Anyone with any experiences / advice to relate on treating Lyme when it's this advanced? I am under the care of an LLMD, I can walk and work, fatigue easily, exercise anyway. Uncoordinated, a little numb. Any advice or experiences would be appreciated.

I have the feeling this may take some time (years) to reverse, if I can make headway at all.

Thanks.

Good to see you have a LLMD.

I think your gut feeling is right that it is going to take a long while to get better since you have been infected for so long,but everyone is different.

I want to let you know you aren't alone. I believe I was infected for 17 years before being diagnosed.

I think the best advice I can give is to keep a positive outlook. It's easy to get angry at the doctors who misdiagosed you and to become scared of what the future holds. But the last thing any of us needs is more emotional stress.

My other advice is to treat any symptoms that you feel need to be treated. As long as you are treating the Lyme, I think it is ok to "cover up" the other symptoms to make your life easier. If you can control pain, reduce fatigue or anything else, go ahead and do it.