaquenil been? Any spectacular successes?

Posts: 2331 | From WA | Registered: Jan 2004 | IP: Logged |

liz28
Unregistered

posted

It has been very helpful, although it's not a cure. It gives you a burst of energy, and clears some of the neuro fog away. When I don't take it, I do notice a slight difference in fatigue/stamina levels. But other abx/herbs have done more.

IP: Logged |

lla2
Frequent Contributor (1K+ posts)
Member # 2364

posted

tendon damage isn't at all aconcern with plaquenil..and it's great for two reasons.

zithromax alone cannot get inside the cells to kill the keets..with plaquneul, the blood ph will change and allow the zithro to become intracellular and get INTO the cells to work better at killing them.

secondly , there is some research that shows that plaquenil is effect in killing some of the cyst form of the spirochete as well.

it's also an antimalarial and works well for babesia..i guess that's three reasons. I've been on it' steadily now for over 2 years while all my other meds have changed for coinfections ect..it's been my mainstay adn i'm about 95% better...

I think it's great, and i've had no prblems what soever on it..

oh, and it's an antiinflamatory as well, many times used with lupus patients for that very reason....

Lisa

Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002 | IP: Logged |

Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

posted

I've had an eye exam every 6 months for 2 year with no problems. I will say that Plaquenil caused my hair to fall out & when I stopped taking it, it stopped falling out. It's a listed side effect. Many don't have this issue but I did.

Posts: 1010 | From Mars | Registered: Feb 2004 | IP: Logged |

3greatkids
Frequent Contributor (1K+ posts)
Member # 3838

posted

A base line eye exam would be a must and checks after like lyme said. I have been on it since Jan. with Zith and have seen improvement all around but still have a ways to go with the Babesia I think. Good luck

Posts: 1076 | Registered: Apr 2003 | IP: Logged |

minoucat
Frequent Contributor (1K+ posts)
Member # 5175

posted

Thanks so much, everyone. The pharmaceutical info said depression of tendon response, but I wasn't sure how severe that might be. The doc did ask that the baseline eye test be done.

The babesia treatment is finally going really well -- at the 3 month mark, things have finally turnes around. So, onwards and upwards.

Posts: 2331 | From WA | Registered: Jan 2004 | IP: Logged |

ELymeNancy
Member
Member # 4930

posted

I can't tell you anything good or bad about plaquenil. I am on it with biaxin and I understand that it is meant to help the abx get into the cells where the keets can burrow into after you are in the chronic phase of Lyme.
Hope you have luck with it.
Nancy

Posts: 89 | From CT | Registered: Nov 2003 | IP: Logged |

lymebrat
Frequent Contributor (1K+ posts)
Member # 3208

posted

Hi,

here is a link to some info I posted about plaq awhile ago..

Plaquinel:
http://flash.lymenet.org/ubb/Forum1/HTML/014267.html

hope this helps..

Lymebrat

Posts: 3154 | From NH , USA | Registered: Oct 2002 | IP: Logged |

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