posted
If so, what was your dose & for how long? Did you feel improvement on it? Was it in combo w/ anything else? (ie for babs not in combo w/ other lyme abx)
Just did 8 weeks and had a killer headache the entire time - now 2 weeks off and backsliding already. Just wondering about others dosage, duration, and improvement. Thanks! ~Cindy~
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I've been on Levaquin for about 5 or 6 weeks. I've been taking it with penicillin, but am switching from the pen to augmentin because it's more agressive.
No improvement yet. My hands became inflamed soon after starting the Levaquin, which was an old symptom that had gone away. I'm on the Levaquin to target salmonella, which my LLMD thinks is a big deal...but so far she's the only MD I know of with that theory.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I hve been on levaquin for almost 3 weeks....5 more to go. I take biaxin and doxy also. Today I started Plaquenil as well.
Since onthe levaquin I feel lke i am moree symptomatic than just the biaxin and doxy.
I am going to ride it out if I can handle the depression. No tedon problems so far but i would say I ave some muscle soreness.
Hope this helps.
robi
PS thanks for answering my post......it really helps to get infofrom others and emotional support......
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
For me and I am 5foot nine and very thick big boned 250 pounds of angry sicilian pollak. And I used to like to work hard, play hard and drink hard...for me to go on a drug that would'nt even let me have a cocktail once in a while I thought would kill me....but it did'nt....beating this dang bug is more important than cocktails.
I did best on 250mgs three times a day....whenever even a LLMD told me to go to 500MGS I felt my liver quiver and my kidneys hurt. So being my own best doctor I backed off to the 250mg dose three times a day...yeah maybe I gave the cheetes a break but I felt I also gave myself a break....even Sam Donata says that tetracycline three times a day is the best that he has come up with as far as dealing with the spirochete...why three times a day....I don't know,....I've tried more even with homeopathic or organic(like grapefruit seed extract} type parasite killers and three seems to be the basic thing in my body. More makes me sicker than I care to tell you about and less does'nt seem to do enough...keep in mind three....that for me seems to be some kind of key...like three different kinds of antibiotics...which I have tried on my own.....without the knowledge of my llmd at the time....to tell you the truth I did'nt try that approach to long cuz it really made me sick....I tried a cephalosporin, a tetracycline and a pennicillin or mr. cyst buster flagyl...yeah I thought I might do myself in but I also thought hey...if this thing can change it's protein structure at will than I should hit it with as many different abx's as my body could take....it did'nt kill me but made me feel pretty punk and I did'nt do it for long. For about a month was all I could handle.
good luch to us all zman
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Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
I've been on Levaquin 500 mg/d for three weeks with Doryx 200 mg/d. I have been feeling extremely symptomatic on this combination (major fatigue, lots of pains, old symptoms coming back).
My LLMD just told me to take a break from it for three days.
Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Mathias, I may do that combo in the fall. Too many photosensity issues to deal with in the summer sun.
Posts: 1010 | From Mars | Registered: Feb 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Not sure if this is true or not, but my LLMD mentioned one of the reasons tendon damage happens with Levaquin is that the spirochettes are in your tendons. Because it can get deep in the tendons, it kills the spirochettes deep in the tendons, and the toxins are released in the tendons.
It kind of makes sense to me. She said light exercise is ok. I really can't stop my strengthening program, because it reduces my pain so much. But I'm not increasing the weights until after quitting Levaquin.
You also need to take care with exercise for 3 months following the Levaquin.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
I have taken this drug even though my Babs test was a negative. I have not had any Lyme/Babs symptoms.
I took the drug for 2 weeks then stoped for a week. Then took it for another weeks. I am prone to headaches and I did have problems with that (this drug can cause some brain swelling).
But I have been totally symptom free since taking this drug. Whatever it worked on...it worked!
I was on this for 12 days - 500mg daily with Azithromycin 500mg daily for Bartonella...it didn't do much except make me very dizzy - so bad I had to stop.
The dizziness got worse with every dose and i started to get weakness in my hand...it is harder to tolerate with a macrolide.
Dr B has now put me on Rifampin and Clarithromycin instead. Thankfully I never got the tendon damage.
cheers Emma
Posts: 37 | From Whitehead, Northern Ireland | Registered: Feb 2009
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posted
Thanks for the replies guys... This is the first I've heard of tendon damage - does anyone have any other info on that? This was the 1st drug I've been on that wasn't in my drug book. I'm curious cuz for 2 days now my legs are killing me. Anybody know why they didn't hurt while on the med, but now that I have stopped, my legs are so bad? It seems to me they would have hurt while on it, but just that incredable headache, and jaw/teeth pain - which I had experienced w/ the mepron also. Thanks ~Cindy~
Posts: 176 | From Tenn | Registered: Jul 2004
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Thanks for the link robi....I'm not good at multi-tasking on this putter yet - the link made it easy for me. ~Cindy~
Posts: 176 | From Tenn | Registered: Jul 2004
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
When I went to pick the Levaquin up at the Rx store, the Pharmacist freaked and didn't want to give it to me. He said that it has a major cardio interaction w/Biaxin. Yet, my LLMD was perplexed as he's given this combo without a problem. Has anyone asked their LLMD about this?
I checked a few drug int. websites and one said they interact, others didn't. I took Cipro w/Biaxin w/out a problem.
posted
Lymelighter - that's interesting. I'm not on biaxin now, but have had my share of it. I had the same thing happen at the Rx when I was on biaxin, and went to fill my amitriptaline. Except, I had already had an episode where I thought I was dying - so that's when I was switched to trazadone for sleep. Seems biaxin has a few of these drug interactions. ~Cindy~
Posts: 176 | From Tenn | Registered: Jul 2004
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Garden, yes, I had the same scenario. I took an Rx to the ole CVS and the pharmacist freaked! He ripped it up and threw it in the trash then admonished me & my duck for writing the Rx. This duck told me I had CFS and Elavil woulld take me to the promised land, yeah, right. If I had a $ for every Elavil Rx I've gotten I'd be retired at 30.
Good to hear you're having success w/Traz. That stuff makes my fog go from partly cloudy to full overcast. It's better for sleep as it's purportedly not addictive.
Needless to say, be careful, ticks love da' garden!
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