posted
Hi all! I have chronic lyme disease. I also have bad back -problems. MRI -scan results two weeks ago: L5/S1 middle-sized disk and L4/5 small disk, and they cause nerve S1 constriction. Doctors say, that operation is too dangerous to do. I have daily very hard pain-attacks on my back. I'm now on benzathine penicillin im 1.2IU three times on week. (Now is the second week). What I should to do? How I can relief my pain otherway? (I don't like to take those strong painkillers). What medicine, natural products, massage or anything have helped you on disks -problems? Thank you all for any input. Posts: 93 | From Finland | Registered: Sep 2001
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posted
Bored, I think I am starting to have disk problems too. Lyme loves the CSF and can cause all sorts of joint problems. What has helped me is a hot tub (20 to 30 minutes per session per day - keep you temp under 104 though - use a thermometer) and a sauna (200 degrees 20 to 30 minutes max per session per day). I do one session a day at night after work. This has helped kill off the bacteria in the CSF and helped with the pain. Hope this helps. Ed
Posts: 139 | From Boston, MA, USA | Registered: Oct 2002
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Research disks...collagen...vitamin C...
Imput those 3 words into a search engine.
In chronic disease(s) all the vitamins and minerals are impacted...to a great extent.
Hence...Dr. B's rather large supplement list...
[This message has been edited by Marnie (edited 20 July 2004).]
Posts: 9430 | From Sunshine State | Registered: Mar 2001
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Bored, sorry you've been having such a rough time lately. This is a tough call. Pain MDs LOVE oral steroids and injections for disc pain but the relief is only temporary & most LLMDs feel they're not good for Lymies.
I assume you've tried Physical therapy, TENS, traction, cranial sacral etc? I tried chiro & it made my pain worse. I have friends who've had microdisectomies and IDET/Nucleoplasty with good results, but it's invasive surgery.
I agree, taking the Percocet is no fun. However, Perc & going to PT until the pain calmed down helped me.
Some have reported success with Prolotherapy but I've never tried it.
Someone mentioned Vax-D but I know nothing about it. It looks like a form of traction. http://www.vaxd.net/
[This message has been edited by Lymelighter (edited 20 July 2004).]
posted
Me too with the back issues (bulging L4-L5 and a tilted pelvis causing a 1 3/4 leg difference - which the PT found). Physical therapy has been doing wonders for me!!
I can move without pain, the numbness and tingling in my right leg is almost consistently gone.
If you have not gone to a Physical Therapist - I highly recommend it! It is also helping to increase my tolerance and endurance for physical activity (although it is still minimal).
Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Smiles, good call. My PT has gotten me into the pool 3x pr week and swimming has really helped. It was tough at first, but the opposite strategy of exercising vs bedrest has really made a difference.
Posts: 1010 | From Mars | Registered: Feb 2004
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posted
Thank you for helping lymeinboston, Marnie, Lymelighter, smiles.
I can't go to sauna, cause my neurosymptoms get intolerable on there. Yes, I take some vitamins and minerals, but there is a lot to learn... I have been on Physical therapy, but it didn't help a lot.
If I have radiculitis / inflammation on my back nerves, I hope that Benzanthine Bicillin IM helps on it?
I 'm now on neural massage (sorry, I don't know, what it's right word on english...), and somehow it helps.
I'm curious on prolotherapy, I have never heard on it. i'm not sure, if we have it here in Finland...
Thanks again!
Posts: 93 | From Finland | Registered: Sep 2001
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