posted
OK IM UP AND DOWN AND IN DENIEL ABOUT THE FACT THAT I MAY OR MAY N0T HAVE LYME OR JUST A REALLY BAD FUNGUL INFECTION OR TOXIC MOLD.IM DOING WHAT I THINK BETTER ON HEAVY HEAVY AMOUNTS OF ANTI CANDITA DIET AND OLIVE LEAF EXTRACT PLUS 50000 MG A DAY OF GARLIC PLUS ASTRAGILLUS AND WHOLE GREEN FOODS PILLS AND ALFALFA...OK IM A WALKING HERBAL DRUG STORE AND I FEEL BETTER..BUT MY LLND SAYS I TESTED POSITIVE AND NEED A PIC LINE WITH 2 GRAMS A DAY OF ROCEPIN FOR 6 WEEKS.I TESTED POSTIVE ON IGENEX WESTERN BLOT REGESTERING CURRENT INFECTION.IM SO AFRAID THAT I DONT HAVE LYME AND IM JUST A SPORE PRODUCING FOOL AND MY DOCTOR IS A TRIGGER HAPPY LLMD>AND WHEN I TAKE THE ROPCEFIN ITS JUST GOING TO UNLEASH HELL ON ME...ANY THOUGHTS OR ADVISE WOULD BE GREATLY APPREACIATED!!THANKS SCARED IN OREGON
Posts: 3 | From yacolt wa usa | Registered: Jun 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
A lot of Lymies have trouble reading large blocks of print. If you hit return occasionally more people will be able to read your post.
Using all caps is also difficult to read, and is also considered SHOUTING.
As I said in response to your other post, it is quite possible to have both mold and Lyme issues.
If you had a positive WB, most competent Lyme doctors would consider you to have Lyme. If you are infected, and have symptoms, the only way you will improve is to treat it.
You may, however, not require IV. I'm not sure why your doctor thinks you should go on IV right away, but many Lyme doctors these days have very good luck treating with oral antibiotics.
If you haven't read much about Lyme yet, I suggest you start with these websites.
posted
If you tested positive for Lyme, I would suggest you get treated for it.
Whatever other infection you have in your body could also be killed by Rocephin. So give it a shot! It's much worse to let the keets in your body reproduce....
Good Luck!
Posts: 712 | From Ottawa, ON, Canada | Registered: Sep 2002
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
And, I might add that Rocephin will send the spirochetes into the cyst form and you'll also have to have a "cyst buster" antibiotic.
So, why not just do orals anyway, as many LLMD's have found out that they have just as good results on orals and oral combos and it it a lot easier on the ole body.
If I knew then what I know now, I'd never have done Rocephin. And, if I'd seen my LLMD, Dr. C of MO, he wouldn't have prescribed me Rocephin as he through his vast experience with treating Lyme patients, doesn't prescribe IV Rocephin unless it is absolutely necessary.
posted
Hey...not to scare you....I've been on IV Rocephin for a year and half. Believe me....my LLMD is anything but trigger happy....and I'm hardly ever here anymore because I'm well enough to be elsewhere. I was extremely sick....Im still not completely well but I can rock climb and show my horse. Rocephin in combination with other antibiotics and physical therapy has been the best thing for me. And yeah, it was....well...heck...to put it nicely....for quite a while....going through this treatment...and for 2 years before it I was on different combos of orals and that was miserable too....at times. With Lyme you PROBABLY will feel much worse before you start to feel better...this happens when the spirochetes (the lyme bacteria) die off and create toxins inside your body, until your body rids of these toxins, you feel pretty awful.
My suggestion.....don't start therapy until you believe in it....otherwise it'll be too hard to stick with it when you hit these herxheimer reactions (the die-off) .....and in my opinion the best thing to do is stick with the treatment so your not stopping and starting and so on....with your positive test results and a doctor whose willing to treat you, I would say please at least give this a try.....but....if your pretty sick now, it's gonna be very hard....so if I were you I wouldnt start treatment until your all for it and you believe in it.
Good luck with whatever you do, I hope you find some answers and feel better very soon...
BTW --- as rosisisland put it....I'm also on a "cyst buster" and when I started it I went through a 6 week, intensely awful herxheimer reaction that I thought I'd never get over....but....once it was over..I began improving much faster and got much stronger very quickly. It definitely made the difference to be on that PLUS the others.
Also....someone suggested why are you starting rocephin without trying other antibiotics first? If you are very very sick, you might talk to your doctor about beginning on something less intense....or some orals that arent too intense. This might make treatment a little easier on you, if it's going to be long-term treatment. I didn't actually start on Rocephin until I'd already been getting treated for a year and half with various orals/oral combinations....for me, those weren't working super well and I was still going downhill in some ways, and the Rocephin really has done/is doing the trick. But as somebody else (I cant remember who) pointed out....some people do great with just orals and don't need IV Rocephin or other IV meds.
------------------ Lishka
[This message has been edited by Amareo (edited 12 June 2004).]
[This message has been edited by Amareo (edited 12 June 2004).]
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