I am new to Lyme disease so I can't answer all your questions but I can tell you that you MUST MUST MUST get you little one to a Lyme literate doctor ASAP!!!!!

Post in the Seeking a Doctor section for a doctor recomendation. You may have to travel to see him or her but it is well worth it! We drive about 10 hours to see ours but he is a life saver!!!

Your daughter is lucky that she has had some treatment but most doctors have no clue what is needed to fight this disease. She can continue to have symptoms while treated and could get worse before getting better.

Others will post that know much much more than me. The people here know more than the majority of doctors!

Best of luck in your search for the needed information.

We will be praying for you!

SC

Ask others on the site about him, they will be glad to help you get your daughter and appointment with him.

Best of Luck!

Help with meds. http://www.freemedicineprogram.com/

Go to www.ilads.org
Website by best, most experienced Lyme disease drs.

Print "Basic Info" - 3 pages of info everyone should read.

Excerpts -
#3 says "Fewer than 50% of patients with Lyme disease recall a tick bite..."
#4 "...rash is pathognomonic of Lyme disease and requires no further verification prior to starting 6 weeks of antibiotic therapy..."
#10 - There has never been one study that proves even in the simplest way that 30 days of antibiotic treatment cures Lyme.

Go to www.ilads.org/burrascano_1102.htm
Print "Diag Hints & Treatment Guidelines..."
32 pages of excellent info by one of the very best Lyme Literate Med Dr (LLMD).

page 16: Antibiotic Choices
Amoxicillin - Children: 50 mg/kg/day divided into 8 hour doses
This means - 35 lb child needs 800mg/day

page 18: Treatment Categories
Early localized disease - single bullseye rash, no other symptoms
Children: oral therapy for 6 weeks

Early Disseminated disease - milder symptoms present for less than one year...
Children: oral therapy with duration based upon clinical response.

Take both copies to the pediatrician, IF you think she'll be willing to read them.

Also, she needs to consult with the very best Lyme Pediatrician about treatment for your daughter:

Dr Charles Ray Jones
New Haven, CT
Phone 203 - 772 - 1123
For info about Dr Jones, go to www.wildernetwork.org/LDpediatricfund.html

My grandson's pediatrician would not even consider a Lyme diagnosis. We took him out of town to Lyme Dr - had testing, treatment, & later had positive PCR for LD.
Since he had LD several yrs before treatment was started, improvement was slow.
Dr consulted by phone with Dr Jones for a while. Then we took Thomas to CT to see Dr Jones. He is a wonderful physician!!

About testing-
Bullseye rash is diagnostic for Lyme disease.
No test is needed.

It takes about 4 weeks for the body to build up enough antibodies to have a positive test.
There're only a couple labs that specialize in Tick-Borne Diseases (TBDs) & chances are slim to none that your pediatrician uses one of these. www.igenex.com in Calif www.mdlab.com in NJ

More info would be helpful, but answering questions is not required.

When did the bullseye rash appear?

What dose of Amoxicillin is she taking a day?

Where are you located?

I hope that your pediatrician will take advantage of the wonderful opportunity to work with Dr Jones.

My grandson's pediatrician here would not even consider a diagnosis of Lyme.
We had to take him out of town for a diagnosis. After treating with recommended dose of Amoxicillin, the child was not improving as he should, so the dr consulted with Dr Jones a couple times.

Progress was still very slow, so my daughter made an appt to go to CT. The diagnosis was Lyme Encephalitis, which means a long time for treatment, but as Dr J said "He's fixable."
My grandson is 12 yrs old & has probably had Lyme for almost 5 yrs.

Keep in touch & let us know how your daughter is doing.
We care!!