I could not find the thread i started. Very weird. Why would it be removed/missing?
Anyway, i wanted to add that i called my LLMD today and told her i was still having problems with yeast. The nurse called me back and told me to take acidophilus(im taking it up the wazoo already plus tons of other stuff) and to buy monistat 7 day treatment.
I just spent another 50 bucks today on olive leaf and oil of oregano.
I asked about getting nystatin and she would NOT prescribe it!!!!! Im so upset. The nurse said "well, you are on ABX so your going to get a yeast infection". I could not believe she said that to me.
Im trying to follow this "darn" diet because of yeast. I went to NY and didnt even have a slice of pizza because of yeast. I think i understand that you can get an yeast infection from ABX.
Maybe im over-reacting, but it really bothered me. Nystatin is suppose to be non-toxic. Why would she no prescribe it?
Im seeing her next Friday and im going to ask her about this. I will change doctors if she will not prescribe it. She is a WOMAN, you would think she would understand.
I feel my body needs to heal itself. What differnce is going to make whether or not im taking these ABX. I have only taken them for about a month. I probably have had lyme for years.
I have a fever, my head is killing me and im feeling very alone. I feel i need to get the yeast under control, and its just not happening.
I think i felt better before i ever started the doxy.
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You're at the point with your abx that you've hit the herx cycle -- you'll definitely feel worse now, for a while, than before you started. It's really better to stay on the abx if you can.
I don't understand your doctor's attitude to yeast. The monostat is helpful, but you probably have a systemic infection and need nystatin or diflucan (which don't always work, but are great when they do). Some docs pulse diflucan during abx. So yes, insist she take it seriously and help you treat it.
I eat tons of garlic and yogurt; over the long haul, and with the occaisonal help of nystatin and diflucan, this has really helped. The olive leaf was good, too.
Thanks for writing. Im just feeling very depressed about EVERYTHING. I have been taking Wellbutrin for about 3 years now and it has been great. But lately, i feel its just not working.
Yes, my doctors attitude really bothered me. If i was not trying SO hard, i dont think i would be this upset. The diet is just killing me. Mentally and physically.
I used monistat last night. Why not? I guess it cant hurt.
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Hi Jordan,
Sorry things are so tough. I have a couple of thoughts.
The nurse may not have wanted to give you Nystatin because it really only works in the gut. It is not absorbed, so doesn't work systemically. They may be trying to keep levels of drugs you are taking down.
Even though people take Nystatin and Diflucan commonly, they are not without risk. Many people have allergic reactions to Nystatin, and candida is becoming resistant. Diflucan is very hard on the liver.
So, while they can be important when necessary, perhaps the nurse is going for the simplist remedy first.
I've found that different probiotics have different potency for me. You might try a few brands and see which help the most.
Going off the abx may help, but some people have more trouble with yeast in the period right AFTER taking abx.
I've found the only way to stay on a low carb diet is to make sure I have a few things around to eat that I really love, all the time.
It's not going to work if you constantly feel deprived. You have to have some legal goodies, and eat them freely.
I looked at the acidophilus i was taking and it contained sorbitol! It is a refrigerated strawberry flavored 20 billion probiotic.
Maybe the sorbitol is contributing to my problem.
I have another acidophilus to use which only contains 3.4 billion per pill, so i guess i could take 4 of those. I dont think you can OD on acidophilus. I hope.
I tried the monistat last night and i am much worse today. Maybe im allergic to it. So, i took the diflucan that i had.
I am taking milk thistle because of the diflucan.
I have never had problems with yeast before so this is really throwing me for a curve. I think i may have had a total of 3 in my whole life (im 36).
I continued with the ABX, since im having relief with my joint pain. The fevers have not gone away :-( but they are low grade.
I cant thank you enough for your reply. Im really stuggling here, physically and mentally.
But, i have read your story and WOW, i cant believe everything you went through. You are a VERY strong person.
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Jordan, I think basket case is synonomous with having Lyme. Don't worry, we all understand.
The sorbitol could well be a problem. Try your other probiotic. The capsules shouldn't require any sweetening or flavoring.
The monistat made you worse? Hmm. I've actually been fortunate to not have much trouble with yeast, though I have a lot of other fungal issues. I have occasionally used a probiotic capsule inserted vaginally when I felt something creeping up.
But I haven't had a bad infection. Hope the Diflucan does it for you.
As far as being strong. There were years when I felt I never stopped crying. I think now I'm just worn out with it. I don't cry so much now, but I've been known to complain, believe me!
So don't feel bad about how you are responding. We've all been there. This is a tough one, and most of the people you know aren't going to have a clue what you are going through. When you come here, we understand.
Interesting about inserting a probiotic down there.
My GYN said he knew a doctor who was very interested in yeast issues. Maybe i will give him a call. I guess i could have a doctor just for yeast!!! Brainstorm here...its a rare accurance.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Jordan,
If the Monistat made it worse, then the Monistat is working. Same herx theory as with Lyme and abx. When I have vaginal yeast infections, the second night of using a cream is always the worst.
That said, it's sounds like the nurse you talked to doesn't understand systemic yeast.
If you are on abx and having vaginal yeast problems, you likely have it in the gut. If you do have a systemic problem, it's not easy to get rid of. It's not like you can be on abx for a year and then just do monistat when you are done.
A few years back, I was on abx for 2 months for a sinus infection. I had recurring yeast infections for a year, and it took months of the diet, creams, diflucan and abx (because I got bacteria problems too) to get back to normal.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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When you had the systmematic yeast, how often did you take the diflucan?
What i find strange is that diflucan always clears up a vaginal yeast infection with just the one 150mg pill.
Now, i have been taking it for over 2 weeks, 100mg pill, and im still dealing with a slight vaginal infection. So, I have been using the monistat and you were right, its getting easier.
Is the diflucan working on yeast somewhere else in my body?
I have increased my herbs to include Olive leaf Oil of oregano (wild) Grapefruit seed extract Garlic Yeast fighters (many things in it pau d' arco, caprylic acid, etc.)
Still trying to follow the diet. I have given up caffine but still use a few products with nutrasweet (gotta have a caffine free diet coke). Thats it! Otherwise im 100% good, (i think).
I have been feeling terrible, maybe its the yeast die off. I really dont care how i feel as long as im making myself better.
What was your regimen? How did you get a handle on it? Im very interested in taking nystatin since it is nontoxic.
Im hoping i was tested for yeast. I know i had a chronic fatigue panel run at either IgeneX or MDL.
Thanks for writing. I feel like im making progress.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Jordan,
I started treating my yeast after abx, just so you know.
Unfortunately I don't remember my exact regimen. I know I took 1 Diflucan a week for about 10 weeks. I used prescription creams, but I think OTC and prescription are basically the same. But prescription had insurance pay part of it.
I followed the diet, and took other supplements. I just can't remember which supplements. Wish I did.
I would be exhausted after taking Diflucan. Yeast die off is famous for fatigue and overall icky feeling.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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I must be a sadist because i want the die-off to just start (be terrible) and get over with it, than to stretch it out.
My feeling is "bring it on".
I have been on the 400mg of doxy for 1 month now and i have significant less pain in my chest, knees, and elbows. So something must be working. However, still having the ongoing low grade fevers/fatigue. I must have a co-infection. I will find out soon!! :-)
posted
Hi Jordan... I've read the posts you received and I gotta say, the LymeNet Family is where all Lymies should go to for the truth. I tried Nystatin quite some time ago. I tried it because of a book I have that recommended it. The book is The Yeast Connection, by William Crook, MD. It helped me a lot. The nystatin was helping me a bit I think-HOWEVER- after being on it for a few days, I suddenly had difficulty breathing. I developed a rash too, please be careful. I hope it helps ya. The book also stresses the importance of a healthy diet (but you know that!) Do you eat much yogurt? I'm told the plain (yuck!) is the best (no goodies in the bottom)-years ago, my doc told me to actually "put the yogurt down there" YES....I know, but he did say that and I think it may have helped! Keep doing the acidolophis (sp) and hang in there! Nice to see you've made so many friends here! God's Blessings, Cindy
Posts: 51 | From Louisville, KY USA | Registered: Dec 2003
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I have that book, The Yeast Connection. Too funny. It has a ton of information.
I have been taking advantage of the controversial food, popcorn.
I was also told to put yogurt down there. It does seem to sooth the area. I have never been able to eat the stuff. YUCK. But im taking 3 acidophilus pills, (3 billion each) 3 times a day on an empty stomach.
As i have posted above, im still using some sugar-free, caffine-free, hot coco. I just love that stuff. And im down to 1/2 caffine free diet coke. Thats another hard one to give up. I use to drink 3-4 a day of the real caffine diet cokes, so i feel i have made progress.
Aniek:
I never did tell you you cracked me up with the Ben & Jerry's post.
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