with little to low improvment just steady enought for me to be at a low functional level.

WHY????

would this dossage of

two teaspoonsful of mepron twice a day
600 zithromax 600
four hr IV doxy /every night
artemisia once a day/
5cc glutithione a day

be kicking the living you no what out of me.
I am going in to last days of fith week and still ----I am no better.

this is the (worse) i have every, felt,all at once since being on meds.

every symtom i had before med have come back,

im am even studdering and stammering again
sometimes /when i walk i tip over again./hitting into walls,

im stupid cant spell again and have trouble with letters and numbers (mixing them up again)
dizzness/foggieness

mucles always moving./headache/thinking confusing again/ forgetful
tired all the time but can hardly sleep,I
no/no energy. always out of breath.
fevers on and off.

im not sure how to handle this my family has been dealing with me sick for so long

they had it too.

but thankfully they got better

but i think they think i should of got better too,
even though they didnt get it as bad as me

but now when they see or hear the old symtoms come up,
studdering stammering ,falling its,like they just want me to go away
and act like i am not even there

they stay away from me and if i try an talk about thing,

not illness,

all i get is a fast sentence while im looking at the back of his (HUSBANDS) neck as he is shutting the door.

and hes always mad at me,
for nothing maybe so i wont talk to him.

if i never say one more word to him he would not even try and start a conversation ,

i relize this can be hard on a faimly ,but they all have friend that they talk too.

I havent one friend
sister /mother/brother none that talk to me,
they dont even call on phone to see if im ok. i am
just alone..and sad.

i dont work or go to school,either.
anyway.
im sorry.

i was just wondering if anyone would no why all these symtoms would get this bad again just like i was on no meds /

and is there hope or should i just leave.
so they dont have to avoid me any more.

this is hard on my faimly. (I KNOW THIS)

but i think they forget how hard it is for me because i cant go anywhere to make my day go faster.

they just KnoW when their day is done they have accomplishes something,

and SICK ME HASNT,,,

debbie from warwick.

I cant help you with your questions about the length of treatment and getting better.

Im on the same dose of mepron and have been getting 800mg of zithromax down.

I understand how hard being sick is on a family. It really is difficult and depressing.

I just wanted to send you a hug and tell you that you can email me anytime if you are feeling sad (or happy).

Babesia is a protozoan, and is not affected by other antibacterials.The mepron/zith combination is specifically designed to kill off protozoans like Babs (and malaria).

I don't know what other meds you were on, but unless they were anti-protozoals they would not have touched the babs. That's the way it was for us.

It sounds as if you are having a huge herx from babs die off (mepron/zith) and Lyme die off (doxy). The glutathione and/or the artemesia might be increasing the herx? Could you back off on them? What about backing off the doxy for a while? What does your doc say?

I take artemesinin, not artemesia, but I had a very strong reaction to it at first. I also had a herx-like reaction the 2 times I had IV glutathione -- not a huge one, but I felt it.

My husband is taking a lot longer to recover than I am, and is still quite sick (although I'm starting to see small improvements, entering the 12th week of the protocol). It's very frustrating to have the symptoms and recovery vary so widely from person to person.

This illness is very isolating and very depressing, and it's especially rough when friends and family disappear over the horizon. It's not your fault. It's a lousy situation, exhausting and frightening for everyone. I wish your family could handle your situation better, but many, many people do just as they are doing. So often, anger and rejection are defenses against fear, helplessness, and having to care.

Sometimes, just surviving through another day and continuing to hang onto hope is a HUGE accomplishment. I think you're doing amazingly well.

This IS good news...yes it SUCKS right now, but I can't tell you how many have gone through Mepron and they are worlds better.

i probley no that this is good to be getting this reaction now.

butI just wish i had done it first before everyone around me go use to me being sick ,/

so now it really means nothing to them when i am feeling worse because. really whats worse to me,,///

is just the same to them.!!!

about rife
i cant do that now because im too sick,
ha
but if this does not work then ill look into that
maybe ill just get into a microwave oven and well
you no

or better yet go get some electric shock treatment.

thought about doing it my self.

hiring a hit man might work too.

see,IM CRAZY

ha ,,,
what ever.

I can relate to the husband and no one to talk to--I am in same boat--I bring up anything to do with lyme and I am shut out. Told it is all attitude--if I would think positive I would be better etc etc etc

My family stays gone most of the time so they do not have to deal with me. It hurts but I have also been sick with fibro and 20 other diagnosis's for 15 years until we found out I had lyme--so they all have compasion fatigue.

My therapist has a great website on the subject www.drsallyduffy.com reading it may help a bit.

I have used some of her suggestions. She suggest things that soothe us one of which is rocking so I got a hammock and hung it outside and when I can get my butt out of bed I go rock in it and it does make me feel better.

I have several oak trees and lots of birds and it seems to get me back in touch with life for even 10 minutes.

I also walk in my grass barefoot and water the lawn and plants in the early morning when not herxing too bad and just touching the earth makes life real.

This may all sound nuts, but it has worked for me.

I am an ultrasound technologist who cannot work and haven't since February-a real people person--who cannot remeber her anatomy when speaking to the docs--not condusive with working----this has been the toughest thing I have ever done in my life--and I have had several surgries and a hard life--the herxing and fatigue from these chemicals we put in our bodies is knocking me for a loop as well.

Just wanted to know you were not alone.

ive seen all the shrinks.

they never listen to me.

and i was always having something wrong, but with the kids it was much harder.

i do go outside

and before starting this last dose i was going gym, and school, (GETTIN A)

but i had to quit causE when I STARTED ROCEV, thats when i started to go down hill real fast.

cant learn dizzy and really dangerous to be on treadmill when dizzy.

i have picc line THis is sixth month
so cant do swimming or weights
, not that i want to anymore
thank for reply hope everyone else does better than me

However, life itself has a way of pulling you along in the darkest times. It's so frustrating watching life pass you by on the outside. I think we all feel like giving up at times. Yet, do 1 thing for yourself that takes no effort or exertion: Try to believe in yourself and the value you have as a person. Lyme may steal your body, but it can't steal your soul if you don't allow it.

I sincerely hope that we will all be able to conquer this illness and find all of the love and joys that life has to offer. I firmly believe that the rewards of winning are worth every moment of the battle.