Was dx with babesia and never treated until this doc number 3.

I am 31 yrs old and have 2 daughters that are 7yrs old and 13mths old.

My 7yr old actually has a POS>test per the CDC and shows major symptoms.
My little one has Pos. bands specific for lyme and has been sick more than half her life.

I have Pos. bands for lyme also.
Taking 3000mg Amoxy daily till I get to my LLMD late Aug.
None of us have been "officially diagnosed". But am certain we are all going to be treated due to test/symptoms.

I can go back at least 10 yrs with the first symptoms (chronic fatigue, numbness in hands,and a couple of others). However it seems as though I have always had fatigue and sharp pains in chest/side area even as a young girl.

*Wading through the "duck pond" January to March 2003.

*Self diagnosis March 2004.

*LLMD diagnosis/start of treatment April 2004.

*Currrently symptoms improving on abx and alternative therapy.

I was first knowingly exposed to ticks when we first started going to our inherited land when I was about 8 yrs old.

I ran around in the woods with my brother and we both came back with about 100 ticks on our legs! UGH! This was the late 50's and no one was really concerned about them then!

I've been sick off and on all my life....especially since I was 17 and came down with "mono". After that, it was one thing after another.

Fast forward a few years....My joint/muscle pain began 25 yrs ago, and I was dxd with FM. Then 4 yrs ago I was dxd with Lyme. By that time, I had already been retired on disability for 6 yrs.

So...still taking abx, but doing well.

Misdiagnosed for 5 years with myasthenia gravis due to l droopy eyelid. EMG test never done until I changed Docs & asked for one---5 years after the fact.

Diagnosed with Lyme May 2003 & started treatment; no rash; no tick.

Diagnosed clinically for Babs, June 2004.

My 20 yr. old son just diagnosed for Lyme with Bowen Lab. First developed symptoms as a preschooler & 1 years ago developed 1 droopy eyelid. He's had numerous ticks on him. No rash.

Take Care,
Jan

--Annie

Looking back at the health problems I have had since my teenage years, not sure I may have been infected way back then as I had bitten many times as a child.

This was in 1966 - I/we weren't diagnosed until last October. I'm 41, so that's 38 years. Both of my children have lyme. They got it from me - daughter: 17 years, son: 16 years.

My story sounds much like lymetoo's - even the "mono" that I got - only I was 16. It also attacked my liver.

Time sure flies by - I can't believe it has been three years!

In September 2001 I got this major pain in my legs - a neurological pain. It's a 'funny' pain, always symmetrical. For instance one day both legs hurt inside upper leg, next day both leg outside lower legs etc. Looking back, I think that that was when I got bitten. If that was not the cause then I might have Texas Lyme! Nobody knew what to do with the pain in the legs, they thought it might be related to the radiation treatment for the cancer. They gave me Neurontin. It went away (mostly) February 2002.

March 2003, one year later, I started getting chest pains, pain in my lungs and was always sick. I also had other symptoms, like muscle cramps in my feet. After reading on Lymenet.org I asked my duck to check me for Lyme but he did only ELIZA, which came back negative.

January 2004 I got dx with Lyme (clinically supported with positive Igenex test for BB). Since then on treatment.

When I have my weekly Bicillin herx, the pain in my leg returns for a day or two...

I tell you, the cancer was easy compared to the Lyme!

Diagnosed with Lyme and Bartonella March 2004.

Got strange red rashes when I was 2 or 3 years old. Doctor didn't know what it was but said it could be scarlet fever. Didn't have the strawberry tongue, though. Also, there was no other kid with scarlet fever around and I didn't infect anybody else with it, myself.

Later, I was the only kid who got Mumps THREE TIMES !!! Doctor said, never heard of such a case before, but thought it was probably because I didn't have it properly the first two times ... haha!

quote:

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Originally posted by Lymetoo:
Well, at least 45 yrs. I may have even been born with it...I'm 53 now.

---

That's Lymetoo long.

I relate to Lymetoo, too! I was diagnosed with Mono at 17, and I don't test positive for Epstein-Barr.

I relate to CrimeOfLyme as well. We have the same "laundry list" of diseases: Lyme, Bartonella, Babesia, Mycoplasma (I test positive for long-term antibodies, and I never knew I had this!), and Strep (B).

You should post your story about a DOC saying you had the Mumps three times because you didn't have it properly the first 2 times in the Post Topic called:

New Poll: What is the most outrageous thing a doctor has actually said to you? With 213 responses it was last posted July 20, 2004.

I then got the flu in the summer and was told i had epstein barr.

When i presented months later with 104 fever, strange bloodwork and an enlarged spleen I was sent to an oncologist because they suspected "malignancies."

By some grace of god in the midst of all that i kept insisting on lyme tests and armed with 3 positive ELISAs i did some research.... and ended up with Dr. H who has turned my life around.

On a side note:
The thing i notice most about NEW lymies is that they will dissect all of their symptoms and find a non-lyme cause for all of them -
eg., my knees hurt but i ran in college, so...
Yah, my neck is killing me but 10 years ago i had an auto accident...
My head hurts but i've been under stress lately...

I made every excuse in the book myself -
no one ever ties it all together quite like an LLMD.

wishing you all good health no matter where you are on your journey.

Knocked on medical doors until Jan/Feb. 2003 when I had a lyme dx via a positive Igenex WB.

Continued to finish out testing that had been started as suggested by LLMD to make sure nothing else was going on.

On abx treatment for over a year now. 8th week of IV rocephin currently.

I really feel like I had it longer with minor symptoms and then something triggered it. In August I went camping, got off of Lamisil, got bit by a spider (left a dime size crater), in July got in a car wreck my neck really bothered me after. No telling which one or any trigger it or if I was reinfected.

Only diagnosed with LD in January 2001 after searching and many, many docs and tests from 1999 on.

In reality, I may have given it to my 31 year old, for she has experienced symptoms for most of her life. We do believe, for sure, that she gave it to her 1 year old, possibly her 7 year old. They are all seeing LLMD for first time in August and have their positive WBs in hand.

I was diagnosed with lyme in June of 2001. But my LLMD suspects that I have had it since 1991.

I also tested positive for 2 co-infections in 2003.

Also both my children have lyme, their LLMD feels I may have passed the lyme to them in utero.

My son Derek was diagnosed with lyme in May of 2003 ( at age 7) and my daughter was diagnosed last December at age 6.

I feel I am as good as I'll ever get, so I took myself off all antibiotics in April 2004, and so far I am doing well.

In fact, other than the viral infection I had a few weeks back, I am feeling better now than I have in 3 years.

My children are being treated by Dr.Jones and are both improving...slowly, but improving.

So far, both kids have tested negative for co-infections.

Also just to note, my husband went to the ER about 2 weeks ago and the ER doc ( without knowing that myself and 2 children have lyme) is treating him for lyme as well.

About 18 months later I had painful swelling in my left knee, but I never got a positive Lyme test. I had other symptoms I never connected to Lyme - lower back pain during my time of month, stiff necks, etc.