posted
I have to say..I remember Memorial day like it was before Lyme... Camping, fishing...Being with friends and family... But here I am...Alone...You know it is so sad how this changes ones life. I cannot hang out with friends...I have to come up with excuses basically to try to explain why "I don't feel good".... Are there others out there like this? So...Here I am...On the little message board again...lol Lyme really sucks. Prayers to all...Karrie
Posts: 99 | From Hastings, NE USA | Registered: Jul 2003
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lymiecanuck
Unregistered
posted
Hey Karnie,
You're not alone there. I am having a terribly depressing weekend. We had our holiday last weekend, which only included my husband being home for a change. I spend most of my time, just my son and me, and rarely get visitors etc.
Honestly, not often in the mood for visitors cause of how i feel and the questions from others. My friend came over yesterday, and told me I looked like Ihad a pint of blood taken out of me. I was already upset about looking so sick lately and getting no help and that was it, I cried the rest of the night away.
So who would want to come over right? I hear you. I was in the mall the other day, thinking about how simple life used to be. How we take so much for granted and so many complain when they have good jobs and their health.
Try and cheer up and I will to. At least we are not out camping getting bitten by tics and misqitoes.
posted
Oh Sweetie...I can so relate...Just now my daughter said lets just take the dog to the park...I am going to try to do this...But I am herxing from Zithromax (I was given that for a sore throat last week) And I am just in so much pain all over. But yeah, I can honestly understand. Take care...Let me know how the rest of your weekend goes. Luv, Karrie
Posts: 99 | From Hastings, NE USA | Registered: Jul 2003
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Karrie, I hear you 100%. I share your sullen sentiment. This topic hits home with me. Hence why I'm sitting at the computer on this sunny holiday. I was invited to Nantucket(Lyme Central) for the holiday but declined.
I'm just too fogged out to make the trip, then be in a festive mood. I hate to spoil the party or make anyone feel guity that I'm too out of it to participate. It makes me sad as well, but it's a sad part of lymelife and I deal with it. There's so much of life I miss and I just want to be in it, not looking in from the outside. Enjoy your holiday.
posted
I am thinking of all of you... I know it is sad...Somehow, there has to be a way for us to get better. Someway.... Love and prayers, Karrie
Posts: 99 | From Hastings, NE USA | Registered: Jul 2003
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posted
Hi Karrie! Well, I was invited to a cookout of sorts...mostly indoors and on the back porch. So I'm sitting there chilling out, and a lady across from me tells me there's a TICK crawling up my leg!
I didn't even scream....and my kind, understanding friend just reached over and took the rather large tick off my shin!
Believe it or not, I had even sprayed Off! on my ankles, anticipating the possibility of mosquito bites!
I guess I'm just a tick magnet! The owner of the house said he hadn't seen any ticks around there in about a year.
I am so sorry for your sadness, i had an emotional crash on thurs. and frid. forced myself to go to church last night i am glad i did i literally cried my heart out to god at the alter and such a peace came over me he is the only one that keeps me going, there is hope a year ago icouldn't speak or walk had alot of cns invovement. much better now however some days i am just tired of everything my husband and son are going to try doing something today, i don't drive cause of the lyme so i really feel trapped at times. my prayers are with you, you can email me if you want to
------------------ waiting and praying for a miracle
Posts: 106 | From south western new york | Registered: May 2004
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cootiegirl
Frequent Contributor (1K+ posts)
Member # 3216
posted
Hey Karrie, I don't think we've 'met' yet....I'm so sorry you feel so poorly and so isolated. I think holidays add an added level of stress to our lives.We look back sentimentally on the 'good old days' and feel alone and lonely.
I've thought about it a lot since I've been sick. I think people have huge expectations for holidays - lots of activity, family peace, perfection where ever it can be achieved. And when we fall short of those expectations, sadness hits.
Now I love Christmas. It's my only 'official' decorating holiday - you know the whole thing from Thanksgiving to Christmas Eve, trouncing thru the woods to cut the fresh tree...well since I've been sick, I scaled back tremendously. I might only bake one kind of cookie, and if I don't, no biggy. That's why God created bakeries! I keep preparations very simple and in tune with what I feel I can do. When I was feeling particularly poorly, I still went for the Christmas tree, but I waited in the car while my husband and kids wandered the woods, and 'picked' the tree via walkie talkie! That was one of our funniest memories to date!!!!
I'm not a real party animal by nature anyway and am just as content to have my husband and children around and nothing else. If I don't feel like socializing I beg off. If I do, then I keep it simple....
This is what I do, and I'm not saying that it will work for you.....I don't look at holidays as anything special. If I get together with people, fine, if not, it's a bonus day to kick back. There are many other days throughout the year where I feel up to spending time with loved ones. I don't visualize 'perfection'- actually the less perfect, the more I like it (I'm a weird individual). I do what I am physically capable of doing, and that is 'perfection' - heck waking up that day is 'perfection'!
I remember watching this episode of Oprah, where Martha Stewart was on. There were several women in the audience that were going thru really rough times and saw themselves as total failures because they felt they could not live up to all the things Martha could do!!!! I thought, 'wow, what a sad bunch of people.'. But again, it's all about expectations. The woman has a staff of thousands in the background making her cakes, arranging her flowers and sharpening her tools LOL! I've glanced at her magazine and just laughed - it's unrealistic to spend your days making curtains out of dishclothes. Her way of doing things should be a guide, not the gospel....
Well I am thinking of you today. It's very hard and discouraging to be ill and it can really get to a person. So I'm glad you came here for some support!!!! It's raining where I am today - total washout for parades and cookouts, but I'm gonna snuggle down for a nap and maybe watch a movie with my family. cootiegirl
Posts: 1728 | From New York State | Registered: Oct 2002
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posted
Thanks to all of you...I am glad I am not alone feeling this way lol Anyway..You all know me..A year ago I found you, then I went on my antibiotic therapy for 30 days and started feeling better...But I have relapsed. Actually, you all helped me through my seizures in the middle of the night...And also when my husband left me for my best friend! LOL Oh yes, you all know me...lolol I am here if any of you need someone...I can be like the resident emergency contact since i am on here all of the time...I remember all of you doing that for me a year ago lolol Love and prayers...And yeah I need to keep my FAITH alive... Karrie
Posts: 99 | From Hastings, NE USA | Registered: Jul 2003
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posted
I know Jordan..Isn't the yeast fun? Man...They don't prepare you for that stuff do they? I can't even have a glass of anything with alcohol...Makes me real sick... Well hey, at least we can feel sorry for our selves and each other together now...lol Take care..write if you need a friend. Love and prayers, Karrie
Posts: 99 | From Hastings, NE USA | Registered: Jul 2003
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
quote:Originally posted by jbgoth: Karrie,
Just wanted to share that im bumming too.
I was in NY and didnt even have a pretzel or a slice of pizza. I did have one glass of wine but that only started a current yeast problem.
I cried everyday because i was feeling sorry for myself. Im so tired of being sick.
Just want you to know that you are not alone.
Jordan
Jordon,you were in NYC and didn't have a Hot Dog, ploppy slice-o-Pie, egg cream, pretzel, etc!? As Mike Meyers would say...I'm fahklempt!
It seems there is a large handfull of us here on this day. Vic has been sleeping for the last 10 hr. good for her she needs it.
So Im here with you guys reading your posts hoping to find something that make my wife well again.
We know how you feel we used to do so much fishing, hiking,riding bikes ect, ect.
Havent even put our boat in the water in two yrs. Vic cant take the ride if the water gets rough out on the big lake ( huron ) and its to big for the small lakes. Keep saying we are going to sell it but dont have the heart, to many good times for Vic and I on that boat.
Well anyway you all have the best day you can.
Goodby Steve
[This message has been edited by V. Owens (edited 31 May 2004).]
Posts: 81 | From Alpena, MI., USA | Registered: Mar 2004
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