NBC/Think with Tom B/Nightly News

Showed a tick/growing problem chronic lyme disease.

Has anyone else caught or know of this being on???

If not let us try to respond in force.

I am now going to look up on Net if I can find. Just wanted to get post out for all who are able to watch or e-mail...
They show all these commercials so fast hard to catch everything...

Thought maybe it was some weird omen that I found this news just as I opened up lymnet.

Was in a rush. Looked on general must missed it there.

I have left my brain in the freezer or out on the balcony somewhere, who the heck knows.

Did look up just now on the larger section of ads so hope it means a good Honest report such as Lou DObbs did few months back.

The number is off but it was the first time I'd seen someone take our position about Lyme on tv.

I thought I heard them say 15,000 chronic cases of Lyme per year, not just a total of 15,000. That adds up to all of us here and then some...unfortunately.

how do we get a network or news show to do a whole block on it? (30-60 minutes)

That would be nice. There are plenty of patients here that would be more than willing to be on the news for such importants, I am sure of it!

It said nothing new, and may have been a little off, but......to the ones that think we are just plain OFF the rocker and CRAZY.......there you are!
Hope they were watching!!!!!

At first I was really pissed because they showed the chronic Lyme patient teaching exercise class. I thought no matter what they say about how sick she is, people are only going to remember her teaching exercise and think this can't be such a disabling illness.

But now that I think of what they said , it really was terrific.
It just took it for granted that chronic Lyme exists - and that there are 15,000 new cases a year.

It would be nice if this was a turning point and we no longer had to listen to pompous ducks explaining that we are either nuts or have an auto immune problem.
Ellen

My cousin called me after the show and she said "how come you are not able to do physical things like teach yoga?" She was left with the wrong impression of this illness.

At least it made the nightly news. We need to have Dateline or 48 hours pick up 'chronic lyme' and dedicate more time to it.

I agree with you both! I was hoping for someone who wasn't leading a yoga class...perhaps somebody that couldn't walk very well, someone who would be seen as being more physically impaired. I also caught Dr. Bob's comment that "most of the time you will get a rash & bullseye..." Bullwinkies!!! Overall pleased for the national exposure and a great interview given by Kathy. Kudos are in order for NBC, perhaps this will encourage more primetime coverage.

Gail

Nightly News with Tom Brokaw
30 Rockefeller Plaza
New York, New York 10112

or email address:
[email protected]

But, they did say that she has improved after antibiotics and other treatments - SO - it's is also possible that this shows that these treatments are valid and should not be poo-pooed, that they get people BETTER.

Hopefully, it will make the run-of-the-mill docs who viewed it realize that thinking outside the box isn't a bad idea if they want to help people.

(From)
blueocean
Flash Member
Posts: 5
From:
Registered: Jun 2004
posted 15 July 2004 14:09
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Here is the Nightly News with Tom Brokaw contact information:
Nightly News with Tom Brokaw
30 Rockefeller Plaza
New York, New York 10112

or email address:
[email protected]

I think it would be a great idea to contact him to thank him and inquire about more stories made about chronic lyme.

Why are we having such trouble raising this money? Lyme is in the most exclusive neighborhoods in the NE; people with power and money have it. Martha Stewart has had it several times she says. So, why is it so hard to find $3 million dollars. Some benefactor gave Johns Hopkins $100 million to study malaria, a disease not even in this country.

My hopes were same when I posted about Lou Dobbs having a program on Lyme.
Reasoning to send in the e-mails, hit hard & be honest on the opinions besides for thanking.

When I e-mailed Lou Dobbs, he had a much better true coverage about expensive, destroying families lives, govt. not stepping in. It was longer for those who did not catch few months back.E-mail for follow up... He has alot of $$$$ & clout...

Almost everything I e-mailed they had a week later on follow up show. Not saying it was just my e-mail, sure many were on same order.

Mostly he addressed what I asked for.

So lets keep up on these 2 that have had program adressing lyme, Please...

I was watching it while on phone with another lymie.

Think we were both smidge disappointed how short it was after all the ads on it. SO maybe we can push the envelope.

My case like many has never been reported. I also wish it was that easy. Showing here bedridden, to teaching arobics, gives false coverage, what most have to go through.

My wish is all these things, silly stuff, Martha S. etc. Too much coverage.

Just give us a 1 0r 2 min. of that couple times a week. Instead of all the programs same stuff, not as devasting, not to add costly. If we could only get in on that wasted time. Rehashing same old subject.

When we have such a overwhelming epidempic if alot of these autoimmune are truly Lyme.That figure was prob. from CDC only.

All I can say hopefully 1 Big step for mankind each time we can get some primetime coverage.

Keep those e-mails going.

I also noticed on the View, when they brought up lyme ticks for summertime insect bites. Star Jones, briefly if anyone caught it, she turned to Meredith V, said you know someone. Then was interupted.

Did anyone catch that happened so fast about mo. or so ago?????

Does anyone know if this program will air again? If so when?

Regards,